About an hour and a half ago I was feeling so down, lonely, frustrated, and in pain. I was going to post my woes and talk about what a horrible week I have been having. I started typing up the first sentence and my brother called. We are very close and talk to each other numerous times during the week most of the time but both of us have been busy lately. We had a great conversation and I feel so much better than I did before we spoke.
So it brought the question to mind, what kind of support do you have and what do they do to help you feel better?
HI DLP - How wonderful that your brother and you are so close! You obviously get support from him and this is definitely what you need. I have the support of my family and some friends. I say 'some' because others were not patient with me and sadly, I had to cut them out of my life. What I DO have now is just fine with me. Of course I have support from this website as well - which I really appreciate. DLP, do you have friends that support you or are you finding this difficult? What about the rest of your family? I have noticed on this website that quite a few people are struggling with getting the support they need. It's not easy to find the few that will stay by our sides. Keep in touch! Laurie
So glad you have your brother, we all surely need someone compassionate and uplifting! My Mom is my best person for support, she always wants me to be better, and helps me with the house, and when I have the grandkids! My husband is pretty good, my son is too, but is very overloaded with his job, wife and 4 kids in the house.
Thanks for adding your photo, it's nice to know who we're talking to, and helps a sometimes feeble mind to keep track of all the members!
I have my family, especially my daughter who has researched Fibro and I believe understands it more than any other family member. My husband is slowly becoming adjusted to this new way of life and has picked up more of the household duties. A huge support! My 2 1/2 yr old granddaughter is the “Sunshine” in my life, but I think I get the greatest support from each and everyone of YOU!
I really look forward to see how people are and what is new in our world - if someone finally gets the disability they deserve and seeing how our community is growing. We are our biggest supporters!
Thank you all for replying to this message. A fews years ago I got rid of a lot of people I felt were toxic to my life and feel blessed that everyone around me is helping me to adjust to my "new" body. My work is very supportive and wants to help find a schedule that works best for me, my brother and mom are very supportive and really is all the family I have had in my life for most of my life. I don't have a lot of friends due to my "house cleaning" I did a few years ago so the couple that I do have are sticking around and being very understanding.
Even with all that said no one really understands what I am going through except for all the wonderful people on this website. I searched a lot of different forums before finding the one that fit just right. I am a pretty positive person most of the time and need positivity to get me through the rough times. We all say what is going on with us and to me no ones posts here ever come off negative and not having open minds to what is happening to us as well as everyone else. I am so glad all of you are here and keep me grounded and letting me know I am not alone.
That is the most powerful feeling that we are all not alone and can give and receive strength from each others struggles as well as triumphs.
I so agree, without this site I am lost. I have a couple of close friends who really and truly try to understand, and still keep coming.I still have my husband and he is trying but he is spoiled cause I did everything for him and now he is having to do that himself. Love him dearly but I have learned to ask him for help..we have been married for 52 years so he had a lot of spoiling.
Take Care
Happy Birthday to everyone having a birthday today
I bet you spoiled him good! My husband just said that to me the other day. He misses a lot! We've only been married 31 years. Best advice to newlyweds here - train them early! Though roles are sodifferent today.