2022-08-03, Wednesday - Energy 20-25% / Sleep 75% / Feeling 80%-ish
12 sleep breaks! 
Massage gun for esophagus block! 
Much more energy today…!
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (20%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80-75%), insomnia 3 (25%), fog 2 (?20%), headache 0, GI 1 (?20%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 8h13, up 12x! (2h43), trying vagal ear exercises and >1h of Yoga Nidra. ✅, but ➔ Feeling 90-70% well, Ache 2-3 of 7 🧐, getting up: ?80%/2 ❌
cold shower p0 Sleep 00:07- vagal stressing
1:25 9’? 90%/2/10% p0-1 st1 sip fw3’
3:00 29’ 70%/3/10% p0-1 (delayed & long) st2 sip fw25’ grrr air vagal stressing
3:42 3’ 70%/3/10% p0-1 (delayed & long) st1 sip fw1’ air vagal:OK, ear plugs
5:02 12’ 80%/2/10% p1-2 st1 sip fw5’ air vagal teeth
5:32 26’ 80%/2/20% st1 sip fw3’ slight yearn/6 vagal (2x15’‘)
6:19 55’ 80%/2/20% st1 sip fw55’ vagal 2x(2x15’‘) hunger pain eat, bit of heartburn.
7:33 11’ 80%/2/10% p0 st1 sip fw1’ awake, heartburn. OK 5h is much too short, FCS#2
8:30 4’ 80%/2/10% p0 st1 sip fw1’ awake, stools?
9:27 3’ 80%/2/10% p0 st1 sip fw1’
10:19 3’+2’ 80%/2/10% p0 st1 sip fw1’
-10:39 6’ 80%/2/10% p0 st1 sip fw1’
-11:03 B2-4
Sum: 11:03-7-(9+29+3+12+26+55+11+4+3+3+2+6=)2h43, 10h56-2h43 = 8h13, up 12x (2h43), trying vagal ear exercises and >1h of Yoga Nidra.
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, even cycling 3x10’ and 20-30’ of carrying things around TWICE! And 10’ shop in the evening, 1-2 phone calls ➔ 80%/2 
ACTIONS ➔ PAINS: except: neck GI . esophagus: massage gunning it is the new craze! I hope…! Shouldn’t get lax with it tho. But I’ve always got my gun at the table now, ready to draw like a cowboy in a saloon! 
jaw 0x5’’ pee pain: 0xp1-2, despite normal amount of supps - only two meals?! Praps not drinking enough?
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. 
. Testing further. Apparently no problems at the moment.
Fibro & Touch:
Covid-danger:
Weather: Indoors Outdoors: hot and windy, but OK for me for a short time cycling a while…
Urinary diary: 20:00 Strange, sitting on the loo still continually felling something’s still gonna come, but maybe it’s just because I’m sitting there, I’ll just get up - yeah, that was OK. By the way at 16:00 I ate a fig, no problems, at 20:40 200ml almond yogurt to see if a large amount triggers anything. 23:55 p0. 1:25 p0-1 3:00 p0-1 3:42 p0-1 5:02 p1-2 7:33 p0 8:30 p0 9:27 p0 10:19 p0 10:39 ? ?? 17:00 p1 Later: p0… Ate a lot of yoghurt, quite a bit of apple, cheese and raisins in the evening… Only two meals today…
Treatments
Docs:
Chinese Acupuncturist - #26 on 2nd (Sleep & +25% GABA helping.) WOW. Session #27 on 11th.
SELF-PHYSIO (click for details): 2h
airing 5x2’, cold shower 2x(10’), cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 60’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 0’, belly 0’, back 0’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: GenF20+?? (HGH and amino acids); Alpha GPC = choline alfoscerate? B3 flush free? CoQ10 with evening meal from July 20th! (unstuffs nose) Run out of vitamin B2 (R-5-P) July 14th. Reducing P5P too. NEW IDEAS: Copper in psyllium. Copper suggested by verywellhealth, Hagmeyer and now Robbins. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:00 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal - Gum -
/21:55 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
23:00 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
B1 “01:00” PF#5
/11:25 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/11:25 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/11:25 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/13:10 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
/13:10 12:35 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal - Gum -
/19:00 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:15 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/19:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today: tVNS vs. TENS - The "How To" of Transcutaneous Vagus Nerve Stimulation - YouTube
So this video is about tVNS devices (“Parasym”) which are low level low range TENS units attached to the ear with a clip. If t = T, both ‘transcutaneous’. At 3’17’’ it says the specific tVNS units cost £600 (the video was uploaded July 2022), whilst an expensive TENS unit which might be able to be adjusted to this low range costs £80 and the clip for it £40. On the site of the UK TENS company she recommends I can find neither a tVNS unit nor a TENS unit with a suitable program, altho the video was uploaded 3 weeks ago. To me it sounds like hard to get. Or maybe you need to phone them for advice.
On Optimizehealth365 they start talking about tVNS, then recommend a certain TENS unit, and then say as it’s hard to get a tVNS unit you have to do a bit of DIY work on it, which doesn’t sound at all easy…
If it is hard to get and there is hardly any medical evidence then it is last in line for anyone who wants success with their symptoms.
Also I’m specifically wondering what the difference is between a microcurrent unit and a tVNS unit, since both are low level and low range. Looking for a microcurrent unit seems more promising than a tVNS unit.
In the video and in 1-2 studies it says tVNS may be helpful for epilepsy. However above TENS site warns people with epilepsy. From own experience I’m very wary.
Bottom line for me from all this is, incl. that video: tVNS may be of interest to someone who has tried >100 treatment types (like myself), but completely off the grid for someone just starting. If it initiates great hope, it very likely even greater disappointment.
Lacking a better comparison: That would be a bit like a person just starting stamp collecting who wants to save all their money to get just an original Green Mauritius. Just there is no such thing… Instead it’d be much more productive and rewarding to go for the usual things first. A TENS and vagal exercises instead of a tVNS; supps like magnesium glycinate, CoQ10 & passiflora before GABA etc…
Lessons in self-care #384 Wonky self-discipline, sort of OK, getting stuff done, but not eating, drinking well, and sleep difficult, bed too late.
Reasons to be cheerful #388 Wow, massage gun for esophagus blocks 
- who’d’ve though?
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…