From what I’ve read online, I’m not so sure I have these trigger points and my dr didn’t check them. The majority of my pain is in my hands/feet, arms/legs, neck/back. Pressing down on where these trigger points are supposed to be, I don’t feel any extra pain.
My blood pressure is always lowish around 96/58 (last appt). Everything on my blood test came back normal with the exception of cholesterol. Most of those numbers were quite low…the lowest, LDL was 38 but he didn’t seem concerned. Ana was normal, and the rheumatoid factor was an 8 also normal.
He just said it has to be fibro bc nothing in my blood test suggests anything is wrong. He prescribed me meloxicam, told me to take it for 2-3 weeks and if it works stop taking it. It’s helped very slightly, but so little I can’t even say how it’s helped.
I’ve gone through a lot of stress since I was little so it’s quite likely it could just be fibro, but my gut keeps telling me there’s something else. Blood test says no auto immune, no inflammation, so I’m not sure what else to think?
I think you should follow your gut. Well it may still end up being FIBRO, you will not know until you purse an answer. It ook me many years for me to get an answer that is was FIBRO, and I was first diagnosed I felt the doctors were just trying to give me problem and name so I would go away. I had many tests over the 6 year period, so I was thinking they were giving up.
I finally went to a pain clinic where they actually educated me on fibro and helped understand my condition. They gave me tips for pain and how to understand what cause my flares.
Thanks! I’m actually ok with a fibro diagnosis and I can accept it. There’s just been this nagging, “Yes, but there’s more to it” feeling since my dr told me I had fibro. The trigger point thing has been bugging me too. Maybe I just don’t understand it enough yet? Or maybe I’m just paranoid since no other tests were done except that one blood test?
Idk, it’s just so frustrating. The brain fog is much more of an issue with me than the pain anymore. I feel like my brain is deteriorating more and more every day. I’m tired of walking into walls and door frames and not being able to get through a conversation without any problems. It’s embarrassing. And walking into stuff all the time hurts I wish there was something to make that better!
Wow, that is confusing! If your blood work is coming back with auto immune and inflammation I don’t understand why she wouldn’t look more into that. I thought fibro was non auto immune and non flammatory?
I have those days too where I can barely walk and I can’t get normal house work and stuff done either. If its not bc of pain it’s muscle weakness or I’m too tired or I just can’t get my brain to cooperate and focus…usually it’s a combination. Then i feel guilty. Then the guilt I feel from not being able do anything makes me feel worse and more tired. I definitely feel your frustration! I wish it could be better for all of us!
Thanks for sharing that with me I didn’t know that! I’m going to look more into that tonight and see what else I can find. No, I haven’t seen a rheumatologist, so far only my family doctor. I have been thinking of seeing a specialist if some sort, but with my blood work coming back so well I didn’t know where I should start.
Hi MamaD. I've had the same feeling that you are describing. That "are you sure?" feeling. At the time I was diagnosed I was taking vicodin and never did understand how it could be a correct diagnosis because of the effect of the pain killers. When the doc at the fibro clinic poked and pushed at the various points, yeah they hurt, but my pain was kind of diffused and generalized at that time. But he was the second doctor that told me I had fibro. First my primary did then the fibro specialist. My blood work was always good too.
Since then I have been tested for so many things. Because of the various and strange symptoms, I followed a rabbit trail of doctors. My diagnosis was in 2008 and I know I have fibromyalgia, but sometimes there is still this nagging feeling that it could be something else. I don't think it's unusual for fibro people to feel that way.
Do follow your gut. If you think your diagnosis is incorrect, go to a different doctor. Find a rheumatologist. Try to find one that knows fibro well. There are many meds available to help you. Some work for one person and not another. Some work very well.
Hang in there. We'll be waiting to see how you're doing.