Dear ablood
I feel very privileged to have the chance to meet you. Its really great to be the person that gets the chance to meet some of the " cool, real people" that exist. Its Very interesting how you focused your insensitivity onto your being male. I don't know...I have a lot of women in my life....and boy oh boy let me just say... well I won't say. Any ways, thank you ablood for allowing me in your life today.
Yours Truly
Silent
Dear patriciarose
Hi. Its so interesting, about the crying and all. Kind of shins a light on why babies do so much of it hu? I know Patriciarose, there are not any words invented yet to express.
Thank you for being in my day today.
Yours Truly
Silent
Hi sweetpea68
I know what you mean. Maybe that s sort of what its all about. I mean, its about how we (each of us as individuals) are going to deal with the bs. Maybe its all about fine TUNING.
xoxox Silent
Hi Jillian
Its so nice to meet you. I,m such a hard person to understand. Everyone always asks me to say it again.Thank you for understanding. Can I ask, do you get that "foggy thing" and if you do, does it sometimes keep you from remembering or thinking past the pain? I do, and it does. For quit a few days I forgot or put out of my mind that I had a support group. I have not even had enough clear days to realize all the potential of it (support group) yet. However, one thing for sure, I can't tell you how many times everyone had expressed how I am not alone and just need to talk about what ever when ever. So this must mean you to. I may be crazy, but I don't think we are alone anymore with trying to figure things out. xoxoxox Silent
Dear SLarq0507
Speaking for myself, your input helps so much. Thank you for writing and being apart of my life today. Its so great to know when others share the same views. I believe it helps to bring reality into an other wise very surreal life. Understanding, acceptance and patience are such terrific attributes. Thank you for writing. Can't wait to hear from you again.
Love Silent
Dear OMG
OK.
Love Silent
Hi Jo
Yes. I know that Fibromyalgia is not the first illness to take this type of ridicule and well...to put it in plain terms (beat down.) This is such a strange world.
Love Silent xoxo
Yes, Silent, we all have the fibro fog. For me, I think I don't pay 100% attention to things when they are told to me. I have to seriously focus on what is being said to remember it later. That is why I keep a diary of everyday, my feelings, how my pain level is. I also write down all my appointments, that helps too. I do remember days when my pain was so bad I just would stay in bed and cry. You are not alone. Don't you get an email when there is a message on this board? That would help you remember. Have a nice evening, even if it is just taking a nice hot bath and going to bed early!
Hi Again Aloha
I have heard that others in the support group are keeping a diary. l think I am going to try it. Heck...I 'm lucky if I get to my e-mail a few times a week. I have been in around the 700 inbox mark quite a few times. lol. hummmm....but yes and thank Ray Tomlinson for e-mail. Other wise, I would not get the chance spend hours deleting it!!!! Thank you for the hot bath advice, i just might tonight.
Yours So Truly
Silent
Hi Jillian
Your writing makes me smile. Wow, my kids think I have Alzheimers to. I bet we all have some funny stories to tell about that hu? Your friends sound so nice. Tell them Hi from me, and how they need to recognize how special they are. It would be nice to have fibro awards for the good people around us. Not meaning we should give them dogie treats, but sort of like that. I know we have the "Store" but....I don't know if I could ever afford to do the store to much. Any ways just babbling now. I will let you go. Thank you again Jillian.
Love Silent
thanks so much for sharing.
Of course!!
Dear Scott
............................OOOOOO HI SCOTT................... lol
Love Silent.
I understand what you’re going through. I am newly diagnosed and although I am glad to know what the hell is wrong with me I still feel very frustrated. I am in the middle of a bad flare up as I have been told it is called and I feel like I am falling apart. I am only 43 but feel 90. Last night I had to work a closing shift at the store and when I got home it was all I could do to walk from the car to the house. Between my lower back and my feet I felt horrible. I hate to come home and dump it all on my sweet husband but it’s hard when I come home ready to bawl. Sometimes it’s hard to believe fm could cause this much pain. I think it must be something else. But my doc has tested me for everything under the sun and all are negative. These symptoms have been going on for years but recently had gotten so bad I finally went to the dr. My hubs says you dealt with it before why is it getting worse. I don’t really know myself so how the heck can I explain it to him? I feel so debilitated and frustrated. It sucks.
Some ppl are like that an dI say whatyou say, To hell with them. My sister just told me yesterday that "You are not like other ppl, you can't do what other pplc an so." I was so happy to hear her acknowldege that she knows and understands how different I am from others. But not every one will see it the way she/others who understand does.
Hi Sunshine 099
"This is so weird" I don't want to upset u or anything and I 'm not trying to steel your life, but what you just said is exactly---to the tee----what and how it went down for me. The worst was when I would get home from work...Just a 4 hour shift mind u the 7 hour shift 1 or 2 a week, I don't know how I lived, I basically fell out of the car, baby-stepped to the front door, and crawled up 3 that s 1,2,3, little steps into the kitchen. Most of my time is spent nodding off like a 90 year old. And I'm newly diagnosed, and .....well, its uncanny at times the way we think we are alone when we are going through really hard times. The saying that" when you are going through something thousands of people are having the same exact thing happen to them at the same time." is so true. Its just that we don't usually get to meet those people. Sunshine I concur this sucks---What a good motto...
Yours Truly oxox Silent
Dear MoMerrell
Yes. And it sort of looks like this is going to be the road our lives are on for now. So, yes "to hell with them". I strongly believe that someone is going to find a way to help Fibro, not with drugs but with a real kind of cure. Maybe it will be something we will attach to our brains or a simple operation. A few months ago I watched a program where this guy had these nano-bugs that were injected into the body, lead to the sick area, and then could translate the issue back to the out side physician. If the technology exists for this, then it might not be to much longer. MoMerrell, it is so great that you have your sister. Just someone to remind you every now and then, helps. My youngest daughter Susie does this for me to.
xoxox Silent
Been gone for awhile but not much has changed, I can tolerate everything fibro throws at me but the flare ups..just infuriates me that at one moment I can move without the terrible pain and a few minutes later cry out in pain,I hope you are right that some day a cure will be found for the people that are coming behind me that will be diagnosed..I am 68 so they would have to hurry for me LOL
Gentle hugs to everyone
Vicky
Hi Vicky
Its so nice to meet you. I hear you. I'm 52 in Dec. At least we are being diagnosed with something now. The younger people behind us might be at an advantage. Because they won't just be labeled as being "overly needy",or people who just want to get attention for drugs, or hypochondria. I believe that this illness can't be ignored. It would just simply become to "costly" any way u look at it socially and politically. Someone is going to want to win this one. Its as bad as polio, heart decease, and so on... At least that s how I've sort of been thinking about it all. I wish they would hurry for you and me.
Yours Very Truly
Silent
Yes I hear you I have 2 daughter 48, and 49 and I am constantly checking them for any signs, I am so afraid it could be heriditary and I do not want anyone suffering the way we do. I also know there is nothing I can do to prevent this horrible disease..
Stared out having a good day but now the fog is setting in, always around lunch time, and it is so bad I have to lay down, I do believe that some of my painss are old age LOL
Gentle hugs
Vicky