2022-08-10, Wednesday - Energy 5(-7)% / Sleep 75% / Feeling 60%-ish (away from home (30 miles), day #2)
Yesterday my fatigue & limb-Ache increased towards the evening right up to a short seizure at about 20:00, today energy between extremely low, increasing slightly in the evening, but still with nausea when moving, like directly after the jabs.
Acid acupressure points under sternum working pretty well. Still the wrist point and the Liebscher-Bracht throw-down to come.
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 12 of 15 areas: limb-Ache 8 (40%-30%, stiff 20%-15%) + spine-pain 3 (40%), shoulder-girdles/hips 1 (20%-10%), also eyes & face.
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (95-93%), insomnia 3 (25%), fog 2 (50%), headache 0, GI 1 (10%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 9h20, up 9x (2h05) ✅, but ➔ Feeling 70-90% well, Ache 3-1 of 7 🧐/❌/✅, getting up: 80%/1 ❌/✅. Bad start (back, shoulder& itchy scalp, but tackled those successfully in a long break (exercises, then hair wash and dry), and had to move rooms and go back to sleeping on the floor with a thin mat, cos everything else was hurting, then realized I need a FCS fast cold shower already, after many 1h stints, finally 2 1.5h ones and a 15' one to wake up.
cold shower p0 Sleep 21:55- ear plugs TEETH
23:05 5’ 70%/3/10% p0 st1 fw1’ dry mouth → gel A4?
23:54 8’ 70%/3/30% p2 st3 sip fw1’ sinuses, nostrils, neck, shoulder.
0:15 1h18 70%/3/30% p0 st3 sip fw1h back exercises moving bed itchy scalp - wash hair and massage & trigger-pointing shoulder, burning → drink
1:55 11’ 70%/2/30% p0 st1 sip fw1’ FCS#2 cos after a bit of stretching, 2 strange noises, gnat annoying me I’m getting overheated… trigger-pointing
3:10 7’ 80%/1/30% p3 st1 sip fw1’ massage 3’
4:13 4’ 80%/1/20% p2 st2 sip fw1’
5:32 5’ 80%/2/10% p4 st1 sip fw1’ teeth stomach burn acupressure
7:17 4’ 80%/2/10% p0? st1 sip fw1’ stomach burn acupressure
8:59 3’ 90%/1/10% p0 st1 sip fw1’ acupressure before stomach starts
-9:20 80%/2/30% p0 st1 sip B2-4 No stools yet. Body hurting from the hard floor.
Sum: 2h05+9h20-(5+8+78+11+7+4+5+4+3=)2h05 = 11h25-2h05 = 9h20, up 9x (2h05)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 70%/3 
➔ 60%/4-5 , so just resting all day today (= writing; except cutting veg)
ACTIONS ➔ PAINS: 
except: neck GI: no stools in the morning, very firm, almost too much, at 15:00 , esophagus , jaw 0x5’’ , pee pain: 3xp3-4 , shoulder from sleep.
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . When I wondered if my enormous fatigue is due to mould in this centuries old building, my wife held against it, thought I’d done too much yesterday, plus the trip. However I didn’t feel it was that much: Grass 10’, rummaging 20’, shopping grocery 20’, carrying luggage 5’. and the car trip went well. If it were mould then praps being outside more might help my state?
Fibro & Touch:
Covid-danger:
Weather: Indoors: too cold & sinusey behind these thick old walls, but improving by adapting. 
Outdoors: Walking, sun & heat making me slightly to fairly nauseous.
OAB/PBS diary: Again pain at night. Now suspecting the goat’s fresh cheese again Same - p2-3 - at 12:00 and 13:10 , so maybe just the overall Ache, cos the last cheese was yesterday evening…?
Treatments
Docs:
Chinese Acupuncturist - #26 on 2nd (Sleep & +25% GABA helping.) Something about the trip has deflated all energy and flared the Ache. Session #27 on 11th.
SELF-PHYSIO (click for details): 2h24
airing 1x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 30’, Y. Nidra 10’, massage gun 3x3’, neck 1+ 2x1’, neck 2 0x1’, plantar/calf stretch 5x1’, acupressure 10x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 25x1’, yoga/stretching 5x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Got rutin Aug 3rd, started using it immediately. Not yet taking B3, flush free, olive oil extract, fisetin (seems to have more not less evidence than rutin), experiments: Pure ATP & Alpha GPC = choline alfoscerate, but continuing R-ALA, SAM-e, B2 (R-5-P), bulk sodium ascorbate (alkaline vitamine C) & a cheaper source for luteolin. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:20 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -20:15? Gum -
/21:55 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:05? A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/9:25 B2 “07:00” +ALA+1x pine bark, (teeth) +1Ro
/9:25 B3 “07:00” (-30’) Qc Rs#1 SAM-e
/9:25 B4 “07:00” EGCg + Fev/MSM + Sily +2The
0 DAO
/10:40 C1/2 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2 + vit.D3 2-3/wk.
/10:40 C3 “MEAL” .5gC#1 (0NAC)+PEA + Rutin
Meal -12:40 Gum -
/13:55 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:50 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal -14:50 Gum -
/17:55 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today: No.
Lessons in self-care #390 Doing “nothing”, no compromises.
Reasons to be cheerful #395 Trying to take in the beautiful surroundings at least - sheep, swallows, red-tailed birds…
Things I love about myself #75 Quick mental adaptability to surroundings and my physical state…
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…