JayCS’s Fibro Blog

2022-10-23, Sunday - Energy 25%! / Sleep 90% / Feeling 90%-ish

Learnt: :student: Levagen±PEA seems a better form (4 studies on pubmed).

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff 5%) + spine-pain 3 (5%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (75%), insomnia 3 (10%), fog 2 (10%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

SLEEP (click for details): 9h58, up 8x (1h58), deep 8h+? ✅ ➔ Feeling 90(80)% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. Nostrils 5-15% stuffy 20% of the night.

cold shower p0 Sleep 22:40- Why not 21:00? Making sure I’m tired and got nauseous & diarrhea from something, praps the aloe vera. ear plugs
23:45 5’ 80%/1/10% p0 st1 sip fw1’ deep air
0:20 40’ 90%/1/10% p0 st1 sip fw1’ deep air A4 (YoNi)
2:15 20’ 90%/1/10% p0 st1 sip fw15’ deep (YoNi)
3:50 20’ 90%/1/10% p0 st1 sip fw15’ deep soundcloud (YoNi)
4:40 18’ 90%/1/10% p0 st1 sip fw1’ doze air back ex, FCS#1 temp: 36,2° HWB → YoNi (stomach)
6:30 5’ 90%/1/10% p0 st1 sip fw1’ doze → deep air (stomach)
8:10 5’ 80%/1/10% p0 st1 sip fw1’ deep air ear plugs
9:27 5’ 90%/1/10% p0 st1 sip fw1’ deep air temp 36,3° (3’)
-10:37 10:40 B1-4 5’ in sun, stools firm? nostrils 15%
Sum: 1h20+10h37-(5+40+20+20+18+5+5+5=)1h58 = 11h57-1h58 = 9h58, up 8x (1h58), deep 8h+?

ACTIVITIES (aim: 40% energy)ACHE: gardening almost 2h, music, table tennis, music ➔ 90%/1 :white_check_mark: :white_check_mark:
ACTIONSPAINS: :white_check_mark: except: neck :white_check_mark:, GI: nauseous & fluid stools, maybe from aloe vera rest or something else that may have been off, don’t know what. :x:, esophagus :white_check_mark:, jaw x5’’ :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:
MCAS/HIT-Symptoms/Triggers/Treatments: :white_check_mark: But fatigue still high :x: after tooth treatments and phosphate deficiency and despite acupuncture/sleep/cold showering as well probably as losing the CoV-antibodies. :face_with_monocle:, but I think I might be able to still tweak sleep better.
Touch: :white_check_mark: Covid: :white_check_mark: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:.
Body temperature see supp details.

Treatments

Docs:
Chinese Acupuncturist - Session #31 on 21st, after 14 days :white_check_mark: But energy still down to 15% most of this week.
Session #32 on 4th.
Alternative health practitioner: appt. on Dec 6th, doubt she’ll be able to help. But doesn’t matter, cos I can learn, understand and remember just by explaining to her. And it’ll be fun getting her confused. :rofl:
3rd jab on Nov 7th… :horse_racing:

SELF-PHYSIO (click for details): 94'

:white_check_mark: airing 5x2’, cold shower 1x(10’), warm shower 0x(10’), cream/oil fc/ey/hd/ft 1x1’, teeth 2x2’, HWB 0x3’, breath exercises 3x1’, Y. Nidra 30’, massage gun 0x3’, plantar/calf stretch 1x1’, acupressure 0x1’, palpate 1’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch 3x1’, yoga/stretching 3x1’, sun 3x5’.
Combine: next?
:x: hunchback-pillow 20’, neck 1+ 1x1’, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Oct 3rd (46 supps since mid-Sept): Supp costs:~394€/m (Oct 2nd, checked several prices). CHANGED: Increase Myo-Isonitol to improve triglycerides and HDL. Ordering luteolin in 1-2 weeks. Ordered niacin (as nicotinic acid, as powder) again, since I've decided I can take the side effects and the diabetes risk, my glucose is OK even after meals. Doubled vit. C to 2x2x0.5g from Oct 14th. Flushing B3 now already at 3x350mg since Oct 13th for another while before increasing. B2 increased to 400mg, see if the next bloods are OK. Praps trying ATP again, encapsulated, since my phosphate is deficient. New idea: Creatine. PLANNED/TAKEN TODAY: click for details:

ZERO now: Arg, Cu, mum, NAC 1*.5g, Pe, Ps, Rib, Se, Sr 31125k, Zn.
REGULAR as of Oct 2nd (46 supps, all new and re-visited ones now counted): ALA .2g, alpha-GPC 1x150mg, apigenin 1x50mg, B2 2x100mg, not going down to 50mg, B3/Nia 3x150g & B3 flush free 2x400mg, B12 0x5mg/4m, C 2x2x.5g, Cr 8x0.6g, 0(-2) DAO before meals, D3 20.000 IE = 500mcg, + K2 (MK7) 200mcg, EGCG 1x(50%, incl. theanine?).5g, EllagicA 2x.2g (+43mg vit. C), eleuthero 2, Fev .4g (+.2g MSM), Fis: 1x196mg. Ga: now 3x0.3g+2x.6g=2.1g, Gi 3x168mg, Glutamin: down to 0.6g, Glutathione 2x250mg, Hon (2%)x2x.4g=16mg, huperzia 1x0.2mg, Luteolin .2g, Ω3 1x5mg, Mg Gly 2x50mg, Mg Mal 2x45mg, Mag threo “0.6g”, monk’s fruit 0.1g, myo-inositol 1x1g/2d, NADH 1x, olive leaf extract 2x.75, P5P 0x27mg, PEA 1x0.4g Pf 3x.35g, pine bark 2x.5g, PQQ 1, CoQ10 (ubn) 1x.1g, Qc 4x.5g, Rs (50%) 2x.4g, Ro 2x.35g, Rutin: 1x522. Sa .1g, Sily (80%) 1x.5g (+83mg L-cholin) , The 2x.2g (+.15g polyphenols).
What-when-details: Updated Oct 3rd
EARLIER!
/18:40 temperature
/18:50 “16:15” preparing pills
/18:50 “18:30” myo-inositol (try → every evenings) + teeth
/19:25 “18:45” A1/2 PF#1+2 1x300mg GABA Cr#1+2, 2 mg mal, 0-1P5P, 0x50mg B2, 1PQQ, 5ml Ω3 & Qc#1. Meal: 1xHon. monk’s fruit. CoQ10.
Meal 19:25-20:30 ’
/20:50 “20:00” pre-A3 agigenin 1h before bedtime + teeth
/22:10 “20:30” chamomile
/22:05 temperature
/22:00 “21:00” A3 PF#3 300mg GABA & .6glu & 1Lut (slp!) & Qc#2 1xHon + mag threo. 0 Rupafin.
“23:00” A4 300mg GABA + teeth
10:50 B1-4 5’ in sun “07:00” ALA, 1Ro, Qc#3 Rs#1 SAM-e EGCg + Fev/MSM + Sily +2The +Fisetin. 2xNADH.+Rut.
temperature 11:24-29: 36,1°
Meal ’ in sun 11:35-: Teeth
12:15 5’ in sun C1-4 “MEAL!” 3!Cr#2 .6GABA#4, gink#1, 0 Zn, mag gly, pine bark#1. 2x.5gC#1 (0 NAC)+PEA + Rutin + vit.D3 1/wk. + 1x alpha-GPC. (C1:)400mg, vit.B2 (actually 100mg for 2 weeks, then 50mg, but I haven’t got much…). 2x eleuthero. 1x hup. OlivLeaf#1
12:15 “after muesli” C5 glutathion
14:15 temperature 36,6°
/14:15 “11:00” D1 (ex-C4) + Teeth (+2h/) gi#2 1 Ellagic acid#1
14:50 temperature 37,0°! despite drinking something at room temperature 15’ before.
14:50-15:35 “14:00” 0 Meal 0’ in sun
/15:35 “14:15” D2/3 ’ in sun 2x.5gC#2 , 3!Cr#3, .6GABA#5, gink#3 OlivLeaf#2, pine#2.
15:35 “after lunch” D3+ glutathion
temperature
“16:15” teeth
19:50 “16:15” preparing pills
19:40 temperature 18: in sun D4 “17:00” (“meal/acids+2h”) Ellag#2, Qc#4.Rs#2, +1Ro
eve:
(Nov 4th, Jan 10th: B12 5mg methylcobalamin s.c.; last: Apr 10th.)

The day's 16 supp-compartments (10', plus 5' making capsules), Oct 3rd

Pf: 1A1+1A2+1A3, alpha GPC:C2. B3f-f: C3,D3. B3f: A2,C3,D3. C:2C3+2D3 8Cr: 2A1+3C1+3D2, Ell: D1(ex-C4)+D4. 4-5xGa: a2,a3,a4,C1,D2, Gi: C2,D1 (ex-C4),D3 Glutamin: A3 (0c1) Glutathione: “C5”, “D3+” (after meal). Hon:A2.A3. Oliv leaf extr:C1D2. pine:C1D2. Qc: A2.A3.B3.D4 Ro:B2,D4 Rs:B3,D4 SINGLE: A2: 2x mag mal. 0P5+1xQ1 (->ubiquinone <150mg/d! atm ubiquinol). A3: Luteolin. mag threo. B1:Fis.B2: ALA+2NADH B3:Sa. B4: 2Th EGCG&Fev/MSM&Sily C1: 2x alpha GPC. eleuthero. huperzia.pine. C2:0Cu/Zn 2Gly C3:PEA+Ru+vitB2, (A2:Ω/Pq:meal, A3: apigenin) DAO before risky meals? monk’s fruit usually evenings. D3 1x/wk. myo-inositol 1x/2d.
(A2:0Se), (0NAC: A3, B1,C1,C3,D2)

Development

‘Research’ today: No.
Lessons in self-care #457 Able to do lots and I knew without backlash.
Reasons to be cheerful #458 Loads of good stuff today.