2022-08-05, Friday - Energy 20% / Sleep 90% / Feeling 80%-ish
New tool: Temperature drop outside of >15°C, inside of about 6° due to my wife wanting to air all the heat out. (She forgot how much pain that would cause me… The shirt is nearer than the coat. 
Had white lips from the cold. However…) Aside from staying in my un-aired warm room… It made me think up a new strategy for temperature drops: Cold showering and then putting long johns and a thick jacket on, moving around until I overheated, then hot water bottle on my feet, cos they were still cold.
New tool for back training multi-tasked: Typing in cobra position without elbows on the ground!
Breath-holding! 
New tool attempt: Cold showering after food allergy burning reaction… semi-successful
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (20(40%)%, stiff 15%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80%), insomnia 3 (10%), fog 2 (10%), headache 0, GI 1 (20% - or/from bladder), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 8h17, up 5x (1h01), lots of YoNi attempts ✅ ➔ Feeling 80(70)% well, Ache 1(2) of 7 ✅, getting up: 80%/2 ✅
cold shower 23:00 p0 Sleep 23:45-
2:28 36’ 80%/1/15% p0 st1 sip fw5’ 6 → dose, bit vagal, developing unrest
3:30 5’ 80%/1/15% p0 st1 sip fw1’ FCS#2
4:42 4’ 80%/1/15% p0 st1 sip fw1’ air
6:33 5’ 70%/2/15% p0 st1 sip fw1’ nauseous air
7:44 10’+1’ 80%/1/15% (p0) st1 sip fw1’ nostrils, not so nauseous B2-4
post nostrils vid on MountainGirl thread
-9:03 B2-4
stools?
Sum: 15+9h03-(36+5+4+5+11=)61’ = 8h17, up 5x (1h01), lots of YoNi attempts
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, but dash of cold air from going outside my room into the aired flat ➔ 60%/5 
, so quickly back in again to warm up, then thought up the strategy of resetting using a cold shower and then warming up immediately after, to slowly cope with the cold better ➔ 80%/2, 
Nothing else, just shop short in the evening.
ACTIONS ➔ PAINS: except: neck GI (unless not bladder) , esophagus 
, but again massaging immediately helps. jaw 1x5’’ pee pain: 1xp1-2 , but 1xp5! yesterday’s hazelnuts?
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Allergy reaction to some food at 14:00, I think it was too old raw veggies cut either yesterday or praps day before, in fridge, but still. Cold shower helped against the burning & the weakness, esp. faintness & partly the but later at 18:00 I also got sinus burning.
Fibro & Touch:
Covid-danger: . Neighbour who had Covid is out and about again. I think apart from airing the staircase I’ll be masking for a few days, if I see her.
Weather: Indoors : Well, would be, if my wife hadn’t aired! Outdoors ?
Urinary diary: Experimented with quite a lot of hazelnuts (only chocolate to go now) may have “worked”, altho over 12h later, and at night 6xp0 . However hazelnuts aren’t on most lists, as opposed to chocolate so I definitely need to do further trials!: 12:30 p5! (wasn’t sure tho it this was different, there seemed a bit of gut involvement, but stools fine and it seemed to radiate from the bladder. I had to vibrate-massage it for 10’ and put hot water bottle. No specific urge or frequency issue, just stabby bladder pain before and during, that was partly resolved by peeing, but further improved with the massage) 13:45 p2 (13:50 p0 - interesting sitting on the loo for 10 minutes that I can sometimes pee about 3 times.) 14:40 p2 I think 15:40 too, p0? 16:40 p0 17:25 p0
Treatments
Docs:
Chinese Acupuncturist - #26 on 2nd (Sleep & +25% GABA helping.) Still pretty good natural energy, despite the temperature change. Session #27 on 11th.
WHB: 1’20’’ 1’40’’ 1’40’’ without any ado!
SELF-PHYSIO (click for details): 2h11'.... New idea for back exercises: Do the most important ones on my front while typing lying on my front!!!
airing 5x2’, cold shower 3x(10’), cream fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 1x3’, breath exercises 10x1’, Timing, hunchback-pillow 20’, Y. Nidra 30’, massage gun 1x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 1x1’, palpate 10’, belly 0’, back 5’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’, breath-hold 12’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Got rutin yesterday Aug 3rd, started using it immediately. Ordered B3, flush free, olive oil extract, fisetin, (seems to have more not less evidence than rutin). and re-order R-ALA, SAM-e, B2 (R-5-P). A new experiment: pure ATP - can't imagine that working, but who knows. Now I'll be re-ordering bulk sodium ascorbate (alkaline vitamine C) & a cheaper source for luteolin. Decided against GenF20+ (HGH and amino acids).Ordered Alpha GPC = choline alfoscerate today though. Decided to re-order copper gluconate, pending low bloods, and not to take in my psyllium which may cause other problems, e.g. bladder because of the orange flavour, or I might need to order neutral one. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:20 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal - Gum -
/21:40 21:20 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/22:55 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/07:50 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/07:50 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/07:50 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/10:40 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
/10:40 C3 “MEAL” .5gC#1 (0NAC)+PEA
Meal 10:00-11:00 Gum -
/12:40 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:30 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal 14:30-15:30 Gum -
/18:30 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today: Don’t seem to have saved my links about rutin here, I came across it months ago as part of Bruce Hoffman’s C-Team for MCAS and wanted to try more there, also cos of its benefits for heart, blood clotting and lipids. An overview https://draxe.com/nutrition/rutin
Rutin: Benefits, Side Effects, Dosage, and Interactions Got to watch out for headache, rashes, muscle tension, changes in heartbeat, a high white blood cell count, blurred vision, fluid accumulation in your knees, and upset stomach.
I was just wondering whether my favourite acupressure points K27 for short breath have anything to do with the vagal nerve, but can’t find anything:
AWAKEN YOUR LUNGS IN 30 SECONDS - Dr Alan Mandell, DC - YouTube
Lessons in self-care #386 Several new strategies for my toolbox every day!
Reasons to be cheerful #390 Bigger and bigger toolbox!
Things I love about myself #73 So Creative once again!
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…