2022-08-06, Saturday - Energy 25% / Sleep 85(90?)% / Feeling 85%-ish
What is my “fibromyalgia” for me? #1 Severe fatigue with overall Ache #2 insomnia & #3 pain of back, gut & bladder, in that order.
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (10(-20)%, stiff 15%) + spine-pain 3 (20%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15-10%), fog 2 (10%), headache 0, GI 1 (40%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 8h14, up 5x (41') ✅, but ➔ Feeling 70% well (burning and nauseous towards the end), Ache 1 of 7 🧐, getting up: 70/80%/1 ✅
cold shower p0 Sleep 22:45-?23:00?23:30? ear plugs sinuses?
2:19 5’ 80%/2/20% p3 st1 sip fw1’ air A4! ear plugs sinuses?
3:54 5’ 80%/2/20% p3 st1 sip fw1’ air sinuses
5:01 7’ 80%/2/20% p3 st1 sip fw1’ air TEETH eye mask sinuses
5:20 11’ 80%/2/20% p? st1 sip fw1’ air (eye mask) sinuses/face → FCS#2
6:42 13’ 80%/2/20% p0 st1 drink fw5’ air eye mask burn: B2-4 
x6
-7:55 80%/2/20% p0 st1 sip fw1’ eye mask stools firm. sort of awake. nauseous from taking the supps too early!? → drink & almonds.
Sum: 1+7h55-(5+5+7+11+13=)41 = 8h14, up 5x (41’)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/3 TT 3:0, 2x10’ in shops 3x8’ cycle ➔ 80%/3 , later 30’ moving stuff, after a short break 2 shops 30’, 4x8’ cycle ➔ 80%/3
ACTIONS ➔ PAINS: except: neck , GI: firm stools, nausea at 8:00 
, esophagus , jaw x5’’ pee pain: 0xp1-2:x:, all postures & actions fairly OK.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Not sure what triggered the allergic burning at 14:00 , probably old raw veggies, but it ended in sinuses/face burning from 18:00 all night, improved from the cold showers. Better from the morning on.
Fibro & Touch:
Covid-danger:
Weather: Indoors Outdoors
Urinary diary: 21:45 p1 
22:25 p0 23:00 p0 2:20 p3 3:35 p0 3:54 p3 5:01 p3 5:20 p? 6:42 p0 7:55?p0? 10:15 p1? 11:50 p1 12:15 p0-1 , but bladder aching before and after . Can this still be from the hazelnuts 2 days ago, I can’t imagine it, but I haven’t had anything like this for ages and I haven’t changed much else. Supps praps the rutin 
13:25 p3 Still pain, but less afterwards this time and last time. 15:45 p1-2 17:00? p0? 2-3x p0
Treatments
Docs:
Chinese Acupuncturist - #26 on 2nd (Sleep & +25% GABA helping.) Still quite a bit of energy, and the energy bursts have returned fairly consistently! Session #27 on 11th.
SELF-PHYSIO (click for details): 82'
airing 5x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 4x1’, teeth 3x2’, HWB 0x3’, breath exercises 5x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 0x3’, neck 1+ 2x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 3x1’, palpate 1’, belly 0’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Got rutin Aug 3rd, started using it immediately. Got today, but not yet taking B3, flush free, olive oil extract, fisetin (seems to have more not less evidence than rutin), experiments: Pure ATP & Alpha GPC = choline alfoscerate, but continuing R-ALA, SAM-e, B2 (R-5-P), bulk sodium ascorbate (alkaline vitamine C) & luteolin. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/19.50 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal - Gum -
/21:55 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/2:40 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/06:50 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/06:50 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/06:50 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/10:15 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
/10:15 C3 “MEAL” .5gC#1 (0NAC)+PEA + Rutin
Meal -10:20 Gum -
/12:20 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/16:00 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/18:35 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today: Only bits’n’bobs I think.
Lessons in self-care #387 Got to watch out again since the renewed energy bursts without feverishness suggest I can do anything…
Reasons to be cheerful #391 Managed to pick up the balls at table tennis, use energy without problems and go to 2 shops (2x15’) afterwards.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…