2022-08-14, Sunday - Energy 15% / Sleep 90% / Feeling 80%-ish (coming back home at last!)
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (15%, stiff 15%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (10%), fog 2 (10%), headache 0, GI 1 (15%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 9h23, up 5x (41') ✅, ➔ Feeling 80-90% well (Friday's gnat bite the main problem), Ache 1 of 7 ✅, getting up: 80%/2 ✅
cold shower p0 Sleep 23:10- ear plugs
TEETH
0:25 16’+? 80%/1/10% p0 st1 sip fw10’ yesterday’s gnat bite hurting/itching terribly, while today’s are behaving fairly well, but it’s about 5 now it appears. Washing with cold water better than cold pack?
2:10 1’ 80%/1/10% p0 st1 sip fw1’
2:32 11’ 80%/1/10% p0 st1 sip fw1’ FCS#2 cos of bite.
6:19 4’ 80%/1/10% p0 st1 sip fw1’ So is quercetin the problem?
7:27 9’ 90%/1/10% p0 st2 sip fw1’ FCS#3 cos of bite, overheated, nostril (in the mornings - often not mentioned, but may prove that mould at home is not the cause)
-9:14 stools, B2-4 Felt like only dosing, I’d forgotten
Sum: 50+9h14-(16+1+11+4+9=)41’ = 10h04-41’ = 9h23, up 5x (41’)
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/1 , service ➔ 80%/1 , then luggage back into the car, tidying the place, the car trip back home ➔ 80%/1 , then music practice for service ➔ 80%/1 , 30’ deep rest (Yoga Nidra) ➔ 80%/1 , service, managed all ➔ 80%/1 , but coming home had to rest for over an hour again ➔ 80%/1 .
ACTIONS ➔ PAINS: except: neck GI: better at night, pang Sat. evening tho, praps wind from firm stools. , esophagus , jaw 0x5’’ pee pain: 0xp1-2 !
MCAS/HIT-Symptoms/Triggers/Treatments: Except lack of real energy as ever. . Nauseous again. Probably worse in the mornings? Every time I did a breath-holding exercise I was better after, so maybe time to get that back into my daily practice.
Fibro & Touch:
Covid-danger:
Weather: Indoors Outdoors: nauseous sometimes, but OK-ish despite heat
OAB/PBS diary: Not perfect, but much better: urgency, frequency and pain - quercetin? (Or muesli? Ate that at 16:00, no quercetin)
Treatments
Docs:
Chinese Acupuncturist - #26 on 2nd (Sleep & +25% GABA helping.) Session #27 on 11th.
SELF-PHYSIO (click for details): 106'
airing 0x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 5’, massage gun 1x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 5x1’, yoga/stretching 5x1’, breath-hold 12’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Run out of quercetin on our trip, which is the only thing I can find associated with decreasing bladder pain?? Also less bladder frequency & stomach problems at night. Forgot A4 at night: PF#4, .6 GABA#3 & .3glu#2 & Ellagic acid#1. Got rutin Aug 3rd, started using it immediately. Got, but not yet taking B3 flush free, olive oil extract, fisetin (seems to have more not less evidence than rutin) or the real experiments: Pure ATP & Alpha GPC = choline alfoscerate. But continuing R-ALA, SAM-e, B2 (R-5-P), bulk sodium ascorbate (alkaline vitamine C) & luteolin. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:00 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -21:00 Gum -
/22:35 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
0! A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/9:25 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
0 DAO
/10:30 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 2-3/wk.
Meal - Gum -
/13:25 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/16:10 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -
/20:00 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd
Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)
Development
Interestingly I’m noticing my eyesight is really good, even/esp. after laptopping.
‘Research’ today: These are things I’d been looking at the past few days.
Re-visiting details on quinoa: What Is Quinoa? One of The World's Healthiest Foods
Monk fruit extract
Monk Fruit Extract Benefits + Side Effects & Dosage - SelfHacked dosage: 0.8-4 g
Monk Fruit: Benefits and Risks
German:
https://www.botanikmeister.de/moenchsfrucht-test (buy best I think via ebay)
Mönchsfrucht – Süße ohne Reue?
https://www.zentrum-der-gesundheit.de/ernaehrung/lebensmittel/alternative-suessungsmittel/luo-han-guo
Mönchsfrucht Extrakt - Zuckerersatz der Zukunft | ERASVITAL
Lessons in self-care #394 Music was worth any backlash, but now have to tone it down.
Reasons to be cheerful #399 Praised for my piano playing several times.
Things I love about myself #78 Emotional and learnt to show it.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries & finishing off treatment list…