JayCS’s Fibro Blog

2022-09-25, Sunday - Energy 10% / Sleep 90% / Feeling 85%-ish

Successes:
:trophy: glutathione is OK, not too diuretic now.
:trophy: Huberman’s ideas for sleep are working, esp. myo-inositol before evening meal every 2 nights: 9h50 deep sleep! (which is too long for me to call it “100%”).
:zap: Headache & praps bad mood was very likely due to the B3, altho I haven’t quite sussed it out.

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (10%), fog 2 (?15%), headache 0, GI 1 (?20%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h51, up 5x (28') all deep! ✅ ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/2 ✅. Nostrils 20% stuffy 30% of the night.

cold shower p0 A3 massage back ex. Sleep 22:05- ear plugs
TEETH
23:29 8’ 80%/1/10% p0 st1 sip fw1’ deep air nostrils and sore throat
1:10 5’ 80%/1/10% p2! st1 sip fw1’ deep air A4 nostrils and sore throat
2:50 5’ 80%/1/10% p2! st1 sip fw1’ deep air nostrils & sore throat → HWB
4:15 5’ 80%/1/10% p1 st1 sip fw1’ deep air (6) p => eve GABA 400 + 200 + 200. HWB too hot. No B3: No headache. free6 faster, better sit & nicer.
6:30 5’ 80%/1/10% p0 st1 sip fw1’ deep air. Throat still hoarse. Despite HWB directly on it. Dry mouth.
-8:24 stools, B2-4
Sum: 1h55+8h24-(8+5+5+5+5=)28’ = 10h19-28’ = 9h51, up 5x (28’) all deep!

ACTIVITIES (aim: 40% energy)ACHE: ➔ resting & music 80%/1-2, housework 80%/5, then resting/music seems to be working fine today. :white_check_mark:
?? TT, cycle, mask, work, kids,
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI :white_check_mark:, esophagus: slight problems at midday, not with capsules :white_check_mark:, jaw 3x5’’ left starting up abain after 5 days nothing, 3x5’’ right in the jaw joint, something new, massaging the spot helps :face_with_monocle:, pee pain: 3xp1-2 from 1-4 at night, was that still too much GABA, despite reducing from 3x400 to 2x400 & 1x200mg? :white_check_mark:
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Frontal headache at midday (but not at night etc. anymore) despite no cheese yet and no B3. Stage fright tenseness?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.

SELF-PHYSIO (click for details): 1h43

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 1x3’, breath exercises 3x1’, Timing, hunchback-pillow 5’, Y. Nidra 10’, massage gun 3x3’, neck 1+ 1x1’, neck 2 0x1’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 2x1’, twist-stretch 2x1’, yoga/stretching 2x1’, sun 2x5’, breath-hold 14’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED: No flushing B3 on Sunday before the gig, cos of headache (& mood). I don't think eleuthero or alpha GPC are helping energy as much as glutathione. Myo-inositol seemed to lengthen & deepen sleep stints, I don't think apigenin or threonate did anything (I'm suspicious of the products however). Eleuthero, apigenin, and myo-inositol. Started threonate before the 21st, no difference to sleep. Glutathione diuretic when I take it, not when I don't, starts within an hour, so maybe decreasing the dose. Surprisingly increased energy after first(?) glutathione 19th at 3, so from 20th on at 9 and 3. Started flushing B3 from 17th, increasing without problems, probably 3x250mg/d by the 22nd, OK 23rd or 24th, additional to continuing flush-free, which may be helping increase this time. 4 Quercetin from 14th on. B2 from 10th, remember to halve from 24th. Started fisetin and olive leaf extract (Berg) low on 8th, full 750mg capsules by the 15th. 1x150mg alpha GPC from Sep 5th, more when safe. B3 2x from Aug 31st (then check homocystein). Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Copper doesn't seem necessary if my cardio interpreted my bloods right. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100/50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
/19:30 myo-inositol (even evenings)
/20:05 400mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal 19:45-20:15 Gum - Teeth 21:30
/21:50 400mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
/1:10 400mg + GABA
/8:40 B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 9:30-9:50 Gum 9:55-1:
/9:50 C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
/9:55 + glutathion
/12:05 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal 14:45-15:30 Gum - (D1) “12:30”
14:45 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
/16:05 + glutathion
/19:30 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #434 Nothing but music, keeping off forums.
Reasons to be cheerful #435 Music is challenging, but fun, and seems manageable.