I am 20 years old and was diagnosed at the age of 14. I am trying to get tips on how to cope with FM and also be a good wife and a good mother. I’ve been in a depression because I feel soo sorry for them. Although my husband is very understanding ( he’s done his research ) I still feel bad. If I get up in the mornings and do the regular house wife things I’m in bed for a week. I feel like I can’t get ahead. It’s like I take 1 step forward and 10 steps back. Just need some advice please. Thank you
Hi,
My heart goes out to you. My kids are grown and married. I can't imagine having Fibro back when my kids were young and growing up. Kids take a lot of energy and of course when you have Fibro that is one thing you lack. Do you have family members that could help you with cleaning the house, then hopefully you would have more energy for your kids.
I hope you find something that works for you.
Jackie
I've had this since I was at least 20, but just got diagnosed Monday. A few months ago I decided to go vegetarian to see if that would help with my pain and energy. Over the last 3 months, I noticed the more fresh organic foods I eat, the better I feel. I have to be consistent with it though. If I cave just once into junk food/processed food (even without meat) it ruins the whole thing and I feel like crap again. It's better for the kids too....even though they still always fight me wanting chicken nuggets and hotdogs.
Once your kids are old enough have them help out. My biggest mistake was not starting them young enough on cleaning up after themselves. They're 6 and 7 and it's a PITA sometimes getting them to clean their rooms or help me out around here. If you can get them to clean up after themselves, that's half the battle lol. I also try to wash and fold at least 1 load of laundry a day. Kids can help fold laundry too even if they're little. I think I started mine when they were 3 or 4 folding their own clothes, small towels/rags. We did it together which was nice. They're folding isn't perfect, but who cares lol. I'm still trying to learn to let things go, that not everything is going to get done, and also that everything isn't going to be done perfect.
We do family day's on Saturday where we try to get out of the house and do something. I try to get things done earlier in the week so I can take a whole rest day on Friday and do nothing. If I do nothing Friday I have a better chance of feeling up to getting out of the house Saturday even if it's just a drive or a trip to the park.
I'm not sure what kind of advice you were looking for in particular, but that's all I can think of off the top of my head. I'm still new to all this, these are just some things that have helped me. Hope it helps! :)
I'm 24 and have had Fibro since at least 17 (possibly earlier). Last year I moved out of my parents house, got engaged to my wonderful boyfriend, and had my fibro come down on my head bad.
I'm still learning to to keep the house clean enough without killing myself in teh process. My fiance and I do want to have kids someday, though we're not financially stable enough yet. I'm learning how to not try to do everything at once, how to take lots of breaks throughout the day. That seems to be my biggest way of keeping the pain at bay.
I've also learned to give myself lots of me time during the day (I can't work, trying to get SSDI) by taking baths, sitting out in the sun for a bit, painting and playing video games. I'm still working on being happy with myself, but that helps a ton. It will take some experimentation, but I hope you can find something that works well for you and your kids.
I am not as young as you. Be 35 this year, but I do have 3 active boys. 8,4,2. I understand it is very hard and I learn day to day what works best. Just pace yourself. You are very lucky you have support at home. Remember if you r sad. Just start typing. I found this has been great therapy!
Thank you all soo much!(: y’all are absolutely amazing! My husband is great. He comes home and is soo proud if I do a load of dishes. He acts like I spring cleaned lol which does help. But I’m the one that has problems with feeling like I don’t do enough. But I’m workin on it (: it helps to have people to talk to who knows what I’m going through.