JayCS’s Fibro Blog

2022-09-16, Friday - Energy 25% / Sleep 85% / Feeling 80%-ish

:ambulance: Still more back exercises, incl. yoga swinging (faster).
:ambulance: Meals at 9, 1 and 6. Supps in time.
:ambulance: A1-2 supps before 7. Bed before 10. Stop forums there.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20-50%, stiff 15%) + spine-pain 3 (30%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h06, up 7x (1h28) (deep 7h) 🧐✅ ➔ Feeling ?90% well, Ache ?1 of 7 ✅, getting up: ?80%/?2 ✅. Nostrils 40% stuffy 10% of the night.

cold shower p0 Sleep 22:25- Why not 21:45? ear plugs
23:25 5’ 90%/1/10% p0 st1 sip fw1’ air, firm stools.
TEETH
0:40 15’ 80%/1/10% p0 st1 sip fw8’ air, firm stools.
1:05 3’ 80%/1/10% p0 st1 sip fw1’ the longer strangely increased LBU, so exercises, A4 (GABA + PF)
2:35 8’ 90%/1/10% p0 st1 sip fw1’ air (nostril)
5:00 8’ 90%/1/10% p0 st1 sip fw1’ air, right nostril 40%, cream hands.
5:36 26’ 90%/1/10% p0 st1 sip fw1’ 6 doze, no nostrils (one thought a bit hard to get down with YoNi) so…
7:03 9’ 90%/1/10% p0 st1 sip fw1’ air FCS#2 B2-4 got stuck though YoNi
8:10 19’ 90%/1/10% p0 st1 sip fw1’ one pill had got stuck, drinking on that and trying to massage it away didn’t work, it all suddenly came up…
-8:59 stools
Sum: 1h35+8h59-(15+3+8+8+26+9+19=)1h28 = 10h34-1h28 = 9h06, up 7x (1h28) (deep 7h)

ACTIVITIES (aim: 40% energy)ACHE: First the esophagus block was a big strain. ➔ 80%/5 :x:, then slowly recovered ➔ 80%/3 :x:. Then wanted to get my bike back with train from my place of work (cos who knows when I’ll be feeling this well again), quite an ordeal, and returning a key went quick, cos I said I’m sick and can’t wait long, luckily colleagues commuting too, which was nice, altho probably added strain ➔ 80%/5 :x:, but slowly recovering thru lots of rest ➔ 80%/3 :x: :white_check_mark:
?? TT, cycle, mask, work, kids,
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus: at 7 B2-4 one pill had got stuck, drinking on that and trying to massage it away didn’t work, it all suddenly came up…, still not resolved at 9, ate breakfast with massage gunning all the time, betting better at about 10 :x:, jaw 2x5’’ :white_check_mark:?, pee pain: 2xp1-2 :white_check_mark:. Can’t seem to sit much at all, still due to the lying problems after the tooth treatment.
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Tofu?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Tooth on Tues 6th. :face_with_monocle: Suddenly back to 25% after leaving off the NAC again, so seems fairly resolved, altho still Aching quite a lot when I use the whole of the 25%.
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 2h36

:white_check_mark: airing 5x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 0x3’, breath exercises 5x1’, Timing, hunchback-pillow 0’, Y. Nidra 40’, massage gun 40’!, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 2x1’, twist-stretch 3x1’, yoga/stretching 8x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (32 supps): Supp costs:~364€/m (Sep 8th) CHANGED: 4 Quercetin, from 14th on, no more NAC! Something is making my urine very smelly, says my wife, she thinks it's yucky, for me it's OK. Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 5th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 50g, B12 5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 4x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf down to 3x.35g, pine bark down to 1x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, no Qc 0x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:00+20:10 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:05 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/1:05 400mg + GABA
/7:05 09: B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 10:-: Gum 10:-11:
/10:05 10: C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/13:10 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal -15:15 Gum - (D1) “12:30”
15:15 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/17:15 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #424 Managed to keep everything on time today.
Reasons to be cheerful #426 Did quite a lot and got thru with little harm = backlash.
Things I love about myself #99 Never give up.