I am having one of those days where all you can do is cry, throw up, take meds and just lay there. Sadly I can't take baths as I have epilepsy and I do know someone who did pass due to a seizure in a tub so I'm so scared of baths but my goodness I wish I could take one it would feel so good but my fear is so huge so I need someone there and it just gets awkward to be honest. I have taken T3's but it's getting a tad upsetting that I need to and I also have 7 case studies due tomorrow, 5 of which I haven't done yet so I'm stressed but my vision is so blurry and I can't concentrate. I want soup but I am in my room in the basement and the soup is upstairs, I can barely make it to my bathroom about 40 feet away cause my legs are dong numbness and pain interchanging randomly. I can't sleep but I am so tired and I want warmed milk but again upstairs, my boyfriend may stop by but it's beyond bedtime, past 12:30 for people that need to leave at 7:30 am and my boyfriend has had a 14 or 15 hour workday as an autobody guy and I went to school today and had to do a lot of walking between classes. Tomorrow I have a full day of 5 classes and they are 4 in a row an hour break then last one and it's tons of walking between classes and I'm so sore already I can't see myself lasting. Sorry that was a long rant to say owie! :(
I , like you have had my worst flare up in 15 years. Went to see my doctor for some Tylenol 4 pills and told him that it is time to try some alternative medicine, and he said go for it, so I asked him would any of my drugs interact and he checked and said no.So went to the alternative med store got some good information. She said she has lots of things that she knows will help.I will let you's know what I finally do, cause I cannot go on like this, I wake up crying in pain and I have always been able to handle my pain but not in the last 2 weeks.
So sorry to hear you are having a hard time too... Vicky
I feel your pain and goodness I hope it gets better and you get a bit of sleep and I totally get the hating the pills. And crying takes so much energy it sucks so damn much.
I’m so sorry to read your posts and hear about your suffering. It’s after 4am and I can’t sleep either, so I can relate. Definitely pace yourself, and only commit to doing as little as possible in a day. For example, I will schedule one big event a day (like a doctor appointment), but doing more is unbearable.
Thinking of you both and hoping tomorrow is a day free of fatigue and pain!
Shawna, I’m so sorry you are having such a hard time, what are you studying in school ? Try going to the disability office at the school & see what they can do for you, there are lots of things that may help, van service to & from classes, taking exams by your self instead of in class, I know there are lots of other things I just can’t think right now.
5 classes, with 4 in a row ?? Wow that’s a lot !! Perhaps an advisor can make some changes for you, is it 2 late to drop a class ?? I think it is ?
I wish there was something else I could say to help, but call the disability office they should have some helpful things to get you through the remainder of the semester. And call your advisor, explain your struggle
Hugs & blessings
I have been working closely with my Disability Advisor and have the exam services and in order to get the proper funding and graduation day I need to stay in all of my classes. I am going to ask if there is any way to change one of my class times so I can get a break and something to eat between those classes. Thankfully Tuesday is the only day I have 4 in a row and I am probably taking tomorrow off as I only have 3 classes that day so it's better to take off. There is no van or anything as it's all indoors but so painful as I have to walk to and from elevators and my classes.
Oh my gosh, Shawna! You really are having a tough day! I admire you for doing all that you are doing and having the courage to go to college. I understand how it would be very difficult to deal with school when you have fibro. Fibro is an education all by itself.
Instead of baths, can you use a heating pad? Some even use moist heat.
I know, it's awful when everything you want is upstairs and you're downstairs and can't make it up. Can you put a supply of food items downstairs with you? And even a microwave if necessary? The more frustrating steps you can eliminate, the better.
Can you ask for an extension of time on the case studies due to your illness? It wouldn't hurt to ask. Then maybe if you put it into your mind that you're only going to do one, it might be easier to start. Then when done, use the same motivation again, that you'll only do one. I did that with pants I needed to sew and at least got one pair done so far. It just was too exhausting to think of doing 5 pairs, so I promised myself I'd do one pair.
Maybe next semester you could take fewer courses? I know that you probably need to do X number of courses in time to graduate but maybe you need to think of a slower pace due to your illness? This is not an easy illness to deal with.
As for all of that walking, could you use a bike or scooter to get to classes?
I so wish I could help you with some miracle cure. This illness is the pits! Just know that I'm thinking of you and sending you peaceful and healing thoughts.
Hope that you can get with your Dr and tell them how badly you are feeling. Just keep going and telling them, it's the only way they know, you just cannot give up!
Yes, I would think it would help you out a lot if you could change a class time so you could get a break and something to eat. Four classes in a row! Wow. No wonder you're sore and tired. Well, at least you're giving it your all and are getting those classes taken care of.
Could you ride a motorized scooter? I'm perfectly serious. I can understand and sympathize with how tiring the back and forth walking between classes is, in addition to lugging along the books.
You seem like you have a good head on your shoulders, Shawna, and a good idea of how to make things more manageable. I wish you the best in your pursuit of higher education and really admire your grit.