Hi my name is Melissa ,I’am new to this group but I knew I had to find some type of group of people who understand me .My family an friends just don’t nderstand how I went from being on the go never stopping to some days can’t even get out of bed I feel it has taken my life
HI Mel, it's a long road with getting our loved ones to understand. Hopefully some of the information and wisdom that you acquire from our many members will give you new ideas on how to help them understand. We all have someone in our life who will probably just never get it, but hopefully even they will get a better idea.
You will hear from many people over the next few days who will help you in many ways. Most important is that you have a place to come to talk, vent, learn, and of course make lots of friends!
Wishing you well,
SK
You have found a place where we all understand what you are going through and hopefully can help you through this journey. Many of us have had FMS for years and some are newly diagnosed. Yvette are hundreds of discussions that helped me when I first found this site and its where I come daily - it feels like home. Your voice will be heard by many and know you will never be alone again.
Welcome, Melissa. We all can use another friend. Hugs to you - Sandi
Melissa, Welcome to the site. I was just Dx with Fibromyalgia myself, along with the Lupus Dx from 10 years ago. It takes a toll on you, and your family and friends. Remember that the disease is not you! You are not defined by the diagnosis. I recently read a post that directed me to a web-site called www.butyoudontlooksick.com. There was a story there called "The Spoon Theory." The author used this tale to explain chronic pain (ie. Lupus, Fibro, etc...) to her best friend. The story is amazing and really helped my son and my fiance understand what we go through every day. Sometimes it is the little things that get us most. Not being able to tie my shoes, one trp to the grocery store and I'm wiped out for the day. Take things slowly, pace yourself, and rest when your body tells you to.
Blessings to you,
Shelly
The spoon theory is a great tool in helping others understand, it also helps for us to accept the fact that we only have so many spoons!
Hi Mel,
We do understand how you feel , for sure the spoon theory is great, I printed many copies and when I can I read it to someone I love, it’s makes them smile because at the end you are sharing a spoon with them, and they appreciate your time so much more ! The other one I like is Love letter to normals by Claudia Merek, this one I think is more for a significant other, someone just posted recently that she e- mailed it to her husband and it was so helpful.
Adjusting, accepting … It’s all so much to take in ! Take one day at a time, you will learn your balance of what works for you, & what you can & can’t do, it’s a process that takes time
Don’t be to hard on your self, the more we stress over… " how can I possible feel this way" the harder we are on ourselves. ( in our mind ) I had to learn to turn it around into " I was able to do this today " but it takes time.
Your in the perfect place to gain a better understanding of what the heck is going on !!!
I’m so glad you introduced your self, that’s a great place to start !!
Hugs & blessings
dee
Welcome! As others have said you will find some comfort here. You will see yourself in the stories of others. And share things that help us understand our selves better. We do understand and we are here for you.