Hi my name is colleen i am new to the group, i was diagnosed with fibromyalgia in 2013 prior to my diagnoses life was a nightmare i had pain all over and burning so bad i would scratch i left marks down my legs...I went to my doctor's numerous times he never had a answer for anything going on. A year later i had moved back to my city and had pain all over and memory loss by my surprise first time seeing this new doctor she new right away i had fibro she did lots of tests to rule things out and it was fibro, i felt upset but happy to no at least i new what all the pain was i think just having pain in all different spots was hard to figure out because of the situation i was in when it was happening, i had both my parents living with me because the both have demensia so i was taking care of them alone in such a stressful situation for years, when i moved back to ontario my body got to relax no more stress that's when my body started hurting everywhere and things got worse, over the 2 years i have been put on all different med's and nothing has helped yet, as of yesterday the doctor put me on morphine patches for the pain it's unbearable cannot do dishes. vacuuming etc hard to do anything, but then again i have both my parents back to take care of and it's so hard so the stress is back..i guess i need to sit down and figure things out for me to get better the only thing that sucks is i am to caring and have a big heart and take care of everyone and their problems before mine big down fall, if anyone has any suggestions to help me please let me no thanks,
Oh and forgot to mention all the other health issues i am dealing with IBS, PTSD, digestive problems, fibro fog, deteriorating knee, depression, anxiety etc but i would guess alot of ppl with fibromyalgia may have many of these symptoms also just wish there was away to get rid of some this problems
Hi Hun im pretty new to the group too… Have you tried lyrica/pregabalin I was really suffering so had my meds changed to that and I am doing a lot better xx
Hi Jodie i have tried those also muscle relaxers, pain medication i think i tried pretty well everything i don't like to take medication at all so having to take the pain patch hope it will ease the pain some most days i can barely move
Jodie Burnett said:
Hi Hun im pretty new to the group too... Have you tried lyrica/pregabalin I was really suffering so had my meds changed to that and I am doing a lot better xx
Oooh Coleen my heart goes out to you. What a lot to contend with. You are right about the other health issues we all deal with - why!!! As if the Fibro is not enough. On a positive note, this is a great place to find out how others with this condition manage to lead productive , happy lives. I think one thing is, you have to accept this is the 'new normal', and move on from there. It is like a grieving process in a way, there are stages to go through until acceptance. we can certainly help you here. I wish you well, and please let us know how you are doing.
Take care, Anne
Thank you for your reply it is quit hard but i think you are right i have just excepted this yet i find it so hard to believe that it's possible to live with this pain on a daily basis i have maybe 1 or 2 good day's a week and that's it and those good day's are still painful the sad thing is it causes more depression fighting the pain daily i can't even imagine how people have dealt with this for years so crazy i guess i will have to figure it out thank god for this site it's nice to no i wasn't going crazy and there are other's that go threw the same
hi colleen
HUGGGGGGGGGGGGGGGs
suzie
Colleen I have had fibro for 28 years. I have took care of foster children, my grandmother with colon cancer who wanted to die at home and a mother-in-law who was very bossy. When I lost my grandmother, they carried me to the hospital and my Dr was so mad. He ask my husband how could he have let me get in this situation. He didn't I did. I felt like taking care of the woman that raised me and was my rock needed me every minute. I took no time for myself. I almost didn't get to attend the funeral. My Dr kept me knocked out for at least 2 days. I was also looking after my Aunt who had been run over by a tractor and I did not know if she was going to live or die. I worked at the hospital so you can imagine seeing her many times a day in ICU, not knowing what is next. I got through all of this to raise 2 children and then help with 5 grandchildren putting my pain to the side to do for others. Finally one day my daughter pulled into our driveway with good news until she saw me walking. The good news was that her 4 year old twin no longer had rheumatoid arthritis. He got up and went to school without pain and they didn't have to put him into a tub of hot water. My legs told on me you might say from the pain I was in. My daughter ask me "Mom what have you done?" When I ask her what she meant, she told me I knew. You see, for years I have been able to take others pain. I took my grandsons to keep a 4 year old from not being able to walk. She swears that is why I have fibro, I have taken others pain too much. Colleen, you need to find the best way to deal with this. And taking care of others is not the right way. I know you love your parents. But if you do not start putting yourself first you will never get better. I don't mean it will all go away. I mean feel at least like your body is not attack constantly. Get some support to help with your parents. Give yourself the rest and time you need for yourself. I am 65, I have learned how to withstand it until it gets so bad I say this is enough. Tell the Dr the patches are not working. God watch over you and give you peace.
I am 71 and had fibro 40 years... stress makes it so bad. I worked full time and raised my 2 girls after my divorce. my oldest died at 33. I have always been a caretaker - for animals too - it is hard to sleep or garden or anything. I tried several meds with bad side effects. - I get very little sleep. I now realize I have to take care of myself - nap, drive out to the country... cry when I cant stand the pain. I do most of my "work" when my codeine kicks in. try hard to find a less stressful living situation.