I've been having flare ups the past few nights but tonight it's pretty bad. I live with my parents and I don't want to complain much to them so I don't. I told my mom once that I was in pain. It's making me nauseous and I don't take anything for flare ups. I don't want to take pain meds and my psychiatrist does not want me on lyrica. I am in tears I am in so much pain right now. I don't see the point in trying to sleep or taking my night meds yet because like the last few night, all I will do is toss and turn. My rhumetologist is 2 hrs away and right now I can't drive due to and injury. I want to keep seeing her because she is amazing but there is someone closer and I'm possibly thinking of switching to her (my mom sees her tomorrow so I will hear what she is like from her). I feel like throwing up and hate this pain. I don't know if my parents realize exactly how much pain I'm in. I know I'm in for another sleepless night :(
For me, telling someone how crumby I feel often helps. A gentle hug and/or words of comfort somehow eases my misery. When I can't sleep b/c of pain, I often stand under super warm water until I feel my body relaxing. I don't use anything with scent (i.e. soap, lotion, etc...) b/c sometimes "smells" make me feel worse. I also place a hot water bottle, not a heating pad, on my back or legs to help calm those aching areas.
Please know you are not alone in your struggles. Tis a fine line to walk when sharing how we feel during times of intense pain. Hang in there, better days/nights are ahead.
I'm feeling awful for you just reading this!
I don't know how you do it without Lyrica or something, AND something for the flare ups!
Tell your mother now. I'm sure she wouldn't want you to be in excruciating pain :(
::Gentle Hugs::
Thank you for the responses and support. I told my mom I didn't sleep well last night again. It's really rough to have the intense pain and to not be able to do or take anything. I can't even take anti- inflammatories as I am allergic to them. My mom saw the Rhumetologist closer to my home and really like her. I have an appointment to see her tomorrow. I have a problem saying when I'm in pain because I was told growing that I complained too much and my parents ignored me, including when I fractured my wrist in 2 spots so even though they say I can complain now, part of me says I'm not allowed to. Hot showers help but right now I have a soft cast on my ankle due to severely bruising the bone and showers are too hard :(
Thank you again for the support.
I understand the not complaining.
I was taught that nice young ladies said "I'm fine, thank you. How are you?"
I find it difficult to even tell my husband or best friends how awful I feel, so I just sleep.
Good luck with the new Rheumetologist tomorrow! :)