2022-08-13, Saturday - Energy 8 → 12% / Sleep 90% / Feeling 70-80%-ish (away, day #5)
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (20-30%, stiff 15%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (10%), fog 2 (20%), headache 0, GI 1 (10%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 9h53, up 5x (47') ✅, but ➔ Feeling 70(80)% well, Ache 2(3) of 7 🧐, getting up: 80%/2 ✅. Interesting that I'm sleeping so long again, often >9h, that was the case last time we were here too. The fact that my wife is sleeping longer too may be due to her needing to catch up on sleep, so not comparable.
cold shower p0 Sleep 23:05- ear plugs
TEETH
1:34 5’ 80%/2/10% p2 st1 sip fw1’
1:50 11’ 70%/2/30% p0 st1 sip fw1’ unrest → FCS#2
4:34 9’ 70%/2/10% p2-3 st1 sip fw1’ sore throat (cold in evening - runny nose) → Calendula essence. stools firm. nostrils.
5:00 10’ 70%/2/30% p0 st1 sip fw1’ unrest → FCS#3, sore/Calendula. nostrils.
6:20 9’ 70%/2/30% p0 st1 sip fw1’ nostrils.
9:15 3’ 70%/3/15% p0 st1 sip fw1’ nostrils.
-9:49 B2-4
Sum: 55+9h45-(5+11+9+10+9+3=)47’ = 10h40-47’ = 9h53, up 5x (47’)
ACTIVITIES (aim: 40% energy) ➔ ACHE: Sitting a long in the morning sun, doesn’t count, apart from that ➔ 80%/2 
During and after a 30’ and a 60’ walk (with many short breaks) ➔ 80%/2 .
ACTIONS ➔ PAINS: except: neck , GI , esophagus , jaw 0x5’’ , pee pain: 2xp3 at night (1:35 and 4:35), altho 1 slice of bread with cheese per meal - so is it quercetin??
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever 
. Nausea? Getting less, but still there in heat and sometimes while walking. 
Fibro & Touch:
Covid-danger:
Weather: Indoors . Outdoors:
OAB/PBS diary: Bladder problems are decreasing while my quercetin is decreasing, running out, haven’t got a new tub with me. Took one last quercetin at 22:00 - can that explain pee pain at 1:35 and 4:35? Let’s see what happens tonight. Apart from that I’ve also run out of my gluten free muesli since a few days, and since yesterday drinking more water than almond milk cos that’s running out too, but that wouldn’t explain the reducing bladder pain before that, I’d even have expected more bladder problems from water, that was the reason for stopping it in the first place…
Focal seizures: Fairly severe one at 15:00 while eating, with jaw muscle involvement for the first time, caused by a fright when my wife burnt herself and smashed a tray with a plate on it on the kitchen table. During the shaking of my right hand and arm as usual, praps a bit more, the left jay muscle opened my mouth.
Treatments
Docs:
Chinese Acupuncturist - #26 on 2nd (Sleep & +25% GABA helping.) Session #27 on 11th.
SELF-PHYSIO (click for details): 81'
airing 0x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 3x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 3’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Got rutin Aug 3rd, started using it immediately. Not yet taking B3, flush free, olive oil extract, fisetin (seems to have more not less evidence than rutin), experiments: Pure ATP & Alpha GPC = choline alfoscerate, but continuing R-ALA, SAM-e, B2 (R-5-P), bulk sodium ascorbate (alkaline vitamine C) & luteolin. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:15 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -21:00 Gum -
/22:10 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/1:35 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/9:55 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
0 DAO
/11:45 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 2-3/wk.
Meal -11:50 Gum -
/14:15 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/15:30 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal -15:45 Gum -
/18:05 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
‘Research’ today: Monk fruit extract as antioxidant and sweetener, glucose / fructose removed. Still continuing the idea of (not taking?) calcium. Subgroups
Lessons in self-care #393 Shouldn’t ever sit in the sun, like I did this morning, not even 10’. Enough walking occasionally.
Reasons to be cheerful #398 Energy increasing, after a 30’ slow walk in the morning a 45’ not quite so slow walk in the woods in the late afternoon.
Things I love about myself #77 Always willing to work at recovery.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…
[/details]