My name is Melissa and I am 29. I have a 7 year old daughter and a husband. I just got my diagnosis a few weeks ago. I am angry, scared, depressed, in denial, and in mourning all at once.
I have been in pain for over a year. It started in the joint of my big toe. Then my lower back. Then my upper back. The my right hip. Then my wrist. Then headaches. Then severe headaches. Then my skin hurt. Then my muscles. Then the night sweats and the fatigue. And weight gain. And now, here I am.
For the record, my joints are fine. They have been xrayed, and I have had ultrasounds. Now for mris except insurance says no, so there’s that.
I am on gabapentin for now. 300mg a day. I have to find a psychiatrist who will wean me from my current psychotropic medication and start me on Cymbalta but that has been easier said than done.
Sorry for the morose and angsty tone but that’s just where I am right now.
Hi melissa so sorrry that you have been diagnosed with fibro.i was diagnosed a few years ago and it started when i was 15 and it was mild then went to moderate as i got older and now its severe and im 28 no kids or husband.It is hard to deal with i was in denial and morose too at the start.
I also have M.E/cfs and rheumatoid arthritis also have spondyloysis and pernicious anaemia .Im on 600mg of gabapentin and it doesnt help me.Im also on plaquenil400mg palexia 100mg a day valium 15mg a day and codipar 15/500mg 2 pills 3 times a day.I do hope cymbalta helps you and you do not develop the stuff i have.I have really bad luck it seems.
I was told a week ago that ive had all this since i was 15 years old.I was called a hypochondriac by drs and my family and it was horrid not knowing why i was in pain but i know now that it was fibro and arthritis.
At least you have an answer for the pain.Heast helpsi have an electrical heating pad and its wonderful.I also have a heated blanket that is wonderful too they both help with the pain.Just some suggestions.Oh and epsom salt baths are meant to help as well although i havent tried them myself.There is also wheatbags/heating pads you mircrowave and put on the area that is sore.I hope my story and suggestions have helped you in some way.
So sorry to hear about your current health issues. I have been dealing with Fibromyalgia now for several years and we all have an array of symptoms. It’s great having others on this site to chat with about your journey. Please don’t give up on yourself, it takes a while to find the right doctors to help you and if you don’t find a doctor right away, keep searching. Not only do you need a doctor who understands your condition, but has the latest information on how to assist you. My experience was finally finding a new Rhemotologist that was right out of school and well versed in the condition. Also, finding a therapist who has dealt with folks with the condition. On top of all that the journey of finding the right combination of meds that work for you. I tired many different medications and took a while to find out what works best for me. Just as you will, but remember it will take time. I personally do not feel there is anything to take the pain away totally, but gets you in a place where you can continue living your life. My experience led me to attending the local YMCA for water therapy which I found helpful. The worse thing I found is to just sit, I force myself to be on a schedule even on my bad days and keep moving. At first I vegged on the Lazy Boy, gained weight and felt like crap. After forcing myself to move, I found I could survive this condition. You need to get up each morning and no matter what tell yourself I can do this. I have a poster on my mirror that has a big smiley face on it with inspirational words written around it. You could put things like" my husband loves me" I am grateful for _ _ _ " and so on.
I also put together a nice photo type book with things that I value like people I love, people who love me, some of my accomplishments and so on. On really crappy days I use it to get me feeling better. Even though we know this is not mental, I have always believed that our mi d is very powerful and force myself to be positive. I wish you the very best in your journey and I feel confident you will work through things to get yourself in a good place.
Ron
I’m sorry to hear this. I have had fm for 5 years now. I also have kids, 5 yo twins, an almost 3 yo, and a 15 week old. It is really hard to have fm and kids. They have to be so careful around me when i have a flare up bc the smallest touch will send me to tears.
I have no advice for you since most days i feel like i can’t go on, but i just think of my kids and husband and repeat over and over that i can do this, even if i dont believe it, lol.