JayCS’s Fibro Blog

2022-08-17, Wednesday - Energy 25% / Sleep 85% / Feeling 85%-ish

Successes:
:trophy: Last week’s flare from cold damp old monastery buildings ebbed from day #4 on, no aftermath.
:trophy: Nightly nausea & stomach & unnec. zombified seem to be from midnight supps.
:trophy: Also good about 1 supp (batch) running out or forgotten is that they’re only a small part of lots (5-15 of 55 cps.).
:trophy: New supp idea, anti-inflammatory: huperzia (clubmoss / Bärlapp).
:trophy: Deepening my neck muscle-twist-stretch-massage self-knowledge & interrelation with back muscles.
Learnt:
:student: Lady Gaga uses Dialectical Behavioral Therapy, DBT.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 15 areas: limb-Ache 8 (15%, stiff 15%) + spine-pain 3 (15%), shoulder-girdles/hips 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h54, up 6x (33') ✅, but ➔ Feeling 80% well, Ache 2 of 7 🧐, getting up: 80%/2 🧐. More zombified & nauseous & some stomach ache, so that's the midnight supps A4 I'd forgotten/left off the past few days.

cold shower p0 Sleep 00:00-
ear plugs
TEETH
1:30 4’ 80%/1/10% p0 st1 sip fw1’ air (despite A4, which zombifies)
3:10 7’ 80%/2/10% p1(-2) st1 sip fw1’ zombified and p1(-2) - from A4?
4:20 5’ 80%/2/10% p0 st1 sip fw1’ better without A4
4:35 5’ 80%/2/10% p0 st1 sip fw1’ nauseous, better without A4 FCS#2
6:35 5’ 80%/2/10% p0 st1 sip fw1’ nauseous, better without A4
8:55 7’ 80%/2/10% p0 st1 sip fw1’ nauseous, better without A4
-9:27 B2-4
Sum: 9h27-(4+7+5+5+5+7=)33’ = 8h54, up 6x (33’)

ACTIVITIES (aim: 40% energy)ACHE: :x: ➔ 90%/2 :white_check_mark:,TT 4:1 with unbraked energy, ending 11:25 ➔ 90%/3 :white_check_mark:, I’m guessing I need 2h strict rest - did longer just in case.
ACTIONSPAINS: :white_check_mark: except: neck: more massage-stretching :face_with_monocle:/:white_check_mark: GI stomach hurt and nauseous at night, must be from A4-supps rather than quercetin :face_with_monocle:, esophagus :white_check_mark: jaw 1x5’’ :white_check_mark: pee pain: 1xp1-2 :white_check_mark: Slow 30’ cycle-walk Tuesday evening hurt glute and wrists, glute remained a while.
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Except lack of real energy as ever. :x:.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors: :white_check_mark: (wasn’t out much tho.)
OAB/PBS diary: :white_check_mark:, but now taking the midnight supps off again to see if that decreases sleep breaks again.

Treatments

Docs:
Chinese Acupuncturist - #26 on 2nd :white_check_mark: (Sleep & +25% GABA helping.) Session #27 when she’s well again.

SELF-PHYSIO (click for details): 2h07

:white_check_mark: airing 5x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 20’, massage gun 3x3’, neck 1+ 10x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’.breath-hold 12’,
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 22nd (28 supps): Supp costs:~325€/m (Jun 27th) CHANGED: Can I stop PF#4 too, like Saturday night? Slight problems again using full A4, which is PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1. I feel I can stop PF#4 (zombifies without reducing breaks?) and GABA/glu (bladder frequency?) too, so I'll play around with that before adding the new supps. Left it off Wedn. eve. Got rutin Aug 3rd, started using it immediately. Got, but not yet taking B3 flush free, olive oil extract, fisetin (seems to have more not less evidence than rutin) or the real experiments: Pure ATP & Alpha GPC = choline alfoscerate. But continuing R-ALA, SAM-e, B2 (R-5-P), bulk sodium ascorbate (alkaline vitamine C) & luteolin. Copper (gluconate), pending low bloods. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, B3/Nia, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Jul 22nd (>30 supps): ALA .2g, B2 0x50mg, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, increased up to 2-3/w, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 → 3x.2g (+43mg vit. C), Fev .4g (+.2g MSM), Ga: 5x.6g=3g, Gi 3x168mg, Glu: 0.6+0.3g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 5x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) !1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Jun 27th (before: see the reference post)
/20:45 A1-2A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0P5P, 2x50mg B2, 1PQQ, 5ml Ω3 & Qc. Meal: 0 DAO 1xHon. Q10.
Meal -21:00 Gum -
/22:10 A3 “21:00” PF#3 .6 GABA#2 & .6glu & 1Lut (slp!) & Qc 1xHon
0 Chamomile tea.
/0:00 A4 “23:00” PF#4 .6 GABA#3&.3glu#2 & Ellagic acid#1 + 0 Rupafin
0 B1 “01:00” PF#5
/9:30 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
0 DAO
/10:10, whoops that was C2-4 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, ?1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 2-3/wk.
Meal - Gum -
/10:10 C4 “11:00” (+2h/) gi#2 Ellagic acid#2
/14:15 C1 Meal - Gum -
/15:55 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/18:20 D4 “17:00” (“meal/acids+2h”) Ellag#3, Qc#4.Rs#2, Nd#? +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Jul 22nd

Pf: 1A1+1A2+1A3+1A4+1B1, B2:0A1+0C2 C:C3+D2 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,A4,C1,D2, Glu: A3,a4 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin A4: 0Rup! B2: ALA+1-2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA (A2:Ω/Pq:meal) DAO before every meal, usually only when risk?
(A2:0Se), (B2:0mu), (5NADH if nec.) (D1:0Pe). (0 Nia) (0Nc: A3, B1,C1,C3,D2) (0Sr: B1,C4,D4)

Development

‘Research’ today: No. Except looked up a good huperzia product. And quite a lot more actually, oh I don’t know… more another time…
Lessons in self-care #397 Rested despite probably quite a bit of energy.
Reasons to be cheerful #402 Full energy table tennis and fun.
Things I love about myself #81 Learnt not to panic anymore.