2022-09-14, Wednesday - Energy 8% / Sleep 85% / Feeling 80%-ish
I need to prioritize my own needs more.
Successes:
Walnuts aren’t worth it - tongue inflamed (left) since 16:30 yesterday. 16:30 still… 17:30 slightly better after eating.
Development: Need to focus research on my own needs more.
Back problems since tooth (head/pillows higher).
Better backwards stretches, not backpod atm, cos of lower back.
Press sideways to wall/other mattress for fasciitis/calves.
Going to the grocer’s with my wife made things worse.
Symptoms worsening from this morning on is the NAC, pretty sure.
16:30 histamine-y reaction after supps before eating! From what??
Learnt:
Still more back exercises.
Careful with all “straight” sitting.
Bed “before” 10. Stop forums there.
Test pak choy for burning once tooth is thru.
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-50%, stiff 15%) + spine-pain 3 (20%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (15%), depression 0
Triggers & resulting Symptoms
SLEEP (click for details): 8h57, up 7x (1h46) 🧐✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/3 ✅. Nostrils 20% stuffy 20% of the night.
cold shower p0 Sleep 22:05- Why not 21:45? Blog, wife, guineas, but cb helped me! ear plugs. A3
TEETH
23:25 10’ 80%/2/20% p0 st1 sip fw1’ air
23:55 16’ 80%/2/20% p0 st1 sip fw3’ back → back exercises FCS#2
1:28 16’ 80%/2/20% p2 st1 sip fw1’ A4 FCS#3
3:11 39’ 80%/2/20% p0 st1 sip fw6’ air too long, shd’ve cut, bad for lower back, dosing/YoNi after, but cdn’t concentrate on that either, plantar fasciitis pressing only partly worked, praps the stuffed animals are squashed too much now. Slight heartburn from GABA.
4:24 12’ 80%/2/20% p0 st1 sip fw3’ FCS#4 praps analyze showering time?
6:55 5’ 80%/2/20% p0 st1 sip fw2’ air (nostrils - breathing)
8:00 8’ 80%/2/20% p0! st1 sip fw1’ air B2-4
-8:48 stools, B2-4
Sum: 1h55+8h48-(10+16+16+39+12+5+8=)1h46 = 10h43 - 1h46 = 8h57, up 7x (1h46)
ACTIVITIES (aim: 40% energy) ➔ ACHE: Rest/work: 80%/3 
TT 2:0 ➔ 75%/5 at 12:05 , breath-holding till 12:20 ➔ 80%/4 
, supermarket ➔ 80%/5 , rest after hours ➔ 80%/4 , evening during & despite housework ➔ 80%/2
ACTIONS ➔ PAINS: except: neck , GI , esophagus , jaw 1x5’’ , pee pain: 1xp1-2
MCAS/HIT-Symptoms/Triggers/Treatments: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. 
. More hazelnuts, more olives. Just that half a walnut yesterday, but that may be a more direct allergy on that bit of my tongue.
Fibro & Touch:
Covid-danger:
Weather: Indoors Outdoors .
Treatments
Docs:
Thinking about trying a zoom initial consultation with Bruce Hoffman, someone also suggested that to me, but my wife confirmed my doubts thinking that docs diagnosing around hasn’t got me anywhere and won’t do so. So I guess that also makes an Immunologist senseless.
Tooth on Tues 6th. Stopped aching Friday to Saturday night. Severe 95% fatigue ongoing.
Chinese Acupuncturist - #28 on 9th, after 28 days Still good. Session #29 on 23rd.
SELF-PHYSIO (click for details): 2h12, breath-holding at 12:20
airing 5x2’, cold shower 4x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 5x1’, Timing, hunchback-pillow 20’, Y. Nidra 20’, massage gun 1x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 2x1’, twist-stretch 0x1’, yoga/stretching 0x1’, breath-hold 12’.
Combine: next?
workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:
ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:10 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:05 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/1:30 3rd 400mg GABA
/8:05 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 10:-: Gum 10:-11:
/11:00 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (1 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
whoops /11:00 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
Meal 16:10-17:00 Gum 17:00- (D1) “12:30”
/16:10 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/18:45 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)
The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th
Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)
Development
Not being able to move much gives me more time to invest in new ideas. But I think I need to prioritize my own … need more. Of course I’ve often realized that things I work on for others suddenly do become relevant to me after all. But for instance I’ve just done a bit of research on fibro meds and they’re definitely not on for myself, whatever Teitelbaum says.
Maybe cos I’m a burnt child and have learnt to rely on myself more and more, but the feeling I now have is to work thru everything he’s written as well as mastattack and healthrising etc. in the next few months and then perhaps contact him.
‘Research’ today:
While looking for more Teitelbaum stuff I was again surprised how much meds he actually recommends, compared with other docs, even non-functional ones… :
An excellent new page (Aug 17th) by Cort on healthrising Four Experts On How To Get a Good Night's Sleep: An ME/CFS & Fibromyalgia Inquiry - Health Rising details the 73 aids 4 experts recommend for sleep, agreeing on only 1!
The big differences:
Murphree recommends: only supps, mainly 5-HTP,
Teitelbaum: supps, but also lots of meds! , esp. zolpidem/Ambien, in small doses.
Attia: magnesium and a sleep system,
Huberman: light, temperature, supps and apps.
Cort thoroughly recommends both “newcomers” Attia and Huberman.
Attia uses magnesium and the “Chillisleep OOLER Cooling Sleep System” to closely regulate body temperature.
Enlightening for me was that my body seems to prefer everything that Huberman (neuroscientist) recommends, and there’s 3 on his supps list I haven’t tried yet: Apigenen, Lysine and Myo-inositol. For GABA he recommends “2 grams every 3 or 4 days;” (2 others recommend it in combination products). An intriguing one of his is “drawing tablet”.
There is so much interesting information out there! I think I need to work thru all of healthrising!
But a nice colourful overview of Teitelbaum’s main supps: https://www.bioenergylifescience.com/wp-content/uploads/2020/01/5_My-Essentials-by-J-Teitelbaum_Remedies-for-Life-Feb-2012_0.pdf
That shows he doesn’t use the sugar sort of chocolate himself, altho studies show that even milk chocolate is good for stroke in men:
Does the iPad Night Shift mode reduce melatonin suppression?: No, at least if the brightness setting are left the same (I greatly reduce mine to the lowest possible in the evenings)
Lessons in self-care #422 Less ‘research’ for others, more for myself.
- My food apparently minus broccoli…
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries