I have fibor and also have a disorder called Charot-Marie-tooth , cmt , for short , which is a neuromuscular disorder, the two together is hard because I dont know which one is giving me the problems sometimes...it makes things hard and not too many doctors know much about the cmt...anyone else have more than one problem?
Hi Juanita,
Oh yes, many of us do, I have 3 autoimmune diseases, many have spinal injuries or other things. There is one gal on here who suffers from Fibro as well as from CMT, I cannot recall who that is at the moment, as there are currently about 1400 members.
You can just click on anyone's photo and read their profile, or check out the groups to see that nearly all of us have multiple health issues.
I urge you all to complete your profile and keep it updated, that way if you ask a question, we have something to go on when attempting to answer.
My primary disease is Psoriatic arthritis, an autoimmune degenerative disease that is beyond what we think of as 'normal aging', Sjogrens and Raynaud's are the secondaries, it is difficult for me to always know what is bothering me too, Juanita! I do know that when my autoimmune are calm, so is my fibro.
I hope you can get some answers, and some relief!
Hugs,
SK
Hi Juanita and welcome to our site! We have a lot of nice people here who try to answer your questions to the best of their ability. It's a great place to come to learn or just to talk.
I myself do not have more than one illness at the present time, thankfully. I DID try to find some web hits of other people who had both CMT and Fibro, figuring that it might help you to know that there ARE others out there with both illnesses.
This is what I've found:
(Oops, I just accidentally deleted what I'd found~let me try again, siiiiigh:)
http://forums.psychcentral.com/archive/index.php/t-139374.html
http://www.justanswer.com/medical/5d1bx-muscular-dystrophy-charcot-...
http://www.cmtausa.org/index.php?option=com_content&view=articl...
http://74.6.238.254/search/srpcache?ei=UTF-8&p=I+have+charcot-m...
(go to MsBear to see CMT and Fibro)
http://74.6.238.254/search/srpcache?ei=UTF-8&p=I+have+charcot-m...
http://74.6.238.254/search/srpcache?ei=UTF-8&p=I+have+charcot-m...
http://www.medhelp.org/posts/Fibromyalgia/How-Many-of-You-Have-Othe...
Other sites:
http://www.nationlaw.com/social-security-disability-for-claimants-u...
(helpful if you're under 50 and applying for SSDI. Keep and show to your atty or if none then the judge)
http://www.cmtausa.org/index.php?option=com_community&view=grou...
(CMT discussion group)
http://www.sciencedaily.com/releases/2011/08/110802112831.htm
(science article about potentially successful therapy for CMT)