JayCS’s Fibro Blog

Symptoms & Treatments
857

2022-06-24, Friday - Energy 10% / Sleep 70%

Hmm, is the acupuncture effect wearing off again? Or is lack of sleep taking toll? (All tho I’m just weary, not tired.)
Positive summary of symptom-%s:
Σ(+): energy 10%, slp 70%, Acheless 75%, painless 85-90%, alert 80%, GI 95%, feeling 80%, PT >1h

Symptom overview sorted by the ACR 2016 criteria

Widespread pain (WPI): 8 +3 = 11 of 15
Overall Ache Areas (mainly limbs): = 8. Severity: 25% Suppleness (vs. stiffness): 80%
Local Pain Areas (mainly spine, 3): = 3. 15-10%

(Non-pain) Symptom severity (SSS) 3+3+2+0+1+0 = 9 of 12:
Fatigue vs. Energy (FM + MCAS) 3 out of 3 (Energy 10%)
Waking unrefreshed 3 out of 3 (Sleep quality 70%)
Cognitive symptoms 2 out of 3 (mainly fog; alertness 80%)
Headaches & Depression: “0”, Pain/cramps in lower abdomen: “1” out of 1
Feeling Well: sleep 65(-80)%, sleep breaks 65-80%, day 80%
MCAS / allergic 5% (except energy, subsumed under FM-fatigue above)

Treatments overview

Self-treatments (‘PT’) >1h/d
Chinese acupuncture 1h15 again this week.

Triggers & resulting Symptoms

SLEEP (click for details): 7h22, up 8x (2h03) ✅, and ➔ Feeling 65-80% well, Ache 2-4 of 7 ❌, getting up: 70%/3 ❌. 6:30 skin burning, weakness and nausea feeling.

cold shower p0 Sleep 22:45-
23:45 5’ 80%/2/15% p0 st1 sip fw1’ air (ear plugs) A4
00:35 5’ 80%/2/15% p0 st1 sip fw1’ (ear plugs) B1. Not clever looking at work mails at night… :frowning:
0:55 30’ 6 80%/2/15% p0 st1 sip fw1’ (ear plugs)
3:30 5’ 70%/2/15% p0 st1 sip fw1’ (ear plugs)
4:40 5’ 75%/2/15% p0 st1 sip fw1’ air (nostrils) (ear plugs) calves
5:56 5’ 70%/2/15% p0 st1 sip fw1’ air (nostrils) (ear plugs)
6:25 15’ 65%/2/15% p0 st1 sip fw1’ air gel (nostrils) (ear plugs)
6:57-7:50 53’ 70%/4/15% p0 st1 sip fw1’ (nostrils) (sinuses) (ear plugs)
Break for work. B2-4 at 7:45.
-8:10
Sum: 1h15+8h10-(5+5+30+5+5+5+15+53=)2h03, 9h25-2h03 = 7h22, up 8x (2h03)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3 everything slow & low, TT :ping_pong: 1:1, meetings/social :speaking_head:, shop with mask, work, 30’ kids/ ➔ 80%/3 :face_with_monocle:, but then a short meeting with mates & another 2 games of TT ➔ 60%/5 :x:
ACTIONS ➔ PAINS: :white_check_mark: except: neck? GI? jaw? 0xp1-2?
(e.g. lie, stand, sit, arms up, stiff, walk, cycle, talk, mask.)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Praps try avocado, olives, vinegar, mustard and soy/tofu again? But what about fatigue? Vinegar wasn’t good, next I’m trying olives, I’m now up to 2 olives, without problems up to now, this evening increasing to 3.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:

Treatments

Docs:
Chinese Acupuncturist - #22 on 21st :face_with_monocle: (Sleep & +25% GABA helping.) Next appointment #23 on 30th. Is it wearing off after 3 days already?

SELF-PHYSIO (click for details):

:white_check_mark: airing 3x2’, cold shower 1x(10’), cream fc/ey/hd/ft 0x1’, teeth 2x2’, HWB 0x3’, breath exercises 4’, Timing, hunchback-pillow 15’, Y. Nidra 10’, massage gun 0’, neck 1+ 4’, plantar/calf stretch 3’, twist-stretch 5’, yoga/stretching 3’, 64’…
Combine: next?
:x: neck 2 1’, acupressure 2’, palpate 1’, belly 3’, back 12’, workout 7’, horse stance 1’, aloe vera 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 16th (28 supps): Supp costs:~325€/m (Jun 16th) Found a special offer for my exact ginkgo, resveratrol, as well as a good rhodiola product, and ordered a stock for 1.5 years, costing 670€ (37€/m). CHANGED: 5 (sometimes 4) passiflora & 5 GABA, first at 19:00, all ones that were out are back, Fev as of 12th, P5P a bit later, EGCg 15th. GI harder from something, maybe EGCg. My old rhodiola is still not available, but found a good substitute product and ordered that. DOUBLED: both magnesiums, & pine bark to 2 for energy, & B2 to 4x0.05g as my product has less, & magnolia/honokiol to 2 in the *evenings for sleep (12th). DAO seldom, but need to be more careful. No more copper. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B3/Nia, Cu, EGCg, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jun 12th (28 supps): ALA .2g, B2 2x.1g, B12 5mg/3m, C 2x.5g, Cr 3x1g, usually 0 DAO before meals, D3 up to 2-3/w, EGCG 0x(50%, incl. theanine?).5g, EllagicA .2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 4-5x.6g=~2.8g, Gi 3x?, Glu:~0.8g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 0x5mg, Mg Gly 1x50mg, Mg Mal 1x45mg, P5 27mg, Pf 5x.35g, pine bark 2x.5g, Pq 1, Q10 (ubn) !1x.1g/d, Qc 4x.5g/d, Rs (50%) 2x.4g, Ro 0x.3g(+9mgC), Sa .1g, Sily (80%)x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Feb 15th (before: see the reference post)
/20:15 A1/2 “19:00” PF#1+2 GABA#1 Cr#1 1mal#1, 1P5P (0Se) 1PQQ 3mlxΩ3 & Qc. Meal: 0 DAO
Meal - Gum -
/21:50 A3 “21:00” PF#3 .6 GABA#2&.4glu#1 & 1Lut (slp!) & Qc +0NAC
/21:50 Chamomile tea.
/23:45 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid + 0 Rupafin
/0:40 B1 “01:00” PF#5
/7:45 B2 “07:00” +ALA+1x pine bark, (teeth) +0 !Ro
/7:45 B3 “07:00” (-30’) Q10#1 Qc Rs SAM-e
/7:45 B4 “07:00” 0xEGCg + Fev/MSM + Sily
/9:10 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) .1gB2, gink#1, 0 Cu (or Zn) 1xHon, 0 DAO +1gly + 1x pine bark#2
/9:10 C3 “MEAL” .5gC#1 2The2 (0NAC)+PEA
Meal -9:10 Gum -
/13:05 C4 “11:00” (+2h/) gi#2 0gly#1. Nd#? & Ellagic acid
0 DAO (D1) “12:30” 0psyllium
/15:05 D2/3 “13:00” .5gC#2,Cr#3,!.6GABA#5,gink#3,0gly#3+4, 0NAC#5 DRINK!
Meal 15:00-15:30? Gum -
/20:10 D4 “17:00” (“meal/acids+2h”) Qc#4.Rs#2, Nd#? +!Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jun 12th

Pf: 1A1+1A2+1A3+1A4+1B1, B2:A1+C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4. 4-5xGa: A3,A4,B1?,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 1Gly:C2 2Hon:A2 1Mal:A2 Qc: A2.A3.B3.D4 (0)Ro:B2,D4 Rs:B3,D4 SINGLE: P5:A2 A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa+Q1 (->ubiquinone <150mg/d!) B4: EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:2Th+PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

While sleep was better today, I did note that how I felt going to sleep and waking up all the many times feels quite a lot worse than I realized, esp. increasing towards the morning. So I want to focus on that even more. I do realize it may be particularly bad at the moment. The nostrils stuffing up cause a lot of discomfort, plus I often habe a kind of overall discomfort and pain increases, at 6:30 my skin was burning a bit, there’s a kind of weakness and nausea feeling in the background. This partly gets better when I stay up a bit, esp. the stuffy nostrils.
‘Research’ today: No.
Lessons in self-care #346 Taking a bit of a break from work, even the private mails there, doing forum work first
Reasons to be cheerful #349 Free without pressure, just chugging and shuffling along verrry slowly.
Things I love about myself #43 The way I can accept this seeming “crap”, but work on it and keep striving for and getting more peace and happiness.