I am living with fibro now, have posted here before but it has me not dealing well each day. I am in pain almost all the time, I cannot even climb my stairs (10) doing laundry, changing sheets. I end up hurting pretty bad just doing that. So this week I have cried almost every day. I sat in the sun getting some Vit D hoping it would do me good, I ended up crying outside. I am so depressed and the meds have been changed, I feel worse for now, the meds are new so not yet in my system enough. I truly want to work, I am a nurse and loved my profession, having the love for work and nursing has been a strain on my decision not to work any longer due to mentally and physical issues. No way am I okay to work. I have also been diagnosed with Chronic Fatigue Syndrome, Seasonal Affective Disorder, Borderline Personality so yeah I have some issues. I feel so alone, I did have suicidal tendancies not long ago but am trying not to go there again. On top of everything, my husband lost his job until recent and I can’t work but have filed disability, with waiting period. We are so far in debt and behind. I know this is for fibromyalgia but I need to vent to you guys. I feel so lost, alone and mentally unstable. Someone please help me get thru this.
You’re never alone. We all understand the need to vent sometimes. It’s hard to see a light at the end of the tunnel when everything seems to go wrong at once. Don’t give up on yourself, you’ll find a way through!
HI, Sending hugs your way. I know this disease can be so menatllay and physically challenging, but i beg you dont give up. You are not alone. I have been mentally weak a lot of times and we all go through the struggle, some more than others. All i ask of you is to pray. Whatever religion you are, put your worries, stress and pain in your almighty and this to shall pass. Please fel free to reach out to me if you need a shoulder and an ear.
I also suffer with mental health issues, bi-polar, sad, and gad. Been there were you are and I agree with bernardrocke, pray and give it to a power greater than yourself. It is all that I can do at times is to say the simplest of prayers “HELP”. The help always comes through eventually. I have not been suicidal for years now and the prayers have been my solution to that.
I am on disability but also work part-time. I can not handle full time work. In fact it took year of working through my disabilities before I could work part-time. I am afraid to loose my job because of fibro. That is my vent.
Oh I wish I could give you a hug and he’ll you out. You need to tell your Dr about the pai. every day until you get some relief I have found it took over a year from my doctor to finally diagnose me and still the pain is there I’m on Lyrica it doesn’t seem to do any good . I have been taking antidepressants for 30 years so I know that they often don’t do any good . I just left come on the site and read it and see if you guys are out there caring .
The waiting on the disability is very very difficult . Hang in there it will get better when you get the disability . I didn’t receive any backpay but some people do so maybe that will help . I’m saying a prayer for you and your husband and your family I know that everyday is a struggle I hope that you find some peace of mind and some relief soon. Please keep telling your doctor I think this is a disease where you have to be so vocal y
Hi I do voice to text so I want to say this quick before my husband gets all day every day I concentrate on not looking like an invalid not complaining . I will do anything anybody tells me to do but if they would just leave me alone I can’t stand the talking! Why is everybody have to talk to people ? The minute I have to start figuring out what they’re saying trying to get me how to respond correctly , then my neck my shoulders everything starts going up on fire that’s all I have to say. I am just so so appreciative of having a safe place to say whatever I need to say to people who understand and people who care . I in return care so much about all of them it’s like where warriors almost, fighting an invisible battle.
Hi rschulstadt! You are not alone. I was diagnosed in March and I feel just like you. Miserable pain and I had bouts of depression when I was on Lyrica. Make sure to tell your doc that you’re feeling this way. My doc had me stop the Lyrica immediately when I told him about the depression. Though chronic pain can cause depression on its own, it also could be related to the meds you take, so make sure to report it. Sending big hugs and praying that you will find the light at the end of the tunnel very soon! 
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Please love just hang in there. I say to my daughter when she is having a bad day, just breathe you only have to get through the next minute, the next five minutes. Keep telling yourself I have got this, I can do this, I am strong! There is a technique that may help, imagine in your mind that you are squeezing the pain down into a tiny little box & are not going to let it escape. I have to do this regularly the mind is a powerful tool & can get one through.
I use all these suggestions when my daughter is at her worst. She has had days like yours. Fibro is a monster but keep telling yourself I have got this I can do it !
I am so sorry about your work also the loss of your husband job. If I could I would give you a gentle hug, as I know when my daughter is bad I can’t even hold her tight. Don’t worry about all the disorders, they are just names, just keep breathing and tell yourself I am beautiful & I will get through this you are a special lady. Sending healing thoughts your way xx MumD
I too have had fibro for years, thankfully I am still able to work and mentally feel well. I recently started cognitive behavior therapy with a pain psychologist and he’s been amazing. Of course it doesn’t change the pain in any way but it allows you to think about it differently and rather than fighting against it and trying to fix it, I’m learning to accept it and make it part of my life. I have tried for so long to fix it and deny it, which only made it worse. Please look into this therapy. It has really helped me to think differently about chronic pain. Stay strong and do speak with your doctor about your mental health struggles. You clearly need some extra help. Take care.
somehow “we” have to do our best to get through one more day. I have had fibro for 38 years. at first able to work full time, but now retired and dream of a part time job, but just cannot do it. I also cry. Mostly when I try to get out of bed in the morning and then at night when I know i wont sleep well. i feel better on a hot summer day but meds just do not work for me. I don’t know how to help you except that we here all understand. People generally think I look ok, or feel irritated when i say I can’t go with you to the ball game or travel to the mountains, or… they just do not understand our pain. So hang in there, come here often and know you need to keep moving. even walking around the house or going outside to breathe fresh air is moving in OUR lives. stop beating yourself up, this disease is not your fault.
After reading all of the kind and helpful responses to your post, I wanted to add my own because we have so much in common. I was diagnosed with fibromyalgia almost 2 years ago even though I know I’ve had it for at least 20. It is progressing to a point I was hoping to never reach. I too am in pain all day every day now. I go to a pain management specialist and that helps but the meds are not always enough to ease my pain all day long. I have been under a psychiatrist care for the last 25 years and my diagnoses are exactly what you listed. I have been taught and am still learning how to use cognitive therapy to help me with all of my conditions. Please find more out about it. I just had my antidepressant changed and it took about two weeks for it to help. But I am not crying every day now and can at least try to get things done. I deal with the fatigue and pain by accepting that I cannot keep up with everyone else. They don’t understand and criticize me for it. Those people are not your friends. I have learned to pace myself each day. I also go to individual therapy which helps me a lot. Many people encouraged you to pray and if you are a praying person by all means do that. I am not so I have dealt with all of my physical and mental health problems in other ways. Cognitive therapy, pacing myself, and making sure that I keep my psychiatric and other appointments. My psychiatrist recommended a book called Living theFull Castrophe Life, which helped me practice cognitive therapy techniques. It has helped me deal with my severe bipolar depression episodes, and my other issues. Sorry this was so long. I hope it helps you in some way. My heart goes out to you.
I want to personally thank you for reaching out to me. It is awesome to be able to talk to those that have the same issue. My husband understands, but isn’t living it. Thank you again. Hugs…
I want to say something to all of you that have reached out to me. A big thank you for listening. I needed to vent and actually I needed a hug shoulder to cry on. When I feel this way which is often I try so hard to think about those less fortunate to remember this may not be so bad. It is just hard. With so many other stressful issues here at home regarding money I find depression has gotten much worse. I cry at the drop of a hat, my Psych. has changed my meds and I hope to be feeling better soon. My therapist even called me to tell me to get outside and enjoy the sun, it was cool but the sun was out. She moved my appt. up since she knows I am not okay. I again want to thank all of you. I have no girl friends and I need someone that I can talk to. I really have reclused over 2 year period and hope not to go back. I pray along daily and know the pain will be there, I try to make the best of it.
I am here too for anyone needing a hand, an ear, to vent. I love helping others, in fact, I would rather help and listen to someone else than help myself. I guess that is why I got into nursing, my longtime dream of a career that no longer exists for today. Love you all! Many hugs !!!
By the way, does anyone on here live in Tennessee? It would be great to find a friend to hang with in this region. I’m near the Smoky Mountains…
Thank you so much for the reply. I really needed to see this today, it gave me a huge reason to smile when I am often forgetting to. I’m glad I could help in some small way. This community has been a real sanity saver for me! Hugs to you too.
Hello everyone. I have been online for a few months but I have not contributed. This is my first note. Each post I read is like I have wrote it myself. I was diagnosed with RA in 2014 and Fibro in 2016. This week I am so sick of doctors I could just scream. I have been trying to change doctors since I have applied for disability (hearing 2020) and I have no insurance. I go in and the first thing they want to do is take away my pain meds and reduce my cymbalta. I was first given cymbalta for fibro but have come to depend on it for depression. So doc never mind that you are totally screwing up my life in the 30 minutes that you are talking with me. I have only been fighting this battle for 3 years now, it is so difficult. It is so hard to get someone to listen and understand, family, friends, doctors, employers, etc. I praise each and everyone of you that have been going through this for much much longer than me.
PinkCat, I am so sorry you have been going thru this. I too have gone thru the same issues but not as severe and I am not able to do anything but give you an ear for listening, a place to vent and a big hug. I know you feel you are at the end of your rope, but hang on. I have struggled with chronic depression thru this and yet to receive disability. It is very hard on most days, I see a shrink and therapist now, which is awesome. Although I never wanted to see one, I am grateful I landed there, wanting to take my life after all this pain and depression. But I did not and I understand how frustrated you are. I am a nurse so I hear doctors doing crazy things. I can no longer work, but I have seen doctors screw with people. Stand up if you feel your doctor is not doing what is in your best interest. The one thing is you can ask as many questions as you need to with your doctor to understand the changes. I also am pissed about the pain meds being taken away, this is not the doctors fault, the government is on a mission to take those meds away due to opoid addiction across the nation. That puts us in the mix, and I am pissed to be in that mix. I get your pain there, I am too fighting that. We as people that need these meds need to write our government which I am doing by the way. Stand up!!! If we do not, then we have no voice. I even vented on facebook regarding this. My therapist is now dealing with me being so angry that I have started doing crazy things, I think of what I have done is quite funny, but its not so funny with my therapist. I love therapy, it gets me thru from week to week. Maybe you should go to one. I don’t pay for one. I go to a place that is based on income, and I have none. So go to a place and get help. It does help and we here on this site can listen. You can vent here too. I so get your issue and I have screamed so many times. I have been so upset anxiety took over and I was like a balloon getting ready to bust. Stay focused and stay here. It will get some frustrations out to be able to vent here. If nothing else, I am here! I get your issue. I am a nurse unable to work, and I struggled to get my lic in the first place, so yes, I am angry and hurt that I can no longer work, I cry daily. I loved working and my career goal was to become a nurse, and now this. So yeah, I am angry too but I am dealing with it as best as I can. I pray for you and you know I am here!!! Scream all you want on here…I get it…
Jess111, thank you. Your words are kind and I need a big hug and a place I can talk. I cry daily and I need help. I see a therapist. Thank goodness, or else I don’t know where I would be. I truly am blessed to find love on this site. hugs back…
Thank you all for listening to me. I cry daily with the thought of never being able to work again. For the love of nursing and the struggle to get my career, my love of wanting to become a nurse, the love of being a nurse, my career goal I am now not able to work due to fibromyalgia. My nursing career was hard to get started, I have a horrible background, although that is over and I am not a truly bad person, I made some really bad choices in my 20’s and 30’s. I paid for it for many years and fought to get my nursing license and the state also saw that I made bad choices, that I did not hurt anyone, just was in the wrong places and could not get out. Abuse is horrible and I stayed. Abuse to myself and infliction is horrible and very hard to get out. But I did and fought my way to nursing school. So fighting this hard and hearing my instructors tell me that I will not get my license even after taking my classes., I did not back down, so I did continue my journey on to get my license. I did graduate, I did with the states approval get my license as a nurse, LPN. I was so proud, I fought it and won. So yes, I struggled there, my career goal and my love for nursing I won. I worked, I loved working, I worked many hours over because of love to nurse, then I started getting sick, finally with getting mono and additional tests, more doctors, I was finally diagnosed with fibromyalgia. So here I am, feeling as if I am being punished by God for my shortcomings in life. I at times want to fall over the edge. I feel like I am at the bottom of a hole with no way to get out. This is is horrible feeling, yet I am positive to others on here. It is my way of giving to others. For nursing is a way of giving, so yes, I am here and wanting to help others. But I say this, I need so much love from all of you to keep me from digging my hole and jumping in. On gloomy days things are worse and yes, my therapist believes I have seasonal affective disorder. So here in TN having alot of sunny days this time of year is really not an option. I wish I could just fly to a sunny location and stay for even a few days. I need the sun, I need to feel free again. Thank you all for your ear, your shoulders when I cry. Love you all!