JayCS’s Fibro Blog

Symptoms & Treatments
984

2022-10-21, Friday - Energy 17-20% / Sleep ?85% / Feeling ?80%-ish

Successes: :trophy: Appt. for the alternative health practitioner :zap: …
Learnt: :student: … ToDo: :ambulance:

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 10%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (83-80%), insomnia 3 (15%), fog 2 (15%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 8h59 up 8x (2h05), 5h deep, 4h doze/YoNi 🧐❌ ➔ Feeling 90-80% well, Ache 1 of 7 ✅, getting up: 80%/?2 ✅. Nostrils 20% stuffy 30% of the night.

cold shower p0 loose stools. A3 Sleep 22:45- Why not 21:00? Cos I don’t care too much today…
ear plugs?
23:30 30’ 90%/1/10% p0 st1 sip fw1’ deep doze air TEETH? A’sYoNi no: FCS#1, then HWB & A’s YoNi45’
0:44 33’ 80%/1/20% p0 st1 sip fw1’ /YoNi/ distracting thoughts: HP & WG & ?music? air A4 6 nostrils
2:25 5’ 90%/1/10% p0 st1 sip fw1’ doze A’sYoNi5’ nostrils clavicle LBU
2:40 20’ 90%/1/10% p0 st1 sip fw11’ doze FCS#2 A’sYoN clavicle LBU
5:56 10’ 90%/1/10% p0 st1 sip fw4’ deep air ear plugs nostrils10% throat10%
7:43 7’ 80%/1/20% p0 st1 sip fw1’ deep air frontal-sinus20% clavicle LBU
7:59 3’ 80%/1/20% p0 st1 sip fw1’ doze frontal-sinus clavicle LBU massager20% clavicle LBU massager
9:03 17’ 80%/1/20% p0 st1 sip fw1’ doze A’sYoNi35’
-9:49 doze 9:55 B1-4 5’ in sun, stools firm
Sum: 1h15+9h49-(30+33+5+20+10+7+3+17=)2h05 = 11h04-2h05 = 8h59 up 8x (2h05), 5h deep, 4h doze/YoNi
Memo: Need to ask mates for coriander

ACTIVITIES (aim: 40% energy) ➔ ACHE: 2h of errands & bringing cycles to get repaired, quite strenuous ➔ 80%/3 :white_check_mark:
ACTIONS ➔ PAINS: :white_check_mark: except: neck :white_check_mark:, GI: loose stools at 22:35 cos of eating late & badly in the afternoon :face_with_monocle:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 1xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: But fatigue still high :x: after tooth treatments and phosphate deficiency and despite acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:, but I think I might be able to still tweak sleep better.
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.

Treatments

Docs:
Chinese Acupuncturist - Session #31 on 21st, after 14 days :white_check_mark: But energy still down to 15% most of this week.
Session #32 on Dec 4th.
Alternative health practitioner: appt. on Dec 6th, doubt she’ll be able to help
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): 83'+80'YoNi=2h43

:white_check_mark: airing 5x2’, cold shower 2x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 3x2’, HWB 2x3’, breath exercises 3x1’, Y. Nidra 80’, massage gun 1x3’, plantar/calf stretch 3x1’, acupressure 1x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 3x1’, yoga/stretching 3x1’, sun 2x5’.
Combine: next?
:x: hunchback-pillow 20’, neck 1+ 1x1’, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Oct 3rd (46 supps since mid-Sept): Supp costs:~394€/m (Oct 2nd, checked several prices). CHANGED: Ordering luteolin in 1-2 weeks. Ordered niacin (as nicotinic acid, as powder) again, since I've decided I can take the side effects and the diabetes risk, my glucose is OK even after meals. Doubled vit. C to 2x2x0.5g from Oct 14th. Flushing B3 now already at 3x350mg since Oct 13th for another while before increasing. B2 increased to 400mg, see if the next bloods are OK. Praps trying ATP again, encapsulated, since my phosphate is deficient. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, Cu, mum, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Oct 2nd (46 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 2x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x2x.5g, Cr 8x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, myo-inositol 1x1g/2d, NADH 1x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
EARLIER!
/20:00 “16:15” preparing pills
/21:30! Hope that’s OK! “18:30” myo-inositol (even evenings) + teeth
/20:15 “18:45” A1/2 PF#1+2 1x300mg GABA Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & Qc#1. Meal: 1xHon. monk’s fruit. CoQ10.
Meal -20:30
/21:30 “20:00” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
/22:35 “21:00” A3 PF#3 300mg GABA & .6glu & 1Lut (slp!) & Qc#2 1xHon + mag threo. 0 Rupafin.
/1:00 “23:00” A4 300mg GABA + teeth
/9:55 B1-4 5’ in sun “07:00” ALA, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
Meal ’ in sun 10:30-11:00? Teeth
/11:05? 5’? in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, pine bark#1. 2x.5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
11:05 “after muesli” C5 glutathion
?13:00 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
?-15:50 “14:00” 0 Meal 0’ in sun
?15:50 “14:15” D2/3 ’ in sun 2x.5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2, pine#2.
?15:50 “after lunch” D3+ glutathion
“16:15” teeth
->18:55 “16:15” preparing pills
/18:30 in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Oct 3rd

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:2C3+2D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2: 2x mag mal. 0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). A3: Luteolin. mag threo. B1:Fis.B2: ALA+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia.pine. C2:0Cu/Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #455 Still good balance between rest and work.
Reasons to be cheerful #456 Got quite a lot of tough “action” stuff done.