New to Support Group

Hi Jen,
I too have Fibromyalgia and chronic fatigue I know how much it sucks. After taking Lyrica and cymbalta for a long time I switched to Savella. I like it so far. I also take something called LDN low dose Naltrexone. It’s a new treatment for fibro. Naltrexone is a med they give to get people off of opiates but in very low doses it seems to help with the fibro pain. You should look into it. And if your thinking of applying for disability know that they always deny you the first time, you have to keep trying. When I was trying to get disability someone told me about a company called Allsup. They do all the paperwork for you and really work to get you what you need. There is no charge only if you get back pay they take a percentage. But the way I looked at it was if I could get it at all I would be willing to give them a percentage of anything owed to me. I’ve been on disability for 10 yrs now. I am in so much pain and my short term memory is pretty bad. I need to write stuff down or I forget. My husband has been very supportive which helps so much. Right now I’m dealing with something called pusatile tinnitus in my right ear. It’s sounds like I can hear my heart beat from the inside. I finally got an ear doctor who recommended a TMJ specialist and I have been wearing a mouthguard 24/7 for the past 2 months. It’s finally quieted down some. Thank goodness. I also go to the gym every morning and workout. That is very important. You have to keep moving even though it may hurt. It will hurt worse if you don’t exercise. Start out slow and keep at it. I hope I have helped you in some way. Gentle hugs!!

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