Hello, I was diagnosed w Central Sensitization Syndrome/ Fibromyalgia, after three long years.
Because my pain is all nerve pain, and not muscle pain- as most people w fibromyalgia, the doctors thought I was in need of a psychiatrist. It wasn't til almost two years into this horrible pain that one neurologist figured it out. Studies are showing that many people w fibromyalgia are experiencing severe nerve pain.
I just want to know if anyone out there has severe nerve pain? My hands, arms, legs, feet and face are affected.
Back several years ago it was called RSD, then they changed it to CRPS. Now they are saying it is a form of FM. What my doctor told me is that the more names they give it the less the know about it.
The specialist I saw way back then said that she really believed that they were related very closely because everybody that she had seen,, when she did the trigger point tests on them showed a high possibility of FM.
I know that it is extremely painful. I pray you are able to get some relief.
thank you for your prayers. I am only 52 years old. My children are out of the house (one in college, and the other w children), and I thought my 'Golden Years" would be wonderful. Now this...
My chiropractor thought the same: RSD, but I have neuropathy on both feet, and I am not diabetic, and all symptoms relate to Small Fiber Neuropathy; however, a biopsy was done on my legs to reveal if there was any damage to my nerve endings and all was clear. So, now the neurologists are say, Fibro Neuralgia. Lucky me...
It' s hard but I swallow pills all day so I can function and mostly, walk.
Actually Barber Girl, I was just flashing by and saw this thread. A good psychiatrist isn't a bad idea when dealing with this type of pain. I'm not talking talk therapy its in your head stuff but rather the newer psychiatric specialty better know now as a psychopharmacologist. The difficulty with the medicines used to treat nerve pain (usually some variant of a anticonvulsant/anti-seizure med) don't always play well with others. Add in the antidepressant most take now (and should) and things can get really strange. A really good neurologist may on top of it, but the psychiatrist has the training. Its a specialty we should use more often.