Hello. Yesterday I went for a walk at a local park. Yes, I was hurting afterward, but that's nothing new. Today my body is hurting all over! My knees hurt every time I sit or get up. They as well as my elbows feel like they're burning. The worst is the vibrations I feel in my feet! It feel like the vibrations you feel from a cell phone going off. Anybody else get that? It has been going on all day!
My rheumatologist suggested going off plaquenil since my auto immune disease (whatever it is) is not progressing rapidly. I've been off the plaquenil now for a week. Doctors say plaquenil stays in your system for 4 weeks and you won't feel a difference until then. I'm not so sure. Granted, we've had some cold mornings and my pain reacts to the cold, but I've not been feeling as good as I had been on the plaquenil. Maybe its all in my head.
One more thing, can fibro get worse? I have some symptoms now that I didn't have when first diagnosed.
Hi Rosie and welcome! You are now a part of a n exclusive club. We should have our own card and flyer, lol. But seriously, can fibro progress? Heck yeah!!!! Some sites will claim otherwise but they aren't the ones stuck in this exclusive club, we are. I know there are a few people who seem to stay the same or even manage to keep working but by and large, fibro is progressive. Each year I look back and see differences in where I was a year ago. But although we may know it, it's best to not dwell upon it. It is what it is and we have to make the best of it, as well as we can.
As for your vibrations: I just posted a thread about having what feels like little prickles or zings going from my elbow to my wrist, although it's super fast. Does that sound like what you're experiencing? I don't get the vibrating sticking around, just quick zings. The best thing you can do is slow down and take a rest. Either the weather or stress may have brought it on. The good thing about fibro is that the flares do end, eventually. Not all of them but a lot of them.
What a wonderful post, FM! It should be put on plaque, shellacked, and put over our virtual door. i can't think of a better post for explaining how best to deal with fibro. Thanks for such a great posting!
Vibrations? Tiny tremors all over? Trembling? Quivering? When laying down I feel like the whole bed is shaking. I often feel this all over and no one can see it or feel it, I can't even see it, but I sure feel it. It does last a while, too. My quivering is mostly in my arms and legs, my psychologist when I was in the hospital said to make sure I mention it to Mayo Clinic. (I am not taking plaquenil, but I have something more then fibro. going on, maybe MS or some autoimmune disease).
I noticed a reply by teri about the vibrations.I was in the same boat until now,wondering if it was in my head or if anyone else experiences it.I have it 80% of the time.More noticeable when I'm laying in bed. Full body. One of the symptoms of CFS is sensitivity to noise. I've always known that I can't handle loud noise and chaos but when I'm laying in bed and things are quiet,If my husband sneezes or makes a sudden noise,sometimes even when the phone rings,I get a JOLT or WAVE of vibration,tingling or electricity,rushes through me. That's the only way to describe it. I've chalked it up to the fact that Fibro is a problem that originates in the brain. Our nerves are hypersensitive to touch,sound,(smell?anyone else?) and send out the wrong signals to the rest of our bodies.The result...pain,nervousness,anxiety,irritability....I believe that all of that overextended energy spent fighting against all of these things is what causes the collapse of our energy. The CRASH.
I've only just been diagnosed but I've been suffering for years. Thinking and being treated only for depression caused me to develop statagies,or patterns of activity and rest,to stay functional enough to look after my daughter.It's like My instincts just steered me into the direction of knowing what I needed to do to at least accomplish that.
Now that I've been diagnosed though,my pain has escalated and I've been wondering the same thing...Can it get worse? Or does it just seem worse because of the fact that I'm completely aware of what's really been going on?
Hi Rosie, I get to the point where I think my whole body is vibrating even though I can’t visibly see it. I think of it like a guitar string and how it vibrates when you play it. It can go on for hours. I also find that My hand,s, arm or head will start shaking occasionally, but once I realize it, I can control it. It’s not usual for my knees to ache after exercise, and at times the fibro hits all my joints, elbows, wrists, knees, ankles etc.
etc. I have had stabbing pains in my feet (I’m also diabetic) but don’t remember any vibrations.
I’ve had fibro for many years now and it has been progressive so yes it can get worse and new symptoms develop over time. Just make sure you don’t blame everything on fibro, if it’s something different make sure you have it checked out by your doctor as there may be something else going on.