2022-08-09, Tuesday - Energy 25% / Sleep 90% / Feeling 85%-ish
Tried go get tingling as stim and sleep enhancer not only into my hands, but also jaw and back of head, and partly managing that remembered that these are similar to “pleasure” sensations I used to get, e.g. while someone like my dad was doing something for me.
Looked up acupressure points for stomach burning / acidity / heartburn: ehowhealth (2 similar) and Liebscher & Bracht, each with acupressure points exactly where I thought, but also 1 more idea each - first try seemed to help.
Once I’ve clarified if I can find a food trigger for my painful bladder syndrome, I can try acupressure for it too.
If I get up and my eyes/face are still tired, then it seems successful to go lie down again, whether sleeping or drowsing till that’s gone, instead of getting up and zombie-ing around. So it’s often now been the case that I cold shower in the 2nd from last sleep break, sleep 2h, then wake up with tired eyes so dose another half hour or so.
Driving (being driven) away from home I found several tricks to make the trip easier: ear plugs to reduce the stress from noises, radio etc., lying twisted to the holm with face (all sinuses) in my elbow which was poked into a window angle to stop the breeze from air condition or open window getting too me. Nausea remained a bit of a problem, but OK.
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (10-30%, stiff 10-20%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (10%), fog 2 (15%), headache 0, GI 1 (20%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 8h52, up 5x (1h29) ✅, but ➔ Feeling ?80% well, Ache ?2 of 7 🧐, getting up: ?80%/2 ❌. Sleep breaks probably more due to migrating my laptop to a new one.
cold shower p3! Sleep 23:37- lap A4
0:43 5’ 80%/1/15% p2 st1 sip fw1’ air, stools firm, lap10’
2:25 20’ 80%/1/15% p2 st1 sip fw8’ air, lap3’ cream
4:22 5’ 80%/1/15% p0 st1 sip fw1’ air
6:07 25’ 80%/1/15% p0 st1 sip fw10’ lap10’ ear plugs stomach burn: acupressure
6:56 23’ 80%/1/15% p0 st1 sip fw10’ air FCS#2 (ear plugs) eye mask
9:18 11’ 80%/1/15% p0 st1 sip fw1’ air (ear plugs) stools fairly firm.
-9:58 B2-4
Sum: 23+9h58-(5+20+5+25+23+11=)1h29 = 10h21 - 1h29 = 8h52, up 5x (1h29)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/1 3-4 stints or rummaging around and packing ➔ 80%/3 
, car trip with quite a few successful tricks still ➔ 75%/3 and then resting uneasily, but I spose ➔ 80%/1-2 . Also saw before the last trip here wasn’t as bad as I thought. But I’m only walking etc. very slowly, everywhere, praps to prevent any backlash. Evening: ➔ 60%/3, slightly nauseous, short seizure at 20:55 
ACTIONS ➔ PAINS: except: neck , GI: heartburn despite sternum-acupreesure 
, esophagus jaw 0x5’’ pee pain: 0xp1-2 ?
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. .
Fibro & Touch:
Covid-danger: Yesterday in a restaurant outside with the kids I kept my mask on most of the time when and so grandkid could come near me.
Weather: Indoors . Outdoors - A few days away in a monastery type building with thick ancient walls should make the heat outdoors coming up again the next few days easy to tolerate.
OAB/PBS diary: Mainly
Treatments
Docs:
Chinese Acupuncturist - #26 on 2nd (Sleep & +25% GABA helping.) Still “full” 25% energy! Session #27 on 11th.
SELF-PHYSIO (click for details): 96' after back exercises.
airing 5x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 3x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 20’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Got rutin Aug 3rd, started using it immediately. Not yet taking B3, flush free, olive oil extract, fisetin (seems to have more not less evidence than rutin), experiments: Pure ATP & Alpha GPC = choline alfoscerate, but continuing R-ALA, SAM-e, B2 (R-5-P), bulk sodium ascorbate (alkaline vitamine C) & a cheaper source for luteolin. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:10 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -20:15? Gum -
/22:05 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
B1 “01:00” PF#5
/10:00 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/10:00 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/10:00 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
11:15? C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
11:15? C3 “MEAL” .5gC#1 (0NAC)+PEA + Rutin
Meal - Gum -
13:40? C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
17:05 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal -17:05 Gum 17:05 -
D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
My theory/theories about fibromyalgia??
Well 1) first of all and mainly I “know that I don’t know”. And I also think no one knows anything much, although they claim to, none of the researchers.
2) that it will be very complex and diverse, so probably impossible to find out without machine learning.
3) that researchers (or these machines) would come closer to the various mechanisms by listening very closely to all the details of our symptoms and our daily successes and failures with triggers and treatments.
4) that there will be major aspects yet to find, undiscovered details in the (gut micro-)biome, the neurotransmitters, nerve mechanisms etc.
5) that there will be a central and also peripheral nervous system /( nerve aspect, an immune and autoimmune, maybe connected with the thyroid, a cellular ATP/mitochondria aspect, neurotransmitters / hormones like serotonin & dopamine, neuroendocrine, and the insomnia aspect, that they may find a certain kind of “injury” of a minute kind, that is as yet undetectable.
6) Maybe it will be some day found that these aspects will show a) various subgroups, or/ but also praps that they are all deeply related, either that it is a kind of body burnout on b) various levels or c) that these levels are actually closely interconnected neuro-endocrino-immuno-inflammo-pathy at a deeper level.
‘Research’ today: No.
Lessons in self-care #389 After saying yes to the trip I’m now keeping all activities down.
Reasons to be cheerful #394 The car trip was actually quite good and fun, and it’s good to be here, hard with internet, there’s none in the house we’re in…
Things I love about myself #74 Always trying to overcome difficulties.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…