I’ve been dealing with spams and pains for several years at my arms, neck and back, pains got worst and more constant. With time pain moved to left leg and arm. After months of bunch of MRIs, blood test, xrays, and whole of bunch of testing to rule out something else, I was diagnose with fibromyalgia. Today I’m just wanting to get my understanding of the condition straight so I don’t go crazy.
It seems like every week something new hurts, or a new tingle or sensation of numbness come about. Basically the question is…how to know if my new pain is fibro or something else!! Too much too say…too much in the head, just can’t put it all together…still trying to figure out things!! Hope is not confusing!!
Welcome to this group. It is a great place to come to get info, advice, understanding or to vent! This is a safe place and no one will judge you. What you are describing sounds like a pretty normal week with Fibro. I am not trying to burst your bubble but just being honest. I hurt in different places all the time. Some nights I sleep like a rock and other nights I don't sleep a wink. One thing I have learned is there no rhyme or reason to fibromyalgia. Please keep coming back to this group on your good days and the bad days. Please keep us posted on how you are doing. We do truly care about how you are doing.
Welcome Jess,
I am sorry to hear you are suffering, fibro does appear at first like an untamable animal, but after some time when you learn more about it and how it affects you there are some patterns you will see making it at least more familiar and bit more manageable. Jackie is right, that there is little rhyme or reason with this disease sometimes, but honestly with a bit of time and understanding you will feel less lost. Many people are able to use a combo of techniques and prescribed medications that help them balance out their pain and other bothersome symptoms. Check out our site, there is so much info here that you might find useful. I send you hugs and let you know you are not alone as you try and get a handle on this disease.
Thanks for all the support! It is kind of frustrating when you can’t’ figure what is and what isn’t . At times I feel mad with myself because I don’t want to “feel this way”, yet have no control over it and all the discomfort and pain is real.
When you get spasms, sometimes the best thing to do is put pressure through that extremity for 5 to 10 minutes. It will calm down your muscles and decrease your pain. The more weight from your body the better. Do not add weights, just add your own body weight through it. I am an Occupational Therapist and I have used this technique myself and it has worked well for my pain relief and spasm control. Good luck.
Hello! So I bring this post up because I have a question.
How do you all deal with new pains that come about? I’m learning to live with this, but any coping tip is welcome. Thanks in advance!!
Yes, Fibro is certainly unpredictable. It can be really hard to deal with changing / new pains that come. For me, I focus hard on keeping stress down, I do a lot of deep breathing and visualization, and I try to keep a positive attitude as much as possible. Sometimes if I think of the new symptom with humor, it makes it easier for me to cope. It doesn't take it away but it helps me mentally. And yes, over the past 16 or so years, I have a lot of new things that have come up and it is very difficult at times. I always would make sure your doctor does know about new symptoms though just in case, sometimes other things can cause symptoms we think are Fibro. Hugs.
Hello!! Thank you so much for your reply and comments. I guess not knowing what’s fibro and what it is, seems to be a struggle right now. Is like I don’t want tomgo to the dr. a new ache or pain comes about. So fustrating!! I guess 3 months after my Dx I still have loooooots to learn and get use to.
What helps when I am in pain is to try too look at the good things in life and even tho that isn't easy I know I can come here and vent out or talk thinks out because everyone here is very supportive .I also have my dogs that help me coupe and my kids that seem to be able to pull me up when I'm down...other than that I have my pain meds that I try to use when it gets too bad....Trying to stay a bit active even when it seems impossible also helps even if its just around the house...Hope ur doing better today and I'm excited to see u posting :)..Lots of hugs Wings
Welcome to our community. I am sorry to hear you are having alot of pain.
I do as much as I can to keep my stress down.
I have found that stress is my worst enemy.
I try to relax, come here for support, get good quality sleep, eat right, say no without guilt when I am not able to help and do my best to walk on the bright side. I have found these things to help me the most.
As for knowing if a new pain is Fibro or not, if it’s new, I always try and go to have myself checked out by my doctor especially if the pain is troubling.
Welcome again, Jess, and please know you always have us here for support!
Thank you sommuch… I love that pic! For me is more like a 12 y/o that doesn’t want to get up and just lay, very heavily, and my neck and shoulders. Lol
I admit I haven’t done to good on the excerse part, need to get my activity going. Thanks firmthe support.
Thanks for your tips. Stress does has a way to triggering some of our pains. Besides this site, I have a small support group that I go and share my fibro stuff with. People don’t seem to know much about it, but education is part of our conversations.
I saw my reuma last week and will see chiropractic next Monday, he seems to be more willing to look into deeper. Thanks for the support!!!
