JayCS’s Fibro Blog

2022-09-19, Monday - Energy 20 → 10%!? WHY? → ?20% (from glutathione?) / Sleep 85% / Feeling 90%-ish

Successes: :trophy: Glutathione?
:ambulance: Meals at 8/9, 1 and 6. Bed before 10. Stop forums there.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (20%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (80-90-80%), insomnia 3 (15%), fog 2 (10%), headache 0, GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h28, up 8x (1h19), deep ~7h30 ✅ ➔ Feeling 80-90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. Nostrils 10% stuffy 10% of the night, like Fr Sat Sun, just forgot to change it.

cold shower p0 Sleep 22:10-
23:08 5’ 80%/2/10% p0 st1 sip fw1’ air slight nausea & heartburn. Firm stools.
23:35 2’ 90%/1/10% p0 st1 sip fw1’ air cream
0:20 4’ 80%/2/20% p0 st1 sip fw1’
1:25 5’ 90%/1/10% p0 st1 sip fw1’ air plantar/stretch dry/gel GABA #3 cream
2:05 22’ 90%/1/10% p0 st1 sip fw10’ nauseous/drink (from GABA) FCS#2 cream
3:56 6’ 90%/1/10% p0 st1 sip fw1’ air doz/YoNi, sore throat/cal/HWB
6:21 27* 90%/1/10% p0 st1 sip fw1’ 6 ear plugs
8:33 8’ 90%/1/10% p0 st1 sip fw1’ deep B2-4
-8:57 90%/1/10% p0 st1 deep, back ex., 5’ workout in sun
Sum: 1h50+8h57-(5+2+4+5+22+6+27+8=)1h19 = 10h47-1h19 = 9h28, up 8x (1h19), deep ~7h30.

ACTIVITIES (aim: 40% energy)ACHE: 4’ workout ➔ 80%/3 :white_check_mark:, but then 3h later at 12 TT 1:1 ➔ 60%/5 :x:, don’t understand why at all! Last Monday and Wednesday it was NAC that made me think so. What could it be now? Surprisingly better in the afternoon, after glutathione… so 1.5h kids with mask not much of a problem ➔ 80%/3 :white_check_mark:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus but (remember fennel is a problem) :white_check_mark:, jaw 2x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, however urge/frequency high all day :x:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Pak choy is not a problem.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:. Getting used to the cold a bit.

Treatments

Docs:
Chinese Acupuncturist - #28 on 9th, after 28 days :white_check_mark: Still good. Session #29 on 23rd.

SELF-PHYSIO (click for details): 88'

:white_check_mark: airing 4x2’, cold shower 2x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 2x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 20’, massage gun 1x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 2x1’, yoga/stretching 2x1’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 5th (34 supps): Supp costs:~364€/m (Sep 8th) CHANGED: Ordered magnesium threonate on 17th, plus apigenin and myo-inositol (all from Huberman). Started the normal flushing form of B3 from 17th on (OK for starters, esp. as I now know that flushing isn't bad, it may even be good).4 Quercetin, from 14th on, no more NAC! Something is making my urine very smelly, says my wife, she thinks it's yucky, for me it's OK. Added a little NAC & 2 Quercetin on Sep 11th. Added B2 again from 10th on. Copper doesn't seem necessary if my cardio interpreted my bloods right. From 8th on I'm adding the olive leaf extract low (100mg) and slow (but +100mg daily, not weekly), also fisetin I think it was then. Boosting some things from 7th on for tooth. Trying 1x150mg alpha GPC for fatigue from Sep 5th (recommendation on a forum), can add a few when I'm safe. Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Can't explain pee pain on Sep 4th/5th unless additional stress from a gig. Taking 1x B3 flush free since 25th, 2x from 31st (then checking homocystein). New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 17th (32 supps): ALA .2g, alpha-GPC 1x150mg, B2 0x50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glu: down to 0.6g, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 1x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:40 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/21:55 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/1:25 400mg + GABA
/08:40 B2-4 “07:00” +ALA+1x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The
Meal 9:40-10:25 Gum 10:-11:
/10:25 C1-3 “MEAL!” 2Cr#2 .6GABA#4, (C2:) 0x50mgB2, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/13:30 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal 14:00-14:30 Gum 14:40- (D1) “12:30”
14:40 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/17:30 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 5th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B2:0A1+0C2 C:C3+D3 3x2Cr: A1+C1+D2, Ell: A4,C4+D4. 4-5xGa: A2,A3,C1c2,D2, Glu: A3,c1 Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: 0A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: P5+Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B2: ALA+1 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+B3 (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #427 Put off a meeting at midday, cos I was feeling bad, but…:
Reasons to be cheerful #429 Great with grandchild in the afternoon.