JayCS’s Fibro Blog

Symptoms & Treatments
914

2022-08-12, Friday - Energy 9% / Sleep 85% / Feeling 70%-ish (when I don’t move up to 80%, when I move down to 60%) (away, day #4)

Tuesday evening: 60%/3, slightly nauseous, short seizure at 20:55 :x:. Changed supps need to be edited back a few weeks.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (91%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h30, up 6x (1h26) ✅, but ➔ Feeling 70% well, Ache 2 of 7 ❌, getting up: 70%/2 ❌

cold shower p0 Sleep 23:30- ear plugs
0:56 4’ 80%/1/10% p0 st1 sip fw1’
2:13 3’ 80%/3/10% p2-3 st1 sip fw1’
3:28 12’ 70%/3/30% p0 st1 sip fw1’ nauseous, gnat 1
6:14 5’ 70%/2/10% p2 st1 sip fw1’
7:23 3’ 80%/2/10% p0-1 st1 sip fw1’
-7:41

  • 8:40-10:26 “doze” +1h24
    B2-4
    Sum: 30+10h26-(4+3+12+5+3+59=)1h26 = 10h56-1h26 = 9h30, up 6x (1h26)

ACTIVITIES (aim: 40% energy) ➔ ACHE: When I don’t move I’m “fine” ➔ 80%/2 :white_check_mark:, when I do I’m not ➔ 60%/3-4, feels like it’s sucking life out of me :x:, 2x30’ slow walks OK, resting, pain going down ➔ 80%/2 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 0x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:!
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. As it’s not getting any better, it does seem to be the environment/building (mould? can’t be dust) and not the trip. OK, this Friday evening it is a bit better, after a 30’ walk this afternoon another 40’ walk in the evening. Anything like taking photos or going too fast starts me going nauseous again. That’s something MCAS-ey I haven’t been mentioning under this subtitle the past few days.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors: :white_check_mark:. Outdoors: too hot. :face_with_monocle:
OAB/PBS diary: Above 2 at 2:13 and 6:14. Morning OK despite eating raw veggies instead of muesli for breakfast. :x: :white_check_mark: :face_with_monocle:

Treatments

Docs:
Chinese Acupuncturist - #26 on 2nd :white_check_mark: (Sleep & +25% GABA helping.) No idea what’s gonna happen. Session #27 on 11th.

SELF-PHYSIO (click for details): 110' (if still back)

:white_check_mark: airing 5x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 10’, massage gun 1x3’, neck 1+ 2x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 5x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 3x1’, yoga/stretching 5x1’. breath-hold 12’,
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Got rutin Aug 3rd, started using it immediately. Not yet taking B3, flush free, olive oil extract, fisetin (seems to have more not less evidence than rutin), experiments: Pure ATP & Alpha GPC = choline alfoscerate, but continuing R-ALA, SAM-e, B2 (R-5-P), bulk sodium ascorbate (alkaline vitamine C) & a cheaper source for luteolin. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:00 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -21:00 Gum -
/22:00 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/23:30 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/7:45 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
0 DAO
/11:00? C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 2-3/wk.
Meal -11:00 Gum 11:30-
/13:20 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/14:55 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/17:55 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd

Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No.
Lessons in self-care #392 As soon as I can do some more, I do, bit also keep it in check.
Reasons to be cheerful #396 Managed two short walks - less Ache.
Reasons to be cheerful #397 Woodpecker. Several owls in the evening.
Things I love about myself #76 Easy to make happy.