JayCS’s Fibro Blog

Symptoms & Treatments
957

2022-09-24, Saturday - Energy 8% / Sleep 80% / Feeling 80%-ish

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (15%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 10 of 12: Fatigue 3 (82%), insomnia 3 (20%), fog 2 (15%), headache 1 (from the B3), GI 1 (20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h58, up 8x (1h02), 7.5h deep ✅, considering I'd forgotten some of my A3 supps incl. passiflora & luteolin ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0% stuffy 0% of the night. Ally's Yoga Nidra helped me a little better than doing it myself, eventually (45'). No nostrils, no sinuses (the frontal headache all night & most of the day will be the B3, no sore throat (HWB all night to make sure), no stomach nausea, not even ear plugs, it's quiet outside cos of rain.

cold shower p/1) Sleep 22:45- Why not 21:45? Cos I started with my blog too late.
22:50 5’ 90%/1/10% p0 st1 sip fw1’ deep stools frontal headache A4 cream
1:15 5’ 80%/2/10% p0 st1 sip fw1’ deep
2:35 22’ 80%/1/10% p0 st1 sip fw15’ deep cream (frontal headache ALL NIGHT - B3?) I’m sure that was FCS#2…
3:27 5’ 80%/1/10% fw1’ doze/YoNi due to the fw, YoNi
3:57 5’ 80%/1/10% (p0 st1 sip fw1’ Ally’s YoNi 30’ then deep.
4:59 5’ 80%/1/10% p0 st1 sip fw1’ deep air
6:03 5’ 80%/1/10% p0 st1 sip fw1’ deep air
7:35 10’ 80%/1/10% p0 st1 sip fw4’ deep air B2-4
-8:45 5’ 80%/1/10% p0 st1 sip fw1’ deep esophagus block due to one capsule :frowning: 9:15 very firm stools.
Sum: 1h15+8h45-(5+5+22+5+5+5+5+10)1h02 = 10h-1h02 = 8h58, up 8x (1h02), 7.5h deep.

ACTIVITIES (aim: 40% energy) ➔ ACHE: Only music making, and 30’ to a shop. After a clash which I considered unfair on one forum I don’t feel like interacting at the moment. ➔ 80%/2 :white_check_mark:.
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus :x:, jaw 2x5’’ :white_check_mark:, pee pain: 2xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Half a walnut at 20:00, tongue hurting a bit at 22:15.
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.

SELF-PHYSIO (click for details): 2h17' when back exercises

:white_check_mark: airing 5x2’, cold shower 2x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 3x2’, HWB 2x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 40’, massage gun 10x3’, neck 1+ 0x1’, neck 2 0x1’, plantar/calf stretch 0x1’, acupressure 0x1’, palpate 0’, belly 0’, back 10’, !!aloe vera 0x1’, twist-stretch 0x1’, yoga/stretching 0x1’, sun 2x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED: I don't think eleuthero or alpha GPC are helping energy as much as glutathione. Myo-inositol seemed to lengthen & deepen sleep stints, I don't think apigenin or threonate did anything (I'm suspicious of the products however). Eleuthero, apigenin, and myo-inositol. Started threonate before the 21st, no difference to sleep. Glutathione diuretic when I take it, not when I don't, starts within an hour, so maybe decreasing the dose. Surprisingly increased energy after first(?) glutathione 19th at 3, so from 20th on at 9 and 3. Started flushing B3 from 17th, increasing without problems, probably 3x250mg/d by the 22nd, OK 23rd or 24th, additional to continuing flush-free, which may be helping increase this time. 4 Quercetin from 14th on. B2 from 10th, remember to halve from 24th. Started fisetin and olive leaf extract (Berg) low on 8th, full 750mg capsules by the 15th. 1x150mg alpha GPC from Sep 5th, more when safe. B3 2x from Aug 31st (then check homocystein). Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Copper doesn't seem necessary if my cardio interpreted my bloods right. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100/50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/20:00 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21: Gum -
/22:15 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/22:50 400mg + GABA
/07:40 B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 10:-10:00 Gum 10:-11:
/10:15 C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/10:15 + glutathion
/13 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal - Gum - (D1) “12:30”
/15 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/16 glutathion
/17:30 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #433 Retiring from forums a bit.
Reasons to be cheerful #434 Happy to have a small gig again Sunday evening.