Hi Rosellas - not easy at all, if we seem to have not one starting point.
BTW - you seem to have coined a phrase, I can’t find it elsewhere on the web 
I think I’ll use it for a bit of gallow’s humour now and then… 
My first and only priority is then my body, my hobby too,
- finding best positions, what movements are possible, and doing them as much & varied as possible,
- putting legs & arms up as much as possible,
doing breathing, breath-holding, - trying all 6 types relaxation and things I learnt in CBT/therapy: positive affirmations etc., inner self-care.
- Then eating, drinking, fresh air (open windows), heat/cold, finding what is best for me, including cuddling in bed.
- Also checking my sleep (sleep lab?) and as Jse123 & Lmd say getting bloods checked etc. would be what I’d try to get organized.
- Hobbies: I must say I spent and still a lot of time getting myself/my body sorted out, when I was on sick leave it was my full time job and my hobby, and I enjoyed at last being able to accept looking after me, - but when I did have time & energy for more, I look/ed for exactly those hobbies that I can do, like listening to old music, looking for new etc.
I guess with ‘no spoons’ we vaguely mean “complete fatigue” and fatigue is again vague for about 8 different things I have (cf. What exactly do we mean by 'fatigue'?), which I pinpoint, analyze and treat… The spoon theory and It’s ending ‘no spoons’ are terms, or rather images, which helps us explain to others and ourselves that we have much less “capacity” than when we were healthy, but not one which is helpful to motivate us, keep our heads & heart & drive up. It is one which explains to us the negative present, which we do need to a certain extent, but it also holds us there, preserves the status quo and stops us finding ways of developing of getting out again… In the words of one good motivation/personality psychologist here, it is “state-oriented” rather than “action-oriented”…
State-oriented is good in as far as there is absolutely no hope, i.e. as regards that we’ll stay stuck with this illness. But as Jse123 says there is always the hope that we’ll come out of flares, it may take months, but there’ll always be slightly better moments and days, and it is possible to identify triggers and treatments etc. to make it “as good as it can be”…