im going crazy, today has been really tough, I just got back from the dermatologist yet another doctor , to determine if these red patchy bumps which make me feel like im crawling out of my skin are a side effect of a new biologic injection I'm starting for my rheumatoid arthritis. With the firomyqlgia pain I also suffer from it is like I'm going crazy. All these medications and there side effects I literally feel like a walking pharmacy. I can't handle stress like I used to and with a family two kids 11&5 and a husband who are all wonderful and supportive, I'm having trouble copeing mentally and physically and keeping up with all the demands. Any advice would be appreciated.Thanks for letting me vent, its better than sitting here crying .
What did the Derm say? From the biologic? I take Enbrel, so I'm wondering if it is psoriasis, eczema or a side effect. I have never had any reactions from it but that does not mean it can't happen!
I know about all the meds, the joint, bone, muscle pain! You have a lot to keep up with, it's like a never ending Chinese Firedrill! I have a house full of grandkids right now, and it's never ending work! Try to get some down time and try to recoup as much as you can. School will be back in soon, I know that involves a lot too, but perhaps you'll have a bit more rest time! I can only hope!
So glad you came to us! We always want to hear from you! Hope that tomorrow is a better day!
Hi Michelle, luckily, my children are grown and I have 2 grandchildren. I thank God I didn't get this awful disease?? until my children were grown. Right now, I guess you could say that I am estranged from my daughter because I am not able to baby sit my 7 year grandson anymore. When I did do it, it would take me literally 3 days to get over it. And I hate it so bad. My daughter doesn't understand my pain, she thinks it is all in my head, or an excuse for not watching him. If she only had one tength of my pain for one day, she might understand. I am so sorry things are the way they are, but what can I do?
Anyway, you are right, sometimes you get so overwhelmed that you just want to throw in the towel. God knows I don not have the answer. Maybe if you're husband could help out more! How does he deal with your pain? Have you found a doctor to treat you? Let me know! Until then, all I can say is that this forum really helps to talk with someone that understands your pain and frustrations.
I feel your anguish with the red patchy bumps that you don't know what is the cause nor is there something to get rid of them. I would suggest that you research here through the internet the meds you are taking and pay special attention to the side effects of each. I hope this will be fruitful.
Don’t give up hope about your relationship with your daughter. I had the same problem with my sister when she had her first child. It almost ruined our relationship when I told her I couldn’t babysit (for the same reason you mentioned-I would be in bed for days afterwards). She would still keep calling me all the time, in spite of what I told her, so that I had to constantly be telling her No. The situation got a little better after she was able to build up a network of her own babysitters. Her need for help was what fueled her anger at me, but it died down after she found others to meet that need.
I know exactly how you feel. I feel like a walking pharmacy too. Feeling like a merry go round that I can’t get off of. Juggling all of these different symptoms is exhausting. We must pray for strength to get through it and hope the scientists and researchers come up with a cute.
Connie
My daughter has babysitters. She thinks that I do not love my grandson because I do not keep him!
That is so much untrue. I have tried to talk to her before, but she gets on the defense and we just end up arguing. So, I see no hope for us. She eats her father up. ( we have been divorced since she was one year old) Every 4th of July, my husband and I, my daughter, her husband, and my grandson would go camping for the holiday. Well, her father would always be there also. She would spend all of her time with him. The only time she visited me, was when she wanted me to babysit while her husband, and she would go out to eat with her father. That was the only time she had anything to do with me for about 4 or 5 years. I finally just quit going camping! One day I called her crying and confronted her about this. All that happened, is that she got mad and didn't speak to me for about 3 months.
I am praying for comfort, relaxation and peace for you today. I am glad you posted your reaction to the biologic as my rheumy will probably want to try this next after methotrexate for a year. I have had some really bad reactions to most all the meds I have taken over the past years. It seems to boil down to which side effect can I tolerate best because I have had so many of them. Which is the lesser of the evils. Just glad to still have some hair on my head, praise the Lord! LOL
for me it seemed as if the side effects were just as bad as the pain and then the dr. would just give you drugs to help the side effects, when its all said and done you end up taking 5 pills for the arthritis/fibro and 5 drugs to help the side effects from the first 5 drugs. When I was only being treated for my psoriasis I was put on emberal both my skin and the pain for psoriatic arthritis went away, it was the only thing I have been on where I had no side effects and didn't have to take more drugs. My rheumy now wont put me back on it because he says it wont work like it use too, he said I have gotten so bad that if he put me on it I would just be disappointed. So much for Dr. listening to you.