JayCS’s Fibro Blog

2022-08-15, Monday - Energy 15% / Sleep 85% / Feeling 80%-ish

:trophy: Stopping quercetin has minimized my bladder problems, praps also stomach, halving sleep breaks!
:trophy: Acupressure (e.g. K6) has minimized gnat itch!
:trophy: Ear plugs and hiding eyes & sinuses in elbow and more twist-stretching minimized car trip problems!
:trophy: Wim Hof breath-holding is improving energy/fatigue!
:trophy: Whatever it was increasing my severe fatigue the first 3 days away from home: it can’t’ve been mould.
:trophy: Cold shower even at 8:00 was successful for another 1.5h sleep.
(:trophy: Cold showering has been improving sleep depth.)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (15%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (85%), insomnia 3 (15%), fog 2 (30%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h52, up 3x (1h28)! (stopping quercetin!) ✅, but ➔ Feeling ?80% well, Ache ?2 of 7 🧐, getting up: ?80%/2 ❌

cold shower p0 Sleep 23:45- ear plugs
TEETH
1:33 45’ 90%/1/10% p0 st1 sip fw1’ 6
5:35 25’ 90%/1/10% p0 st1 sip fw1’ air ear plugs eye mask acupressure gnat itch points K6 → success!
8:10 18’ 90%/1/10% p0 st1 sip fw1’ FCS#2
-10:05 B2-4
Sum: 15+10h05-(45+25+18=)1h28 = 10h20-1h28 = 8h52, up 3x (1h28)! (stopping quercetin!)

ACTIVITIES (aim: 40% energy)ACHE: :x: ➔ ?80%/?3 :white_check_mark:
?? TT, cycle, mask, work, kids,
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:? GI: Sudden short severe colon cramp at 17:35 (from 30 hazelnuts at 16:00??), apart from that: :white_check_mark:, esophagus :white_check_mark: jaw 1x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:. Tofu?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors: hot, but OK :white_check_mark:. Outdoors: hot, storm, OK :face_with_monocle:
OAB/PBS diary: :white_check_mark:. Finalizing by not taking up quercetin, but a load of hazelnuts at 15:00, which if at all seem to be making GI problems.

Treatments

Docs:
Chinese Acupuncturist - #26 on 2nd :white_check_mark: (Sleep & +25% GABA helping.) Session #27 not on 11th, as she’s ill (rash all over and ache)

SELF-PHYSIO (click for details): 81'

:white_check_mark: airing 5x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 5’, massage gun 0x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Was quercetin causing the bladder pain? And bladder frequency & stomach problems at night? Can I stop PF#4 too, like Saturday night? Got rutin Aug 3rd, started using it immediately. Got, but not yet taking B3 flush free, olive oil extract, fisetin (seems to have more not less evidence than rutin) or the real experiments: Pure ATP & Alpha GPC = choline alfoscerate. But continuing R-ALA, SAM-e, B2 (R-5-P), bulk sodium ascorbate (alkaline vitamine C) & luteolin. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/21:00 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -21:00 Gum -
/22:30 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
0 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/10:15 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
0 DAO
/11:05 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 2-3/wk.
Meal -11:20 Gum 11:20-
/13:45 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
0 DAO (D1) “12:30” 0psyllium
/16:20 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
Meal - Gum -16:25
/18:20 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd

Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today:
Acupressure for itchiness (gnat bites), all R & L:
K6 (middle finger), Lower intestine 11 (elbow), (forearm depression/painful), lung 2 (depression under clavicle end), breathe deeply: Acupressure Points for Mosquito Bites and Other Itchiness - Massage Monday #249 - YouTube
K6 …: Acupressure treatment for insect bite - YouTube
K6, Ad1b (middle of middle finger), K6 under ankle, thumb side: Insect bite (कीङे मकोड़े काटना )- Treatment by acupressure - YouTube
K6 finger and KI 6 under ankle: Insect BiteTreatment | Insect bite Treatment in Acupressure - YouTube
Under ankle Insect Bite Treatment By Acupressure || 2021 || #acupressure #effectivetreatment #shorts - YouTube
Itchy scalp before if we don’t get round to washing hair in time:
Spray diluted apple cider vinegar directly on itchy scalp (not hair): Relieve Itchy Scalp with Apple Cider Vinegar - YouTube
Diluted tea tree oil, coconut oil, aloe vera: Treat Dry Scalp at Home | Dr. Hansaji Yogendra - YouTube
Lessons in self-care #395 Leaving most of the chaos around me to rest.
Reasons to be cheerful #400 Still “full” energy, no crash!
Things I love about myself #79 I can be very silly…