2022-09-11, Sunday - Energy 12% / Sleep 75% / Feeling 80%-ish
Bed “before” 10. Stop forums there.
Test pak choy for burning once tooth is thru.
Halve GABA at A1-3.
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 3 (25%), fog 2 (15%), headache 0, GI 1 (20%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 9h02, up 9x (2h19) 🧐✅ ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 80%/2 ✅. Nostrils 30% stuffy 90% of the night. Almonds for burning stomach due maybe to alcohol in umckaloabo for the slight sore throat. Why so late again?
cold shower p0 Sleep 23:10- ear plugs TEETH
0:23 18’ 80%/2/10% p3 st1 sip fw15’ air p3 despite only 0.3 GABA!
01:51 4’ 90%/1/10% p0 st1 sip fw1’ nostrils OK till…! Also no plugs
2:16 6’ 90%/1/10%! p0! st1 sip fw1’ FCS#2 cos of unrest.
4:04 7’ 90%/1/10% p1 st1 sip fw1’ air pain/pressure ri. abdomen. Slight sore throat. Ear plugs starting roughly now.
4:30 8’ 90%/1/10% p0 st1 sip fw1’ FCS#3 cos of thumping heart, despite getting thoughts away from fw - but they’re coming back, so I shouldn’t’ve looked in…sore throat: Umckaloabo.
5:11 37’ 90%/1/10% (p0) st1 2sip fw35’ air. almonds for burning stomach, probably due to the alcohol in the umckaloabo, cos haven’t had that lately(!) and never taken note about the effect of that alcohol before. Not sure of strategy now, my skin isn’t taking the cold showers too well, burning a bit. The almonds are increasing the jaw pain, so got to get that down again. Doing some easy fw tho now, hoping to get down and tired again. Then Yo/Ni once again, I bet about an hour up to now. OK 30 mins.
6:01 40’ 90%/1/10% (p0) st1 2sip fw1’ 6? - off chance. Nope, still not tired. But cold, so hot water bottle. I can now move quickly without nausea. Dunno how long of course. Feeling too little GABA, so taking some on the tongue plus a bit more - 200mg.
8:58 15’ 90%/1/10% p0 st1 sip fw1’ air Realized it had been much too little GABA, less than half a capsule, so 2x250mg, down from 2x600mg. Taking the 200mg, plus a bit, maybe 50mg, in the mouth, which I spat out, has now given a >2h stint, feeling slightly drugged again, so I hope I can do even more. But B2-4 and stools calling. Still feeling energized tho!
10:22 4’ 90%/1/30% p0 st1 sip fw1’ (ear plugs)
-10:31 stools,
Sum: 50+10h31-(18+4+6+7+8+37+40+15+4=)139 = 11h21 - 2h19 = 9h02, up 9x (2h19)
ACTIVITIES (aim: 40% energy) ➔ ACHE: loads of rest, then 1h rehearsal and gig 80%/2 
, afterwards I can’t say it was the normal fibro ache at all, it was the achey MCAS fatigue again, so lots of rest after too.
ACTIONS ➔ PAINS: except: neck , GI , esophagus , jaw 3x5’’ , pee pain: 0xp1-2
MCAS/HIT-Symptoms/Triggers/Treatments: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. 
. Keeping up all food risks so far.
Fibro & Touch:
Covid-danger:
Weather: Indoors Outdoors .
Treatments
Docs:
Tooth on Tues 6th. Stopped aching Friday to Saturday night. Severe 95% fatigue ongoing.
Cardio phoned back on 8th, I forgot to say, none of the remaining bloods (e.g. copper, B12) was any problem at all.
Immunologist via studies?
Chinese Acupuncturist - #28 on 9th, after 28 days Still good. Session #29 on 23rd.
SELF-PHYSIO (click for details): 2h19
airing 5x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 0x1’, teeth 3x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 40’, massage gun 0x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’. breath-hold 16’,
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:30 HALVE GABA 20: A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/23:00 HALVE GABA 23: A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/09:30 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal -11:15 Gum 10:-11:
/11:00 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/13:35 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal 15:00- Gum - (D1) “12:30”
/14:45 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/19:40 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th
Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)
Development
‘Research’ today: No.
Lessons in self-care #419 Resting was perfect. Need to resists temptation to go on forums at night more, if it goes wrong it can cost me hours/days.
Reasons to be cheerful #422 Gig worked out again.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries