Need Ideas!

General
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So we’ve been calling the weekly news item that we send out “Weekly News Item”. Lacks a certain “something” dontchathink? LOL People get so much mail and junk in their email inboxes these days, we need something to stand out . Some discards from the Ben’s Friends trash can –

Hoofbeats (referencing the old zebras and horses thing) – our editor-in-chief pointed out that there are several equestrian organizations which use that one

Stripes – won’t say whose idea that was, but it’s just plain weird!

News from Ben’s Friends – yawn , just big yawn .

A clever wordsmith friend of ours suggested Zebra Gnus . ROFL, how clever is that, but I think that one’s going to get old really soon.

Seriously, we need a new name! Friends. Connections. News. Community. Togetherness. Put your creative caps on … what can you come up with?

Seriously, folks, we need a new name!
Friends.
Connections.
News.
Community.
Togetherness.
Support.

Put your creative caps on … what can you come up with?

Just reply to this post with your BEST suggestion!

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Fibromyalgia No More!

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Welcome here, GoLightly! And thanks for the great name, Debstinydogs! Great suggestions for a fibro newsletter. Only problem is, the newsletter goes out to all Ben’s Friends communities (that’s, like 60,000 members, with 40+ different rare diseases). Fog lights might have wider application though … (puts thinking cap on).

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Oh dear, how self-centered of me to just think about fibromyagia! Let’s blame it on the fact that I’m a newbie. I feel like I owe you some new suggestions or my karma won’t balance.

OK. Thinking cap on. Not sure this one works, but how about “Far and few between”. Because we are few and highly scattered … but your newsletter brings us together.

Yuck. OK, this is harder than I thought.

What about “The Follow-up”. We’ve all had to book those appointments, but your newsletter would probably give us more information that those damned follow-up appointments ever do!

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since it covers lots of diseases, how about Rare Suggestions and Support