JayCS’s Fibro Blog

Symptoms & Treatments
959

2022-09-26, Monday - Energy 10% / Sleep 85% / Feeling 80%-ish

Funny how I could activate quite a bit of energy for the gig yesterday evening, altho I was drained after, then rested intensely.
Successes: :trophy: Interesting bloods! Phosphate low and B6 high! That’s something I can research for, hypophosphatemia is the word… and needs supplementing phosphate.
:trophy: Trying whole body cryotherapy didn’t work, so no need to think about that any more.
Learnt: :student: Lots about blood, have to put that on tomorrow’s entry!
:ambulance: Checking how I can get Chenodeoxycholic acid (CDCA) for my lp(a) lipid, I could also increase carnitin from 3 to 4g/d.
:ambulance: Got to supplement phosphate!

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 12 of 19 areas: limb-Ache 8 (10%, stiff 15%) + spine-pain 3 (10%), shoulder-girdles/hips 1 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h22, up 7x (48'), deep, except 30+1h deep doze. ✅ ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. Nostrils 20% stuffy 20% of the night.

cold shower p0 Sleep 22:25- A3
TEETH
23:35 14’ 80%/1/10% p0 st1 sip fw1’ deep air 6
0:36 4’ 80%/1/10% p0 st1 sip fw1’ deep A4
1:20 4’ 80%/1/10% p0 st1 sip fw1’ deep air mumijo
3:24 5’ 80%/1/10% p0 st1 sip fw1’ deep air (nostrils) (frontal sinus) (sore throat: umckaloabo & Calendula)
5:20 5’ 80%/1/10% p0 st1 sip fw1’ deep air (nostrils) (sore throat) ear plugs
5:45 11’ 80%/1/10% p0 st1 sip fw1’ doze mind awake → FCS#2 + HWB
7:35 5’ 80%/1/10% p0 st1 sip fw1’ deep doze air (sore throat)
-8:35, 8:45 B2-4 no stools,
Sum: 1h35+8h35-(14+4+4+5+5+11+5=)48’ = 10h10-48’ = 9h22, up 7x (48’), deep, except 30+1h deep doze.

ACTIVITIES (aim: 40% energy) ➔ ACHE: :x: ➔ ?80%/?3 :white_check_mark:
?? TT, cycle, mask, work, kids,
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:?, GI :white_check_mark:?, esophagus :white_check_mark:?, jaw x5’’ :white_check_mark:?, pee pain: 0xp1-2 :white_check_mark:?
(lie, sit, stand, arms up, cycle, walk, mask??)
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: Fatigue better from acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:. Tofu?
Fibro & Touch: :white_check_mark:
Covid-danger: :white_check_mark:
Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Tried whole body cryotherapy again today, was worse rather than better. No better energy. And whether 3 local pains came from that or from cold wet weather I don’t know, but I had a bit to do to get them down again quickly: Knee, clavicle and neck.
Docs:
Dentist again on 20th after treatment on 6th brought energy down for 8+ days… Pain down in a few hours this time (but only due to strict rest), however energy again down to 5-10%.
Chinese Acupuncturist - #29 on 10th, after 14 days :white_check_mark: Still good - would be 20-25% energy if it weren’t for the tooth treatments. Session #30 on 7th.

SELF-PHYSIO (click for details): 85'

:white_check_mark: airing 5x2’, cold shower 2x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 3x1’, Timing, hunchback-pillow 0’, Y. Nidra 5’, massage gun 3x3’, neck 1+ 2x1’, neck 2 0x1’, plantar/calf stretch 2x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 1x1’, twist-stretch 2x1’, yoga/stretching 2x1’, sun 2x5’.
Combine: next?
:x: workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Sep 20th (34 supps): Supp costs:~389€/m (Sep 20th) CHANGED: Sleep was similar tonight to yesterday night, despite no myo-inositol, as it's the "odd night", taking again tonight! I don't think eleuthero or alpha GPC are helping energy as much as glutathione. Myo-inositol seemed to lengthen & deepen sleep stints, I don't think apigenin or threonate did anything (I'm suspicious of the products however). Eleuthero, apigenin, and myo-inositol. Started threonate before the 21st, no difference to sleep. Glutathione diuretic when I take it, not when I don't, starts within an hour, so maybe decreasing the dose. Surprisingly increased energy after first(?) glutathione 19th at 3, so from 20th on at 9 and 3. Started flushing B3 from 17th, increasing without problems, probably 3x250mg/d by the 22nd, OK 23rd or 24th, additional to continuing flush-free, which may be helping increase this time. 4 Quercetin from 14th on. B2 from 10th, remember to halve from 24th. Started fisetin and olive leaf extract (Berg) low on 8th, full 750mg capsules by the 15th. 1x150mg alpha GPC from Sep 5th, more when safe. B3 2x from Aug 31st (then check homocystein). Pure ATP 400mg in liquid was bad, so at most I may encapsulate & start with less, 100mg. Copper doesn't seem necessary if my cardio interpreted my bloods right. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, B2, Cu, Mum, Nc 1*.5g, (Nd), Pe, Ps, atm !Qc, Rib, Se, Sr 31125k, Zn.
REGULAR as of Sep 20th (34 supps): ALA .2g, alpha-GPC 1x150mg, B2 1x100/50mg, B3/Nia 250g & B3 flush free 400mg, B12 0x5mg/4m, C 2x.5g, Cr 6x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, stopped increasing that, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2 x.2g (+43mg vit. C) after a short break, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.4g+2x.6g=2.4g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x, Hon (2%)x2x.4g=16mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, P5P 0x27mg, PEA 1x0.4g Pf 3(-4)x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Sep 5th (before: see the reference post)
0 myo-inositol (even evenings)
/20:00 decreased to 200mg GABA A1/2 “19:00” PF#1+2 GABA#1 Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & 0Qc. Meal: 1xHon. Q10.
Meal -21:00 Gum 21:00-22:05
/22:05 decreased to 200mg GABA A3 “21:00” PF#3 .3-.6?GABA#2 & .3-.6?glu & 1Lut (slp!) & 0Qc 1xHon + 0 Rupafin
decreased to 200mg + GABA
09: B2-4 “07:00” +ALA+ now 2x pine bark, (teeth) +1Ro, 0Qc Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin + (B1:)1x50mgB2 (100mg for 2 weeks)
Meal 10:-: Gum 10:-11:
10:30 C1-3 “MEAL!” 2Cr#2 .6GABA#4, gink#1, 0 Zn, gly#1+2, 1x pine bark#2. .5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC.
0, forgot! glutathion
13:45 C4 “11:00” (+2h/) gi#2 1 Ellagic acid#1
0 Meal - Gum - (D1) “12:30”
14:45 D2/3 “13:00” .5gC#2 , 2Cr#3, .6GABA#5, gink#3 DRINK!
15:00 glutathion
18:45 D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
“18:00” Prepare: 1) Cpl & chk/C supp-chg. 2) Remove “v”, cut, save, paste 1x & unhide & paste 2nd (+1 to date and ##). Close 2nd TAB!
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Sep 20th

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3ff: C3,D3. B3f: A2,C3,D3. C:C3+D3 3x2Cr: A1+C1+D2, Ell: C4+D4. 4-5xGa: a2,a3,a4,C1,D2, Glutamin: A3,c1 Glutathione: C2,D2. Gi: C2,C4,D3 2Gly:C2 Hon:A2.A3. 2Mal:A2 Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: 0P5+1Q1 (->ubiquinone <150mg/d!):A2. A3: Luteolin B1:B2,Fis.B2: ALA+2 pine B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C2:0Cu/Zn C3:PEA+Ru. (A2:Ω/Pq:meal) DAO before risky meals?
(A2:0Se), (B2:0mu), (0Nc: A3, B1,C1,C3,D2)

Development

‘Research’ today:
Looking up what my new bloods, like too low phosphate mean! (More on that tomorrow.)
Too high in blood: lp(a), B6, glucose, triglycerides, too low: leukocytes (thrombocytes), phosphate, HDL as ever, B2, CoV antibodies are there, but not high enough, copper is inside the limits, but at lower end.
So re-checking lipid reduction: How I can get Chenodeoxycholic acid (CDCA) for my lp(a) lipid, I could also increase carnitine from 3 to 4g/d. And need to read B3 up again, praps in the Momtazi 2019 study, cardio says we’ll just have to see if my heart changes, it’s fine today Dunno if the glutathione is helping the lipids too, in replacement of the NAC I don’t tolerate. Started mumijo again early today, 26th, it says do it for 3-4 weeks, then a break again…
Need to order theanine and CoQ10 again, but I can take ubiquinol instead of ubiquinone for the time being.

Lessons in self-care #435 Bit of a wild day today, tried quite a bit, but that’s OK. Lots of rest.
Reasons to be cheerful #436 My lp(a) isn’t higher it’s lower, cos it was a different lab / different units!