JayCS’s Fibro Blog

Symptoms & Treatments
948

2022-09-15, Thursday - Energy 25% :bangbang: / Sleep 70% / Feeling 85%-ish

Successes: :trophy: …
:zap: Much better today “proves” that yesterday’s & Monday’s backlash was the NAC :bangbang:
Learnt: :student: …
:ambulance: Still more back exercises, incl. yoga swinging (faster).
:ambulance: A1-2 supps before 7. Bed before 10. Stop forums there.
:ambulance: Meals at 8/9, 1 and 6. Supps in time. Up GABA if nec.
:ambulance: Today: tested pak choy for burning, no problem… :face_with_monocle:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 15%) + spine-pain 3 (25% at night, 10% day), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (30%), fog 2 (5%), headache 0, GI 1 (5%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h18, up 7x (2h04) 🧐✅ ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅, starting with back exercises and even a short workout with no backlash. One nostril 10% stuffy 10% of the night. No problems with nostrils, sinuses, sore throat, nausea or noise (= plugs) all night, just with lower back unrest, dry mouth/tongue burning and 4 pains! So much more exercises again.

cold shower p0 Sleep 22:07- Why not 21:45? Working unnecessarily.
23:15 20’ 90%/1/10% p1 (late GABA) st1 sip fw15’ air A3
TEETH ear plugs
0:07 10’ 80%/1/10% p1 st1 sip fw1’ LBU → massage; FCS#2, dry, pains: plantar, palmar, ribs under left arm, left elbow, still tongue → calendula.
1:18 13’ 80%/1/30% p1 st1 sip fw5’
2:06 47’ 80%/1/30% p0 st1 sip fw1’ 6 air. Problems by late A1-2(?)
3:30 23’ 80%/1/30% p0 st1 sip fw1’ air back/yoga exercises FCS#3
deeper sleep with dreams at last
5:50 4 ’ 80%/1/30% p0 st1 sip fw1’
7:54 7’ 80%/1/30% p0 st1 sip fw2’ B2-4
-8:29
Sum: 1h53+8h29-(20+10+13+47+23+4+7=)2h04 = 10h22 - 2h04 = 8h18, up 7x (2h04)

ACTIVITIES (aim: 40% energy) ➔ ACHE: workout ➔ 80%/2 :white_check_mark:, rest/work ➔ 80%/1 :white_check_mark:, TT 4:0 ➔ 80%/2 :white_check_mark:, rest/work ➔ 80%/1 :white_check_mark:, 1h garden ➔ 80%/1 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :white_check_mark:, jaw 3x5’’ :white_check_mark:, pee pain: 1xp1-2: 23:15 after late GABA :white_check_mark: :x:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth on Tues 6th. :face_with_monocle: Stopped aching Friday to Saturday night. 15th jump up to 25% energy, so pretty sure Monday was difficult due to piano on Sunday, whilst Wednesday was a problem due to NAC. Oh, Monday I took NAC too!
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 2h04, started off with a 4' workout!

:white_check_mark: airing 5x2’, cold shower 3x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 4x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 20’, Y. Nidra 20’, massage gun 2x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 3x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 5x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: NAC may have been the cause of the pain increase yesterday, after taking it in the morning (13th, like on 11th, also a bad day), so leaving it off again, but now up to 4 quercetin, after going up to 2 on 11th. Something is making my urine very smelly, says my wife, she thinks it's yucky, for me it's OK. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
Teeth
/20:40 !400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum - Teeth2
400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
400mg + GABA
09: B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 9:15-: Gum 10:-11: Teeth
/9:15 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
12:00 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal 14:00-14:30 Gum 14:40- (D1) “12:30” Teeth
14:40 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
18:50 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #423 Kept most things in time. More exercises nec, but
Reasons to be cheerful #425 Days like this make the struggle worth the while.
Things I love about myself #98 Adaptogenic… adaptogenius…