JayCS’s Fibro Blog

Symptoms & Treatments
909

2022-08-07, Sunday - Energy 25% / Sleep 90% / Feeling 85%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (20%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (10%), fog 2 (10%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h51, up 7x (1h02) ✅ ➔ Feeling 80% well, Ache 1(-2) of 7 ✅, getting up: 80%/1 ✅

cold shower p0 Sleep 22:55- (stomach burn) (ear plugs) TEETH/
0:24 5’ 80%/1/15% p3 st1 sip fw1’ air A4 (stomach burn)(ear plugs) (nostrils)
1:27 5’ 80%/1/15% p3 st1 sip fw1’ (dry mouth)(ear plugs) (nostrils)
2:32 5’ 80%/1/15% p3 st1 sip fw1’ air (dry mouth)(ear plugs) (nostrils)
3:44 5’ 80%/1/15% p2 st1 sip fw1’ (dry mouth)(ear plugs) (nostrils) (nauseous) feverish
3:57 28’ 70%/2/20% — st1 sip fw15’ (dry mouth)(ear plugs) (nostrils) (nauseous) FCS#2
6:04 3’ 80%/1/15% p2 st1 sip fw1’ (dry mouth)(ear plugs) (nostrils)
7:17 3’ 80%/1/15% p2 st1 sip fw1’ (dry mouth)(ear plugs) (nostrils)
8:25 8’ 80%/1/15% p0 st1 sip fw1’ (dry mouth)(ear plugs) (nostrils)
-8:48 stools, B2-4
Sum: 1h05+8h48-(5+5+5+5+28+3+3+8=)1h02 = 9h53-1h02 = 8h51, up 7x (1h02)

ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/1 “housework” as in sorting stuff, went wrong - some of it fell off my bike on the road, which made me very nervous and shaky, then spoke to 2 people, one I made sure realized that I was far over my limits ➔ 80%/5, but rest back down to ➔ 80%/2 :white_check_mark:, bit of cajon in service without forewarning and only short was interesting - no stage fright, but still a completely unnecessary strain, making me think I need to concentrate more on relaxing while playing music! ➔ 80%/3 :white_check_mark:, but after rest down again to ➔ 80%/2 :white_check_mark:.
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark: GI: stools firm, also OK-ish at night :white_check_mark:, esophagus :white_check_mark: jaw 0x5’’ :white_check_mark: pee pain: 0xp1-2 :white_check_mark:, so now recovered from what it was. Since I’m still taking rutin either it was getting used to it, or it wasn’t that, in that case strangely praps hazelnuts, but for that long seems impossible - I’ll do another hazelnut test soon.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Bit feverish directly after yogurt in the evening, praps keep an eye on that.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark: - just a question of adjusting clothing very quick - less socks outside in the heat, all 5 pairs indoors.
Urinary diary: Most of the day, incl. 16:10 p0 :white_check_mark: 21:00 p0-1 :white_check_mark:.

Treatments

Docs:
Chinese Acupuncturist - #26 on 2nd :white_check_mark: (Sleep & +25% GABA helping.) Still working with natural energy and energy bursts. Session #27 on 11th.

SELF-PHYSIO (click for details): 82'

:white_check_mark: airing 5x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 3x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 0’, massage gun 1x3’, neck 1+ 2x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Got rutin Aug 3rd, started using it immediately. Not yet taking B3, flush free, olive oil extract, fisetin (seems to have more not less evidence than rutin), experiments: Pure ATP & Alpha GPC = choline alfoscerate, but continuing R-ALA, SAM-e, B2 (R-5-P), bulk sodium ascorbate (alkaline vitamine C) & luteolin. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:30 noGABA! A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -20:15? Gum -
/22:20 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/0:25 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/8:55 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/8:55 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/8:55 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/11:05 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
/11:05 C3 “MEAL” .5gC#1 (0NAC)+PEA + Rutin
Meal -11:05 Gum 11:05 -
/13:05 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:55 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal -14:55 Gum 16:10- - Oh, should have brushed teeth…
/17:45 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
A1-2: 19:45, Meal 19:45-20:30…?
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd

Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Reasons to be cheerful #392 Took even the shaky breaky situation in my stride, recovering fairly quickly.
Reasons to be cheerful #393 Very nice meeting 2 people again after a long time.