Personality and Fibromyalgia

I am interested in finding out how closely the community here, align with the following symptoms…

21 Personality Characteristics often associated with Fibromyalgia:

Has a low self-esteem
Is a perfectionist
Has high expectations of one’s self
Wants to be good and/or be liked
Feels dependent on others
Is conscientious
Has strong feelings of obligation
Pleases others to try to gain favour or avoids others to avoid getting hurt
Tries hard
Is hard on one’s self; self-critical
Is overly responsible
Has difficulty making decisions
Follows rules strictly
Has difficulty letting go
Feels cautious, shy, or reserved
Tends to hold thoughts and feelings in
Tends to harbor rage or resentment
Doesn’t stand up for one’s self or express own true feelings
Doesn’t take care of one’s self; neglects own needs; self sacrifices
Doesn’t stand up for one’s own needs
Puts one’s self last

(Based mostly on: Schubiner. H., Unlearn Your Pain, 2022 p.g. 83)

I would love to hear some feedback. I scored 14/21

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I’ve waited a bit in case someone else wants to come in on this before me.

So: one problem with this is many of us are so used to having been psychologised or “gaslighted” and pigeon-holed that there’s only a thin line from that to such personality categorisation and then to “it’s you” and then “you’re fault”. Praps even such experiences needn’t have been made. Plus - supposing this were backed by studies - people with such traits would be quick to cross such a thin line themselves.

And of course, association is no proof of causation.

Secondly, attributing by character traits has a similarity to other kinds of categorisation / pigeon-holing, like enneagram or even zodiac/astrology: Tell me I might be all these and if I look hard enough I’ll find it. Some people with fibromyalgia say they have an A-type personality and that that is associated with fibro. What A-type personality entails has (like the zodiac) changed throughout the decades since it was thought up by a pair of cardiologists to describe choleric people in their offices that easily heat up. It’s not a generally accepted or used personality theory.

Thirdly, quite a few studies and meta-reviews have been done on fibromyalgia, saying that personality may be a filter of a kind, but they say there is no fibromyalgia personality. Meaning that too many people have a different personality and that these traits are also common in people without fibro.

Fourthly, PTSD is often associated with fibro. There also studies vary how closely, and how it may be involved in causing it. This indeed would be one possibility of a cause of both the “personality” traits and fibro.

So - there are 100s of treatments we can try, and doing something about our mental state is a good idea, be it cause or definitely a possible effect of fibro or just something that we need working as well as possible, to not add to the whole thing. Especially if it strikes a chord that these traits are something to work on. Some things can be worked on, some of them are useful, and some just need to be accepted… Having such traits can help us work on them.

There are quite some threads on this topic here.

Hi @JayCS , I want to thank you for your gracious reply.

I certainly don’t want to cause offence here, and I am sorry if I have offended yourself and/or anyone in the community here. I too have Fibromyalgia, and would have to be psychologising, gaslighting and/or pigeonholing myself (hence placing blame on myself), if that was my intent. Many of the characteristics in the personality list or the heart intent behind many of them, are admirable, and there are so many deeply loving and compassionate people who are affected by fibro. It’s sad.

I would have to say that your fourth point, well-and-truly fits me. The question is… does PTSD cause fibromyalgia and alterations on one’s personality traits? Or do certain personality traits plus PTSD, lead someone to being vulnerable to getting fibromyalgia? Somehow, I think it is more complex than all that. No matter what, fibro is no fault of any individual who has it.

I seem to have a low complexity fibromyalgia. I mostly don’t get localized pain. My pain is more generalized in the cells of my body; upper half, lower half or whole body pain. The fatigue and muscle weakness limits me in my daily life. When I get into a cycle of being fixated on the pain, it becomes so intense, and stays that way for a long time, because the pain is so difficult to ignore. I can clearly see how some of my conscientious characteristics can hinder my ability to reduce the pain. Getting stuck in that cycle can make it hard to get out.

Thanks for sharing your understandings.

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@sophiejo I scored 18/21

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OK, I’ll have a go, too:
Thinking back to when I could work etc. I’d say 11 plus 3 1/2 = 12.5.
Now with my main obligation being happiness and making the best of life: 4 (mainly “halves”). Which is funny. Which is truer to me?
And if someone else claims I’m higher: does that necessarily mean they’re right?
I have the feeling someone close with similar tendencies would tend to place me higher, whilst my psychologist would not.
I spose if each trait had a scale, I’d score 60-80% in most. So all of us are roughly right. Anyone who says they do really apply to me and those who say they don’t really.

However all these I’ve wanted to work on, to get them in balance. And that’s a great thing about this list. It’s about progressing, about tendencies, not seeing them carved in stone.
Thing is, many people say we can’t change. Of course not our whole personality, but we can adjust so much, some of us more than others.

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Hi @Mary_M ,

Lovely to meet you, and thanks for your reply. That is a high score. you must have a very kind and giving heart.

Just wondering… are you still in fibro. remission?

Have you personally noticed any connection between your personality traits and FM pain increase or decrease? Through your lengthy FMS journey, have you worked on curtailing some of your traits, to protect yourself more? Has this helped your fibro? :hibiscus:

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Hi @JayCS,

I love your 3 dimensionalizing of these traits. It is good to understand our traits as being there, but also able to be moderated to benefit both ourselves and others; to make them more functional and balanced. This helps our effectiveness of sustaining our authenticity, more able to be preserved and sustained.

Great response. :blush:

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Down to a 14 outta 18. I gave up a long time ago to try to make people like me. Would give all of myself to everyone ever expecting anything in return. Never stood up for myself and let docs and people push me around. That stopped and now I still overdo things but I take 1 day a week for myself to recharge. I also have a very loving supportive family by my side. My kids don’t have fibro but still aim to please everyone & never say no to one one. I’ve had to explain, being like that is fine but take care as others can take advantage of the kindness.

I’ve learned to control my fibro 80% with Faith, Savella, exercise, & cbd sometimes with a touch of thc. There is unfortunately not a cure or remission but learning what flares you. Never let anyone take away the power of your voice and what you know triggers you.

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@Sophie Jo
Thanks for contacting me. When I get back to my computer I will answer your letter. Cheers Mary M

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Lovely to hear from you, @CDFRANCE26 .

I have to remember that just because I can, doesn’t mean I should. It is easy to say, “Yes,” to doing something for others when you temporarily feel ok, without counting the cost. It can be difficult when everyone’s needs seem to be more important/urgent than my own to meet, especially when they don’t seem to have anyone else to help them. The problem is…neither do I have anyone to meet my own needs, except myself, and I go an vacate that position. Doesn’t make sense, but it is easy to do.

So glad you have a supportive family, @CDFRANCE26 , and that you have been able to gain good control over your fibro. I haven’ taken the medication route. I tried PEA (Palmitoylethanolamide), which works on the cannabinoid receptors in the body, but didn’t try for long enough. It has to be taken constantly and the cost would be too much for me to maintain.

Thanks for sharing. :blush:

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Hi @SophieJoe
No I’m not in remission. I have had fibro for 56 years and it has wrecked my life eg decision-making, pain except for all the 2 pregnacies of my children. Hormones stand out a lot to me! I get very frustrated, angry instead of dealing with the matter I keep it all in. Depression bites me occasionally but I move gradually out of it. I changed my antidepressant from Lexam to Cymbalta better for pain. It’s hard to say which one was the better. I blame myself and take it hard on myself when I make a mistake in my volunteer work. Others dont give a damn. Learning and concentrating was difficult at school. I have short-time memory loss which I assume is age (or brain fog). Yes I am an over-carer, huge empathy and too easy as I avoid conflict like the enemy so in relationships get taken for granted. I think I’ve ranted enough. Plus have had family abuse as
a young child. Then a hard time after that. FM is Extremely difficult psychologically and physically. Cheers Sophie

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SoohieJo you have a lovely soul and I pray you find some relief. Yes, I have been blessed to have a wonderful family, got them before the pain started.

I wish everyone can find relief and help as you and everyone deserves it. If you don’t mind me praying for you I will. Blessings to you!!

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Thanks for sharing, @Mary_M . My heart goes out to you. :two_hearts: I am pretty sure you know that there are a lot of great qualities that you have, and you display them in your life. Remember those qualities and stand tall in them. With lot of the other things you display which you don’t like, could be a result of abuse and mistreatment. It is good to remind yourself that ‘this is not who I am. This is just how I am showing up at the moment because of mistreatment.’ It takes time, but these things can be changed.

Some things I have learned…

You need to be your own best friend. Good best friends don’t tear their friend down. Good best friends give their friend the space they need when they are having a hard day. Good best friends understand that you are human, and with that comes making mistakes and forgetting things; they appreciate the differences and quirkiness in you, that makes you who you are. You need to be that for yourself. :hugs:

It is good to remember that if you don’t respect yourself, then there are others who see that, and think you are not worthy of respect, so they don’t respect you either. The truth is… you are worthy of respect! Your life has the same legitimacy to live here on earth as others, and you are as precious and valuable as every other person you know. These horrible messages you received from your childhood which contradict this, are lies. It is worth standing in these truths and protecting yourself. You are worth it. You don’t have to stay imprisoned in this disrespect cycle.

If you don’t protect yourself with boundaries, and stand up for yourself; stand up for justice (in the correct manner, of course), your body, in turn, will put its protective mechanisms in place. Are you doing too much for others? Your body will fatigue you, or fill your body with pain or cause pain in the weak points in your body. This will slow you down. But instead of having a restful time in that, you end up having a painful and frustrating time, because you left it to your brain to protect you. Your mind (your thinking) needs to take control by making right, protective choices which are followed through by the protective behaviours necessary for self-preservation. It is not selfishness. It is doing the right thing by you. Each person is responsible to protect themselves, and when we find that we can’t do it all alone, and/or others can’t do it alone, we help each other out.

A slightly different lesson, but similar, is…If you don’t look after yourself, no-one else will.

Boundaries are “loving others without losing the best of who you are.” Lysa Terkeurst. An example to display the opposite is…when we overextend ourselves, when helping others, we can become irritable and frustrated. We think we are hiding it well, but most the time we are not. Others can then internalize our responses, thinking that they are an irritation. Our help then becomes less loving than we hoped it would be, because we are not acting out of the best of ourselves.

And one more…We can’t give what we don’t have.

As I type all these up, I am “preaching to myself.” I still have my L plates on in all this. I hope something out of this helps you.

About your memory… if you have always had struggles, it could be your brain’s protective mechanism, as a result of abuse and trauma, to help you cope. I strongly believe this happened to me. I mostly remember what I essentially need to know for my day to day living. I have struggled for as long as I can remember, and am embarrassed about repeating conversations to the same person over and over, without realizing at the time. I have a lot of gaps in my knowledge for my age and feel very inadequate. We need to be patient with ourselves, and if others have a problem with our disability, that is their problem. We are doing the best we can with what we have.

Hang in there @Mary_M ! And remember that you are precious. :hugs:

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Thanks @CDFRANCE26 for your kind words and offer of prayer. I would appreciate prayer, and will reciprocate.

Blessings to you. :heart:

@sophiejo
There is just so many frustrations with FM as nobody truly will ever understand me unless they have it! I will dress up meticulously just to go to our local as similarly to a Restaurant. Painted nails and hair styled. I am an unusually happy, joking all the time because I love making people laugh. Done so since school still do. But it’s the ups and downs of life as it is which gets to me. For instance 2 days ago all happy, enthusiastic with my art. I am proud of the community things and volunteering and helping friends but I still get easily sad. It’s too deep to talk about. I believe FM should be opened up and understood more. Because most of us would be frustrated too. Exhausted. Thank you for reading my text. Cheers Mary

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Hi @Mary_M
Sometimes I think that having a physical disability instead of debilitating FMS would, in a way, be easier to cope with, as it is visible. Fibro is every bit as real, but so much harder for people to believe and to understand. It is not easy. Hang in there. May you find an understanding companion to walk with you in your life journey. :two_hearts:

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Hi Sophie your words gave me happy tears that you would care enough to text back. You are so right and people either don’t listen or think you are playing ‘the victim’. I have 2 very close friends who understand which is great but don’t want to bring them down especially at our age. So many many thanks again for your great words. I ALWAYS improve and be happy again. It just takes time. Cheers Mary

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:hugs:
Mary, have you ever wondered if one or both of your close friends would prefer to be in the position of deeply being able to support you and care for you, and they have no idea that you are holding back so much? There are people who see it as an honour and a privilege to be in that position. It would bless them to bless you. Just a thought…
Blessings. :hibiscus:

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Yes, I have two close friends. But one is too sick herself and the other has moved. But the latter is fantastic and when we can we exchange personal health and other issues. It’s my husband who gets sick of it and I don’t blame him. It’s hard but when we go away it seems much better all round and we go away a lot. I am grateful for your suggestions. X

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