Warm welcome

Thank you to those who gave me such a warm welcome to the group.

I have not been diagnosed with fibromyalgia. I have, on the other hand, been living in pain for four years and no doctor has been able to diagnose or help me. I was doing more research last night and exploring fibromyalgia as a potential explanation. It seems that my pain is too localized for this to be the leading cause, but then there are other similarities that are too on target to ignore.

I have nerve and muscle pain in my hand, wrist, arm, shoulder and neck. It is exacerbated by essentially everything I do! I have been through countless physical therapy, seen many doctors, had a half a dozen MRIs, x-rays and nerve conduction tests, seen a chiropractor etc. I have found very few things that help make me comfortable. (massage, pain killers, ice and heat being the few, I take a high dose of cymbalta but I am not sure it really helps). I am seeing a new specialist in a few weeks and of course I am getting my hopes up. I sort of took a doctor "break" after seeing several this summer and being told to my face that I was drug seeking and that there was nothing they could do to help me. RANT! I should probably not get too excited.

I am 30 with 2 kids, ages 2 and 4. I am in grad school for library science. Typing and texting are two of the activities that are most irritating, but I have to type for school. If I am quiet on the board it is because I am saving my arm for my papers! I think my appearance as a healthy young active mother has caused some of these doctors to dismiss me, which is awful. Not to mention, no test ever shows a single thing wrong.

My husband is very supportive, but I also know he really has no idea what this is like. I am so frustrated and sad. I really HATE this and I want so terribly to feel better and not live life in pain.

That is my basic story. I would appreciate any tips on how to go into this next doctor and get the most out of it...and be taken seriously. Thanks for welcoming me even if I may or may not have Fibro!

Whether you have fibro or not you have problems with pain and that is more than enough for us to welcome you to livingwithfibro so welcome. If you have anything I can help with I will do what I can to help x

Hey, so I see that you decided to make it 'Lizard'! That will surely seperate you from all the other gals named Liz! Ha!

I did find out that I have mild CT, and was fortunate enough to find out there is no muscle damage or wastage from my many autoimmune diseases through the nerve conduction tests.

I have noticed that there are now computer keyboards that are shaped like a tent, for people with CT or arthritis, and I have asked a few if they were of help, and they have told me that they really did help alleviate the pain of spending hours typing. So, just a thought!

It is all such a process, just don't give up! Glad you are with us!

Wishing you well,

SK