Hi everyone - about 2 years ago, I started to develop pelvic pain during flare-ups of my Fibro. Along with my hips hurting at the same time, the pelvic pain makes it just about impossible to move around or even walk. Very painful for me. I don't think there is anywhere on my body that Fibro hasn't hit me now. Thanks! Laurie
Hey Laurie,
I suffer a lot of pain in my hips as well. Mostly if I am sitting too long but it can come on at any time. The most painful thing about it is that my hips often pop in and out of joint.
Hi laurie. I do have hip and pelvic pain which seems to increase when I’m due on. I also had pelvic infection though. It’s so easy to blame fibro for everything that it’s easy to miss something which may be important. I’m new to this so I tend to still look for other things. Not sure if that’s good or bad:/ x
Hi bubbles ( love your name!) - I was told a while back that the pelvic pain was from Fibro. I was shown an anatomy of a woman with trigger points - which I am familiar with, and sure enough one of the trigger points was in the pelvis, on each side. Be careful if you are looking up things to explain what you are going through - because you might worry yourself needlessly! I've done this a few times and paid dearly - absolutely convinced that I had something really horrible! LOL Hugs! Laurie
Hi Ahava - thanks for responding. I read your own post and so sorry to hear you are in pain. I have what is called 'essential tremors' in my hands. However, when I am filled with anxiety - especially over my Fibro and in pain, they really shake badly. Your hips popping in and out of joint must be awful! Can this be fixed in any way? Have you seen a doctor about this problem? Take care of yourself and my thoughts are with you! Gentle hugs! Laurie
I know it’s my worst thing ever and very relieved I don’t have ms which is what I convinced myself I had. I’m lucky though as I have really sensible people around me who talk me out of self diagnosis lol. Oh and my name is a recognition of my husbands love of football for westham ‘forever blowing bubbles’ haha x
Bubbles - I thought I had MS a while back too. I posted my fears on this website and was just freaking out! This is not normally the way I am - but nevertheless, I did it to myself! LOL Everyone calmed me down and I let go of it all. Laurie
What were your symptoms that caused you to think that you had ms?
I am in the midst of a 5 month bout of Fibro (diagnosed 12 years ago),
but new symptoms have left me thinking I have something else.
Yes, my fibro pain started in my lower back and extended down the buttock and affected the hip as well. Turns out that I have mild osteo in my back and my buttock/hip pain is due to pain that's higher up in the back. I've had radio ablation done in the back (burning the nerves.) I didn't realize how much pain it had alleviated until I went back for another procedure and realized how pain free I felt when the pain meds kicked in and how much back/hip/butt pain I'd been experiencing once the procedure had worn of!
I don't know if this would help you or not. I had to undergo cortisone shots first in the affected area and they did nothing, nada. Three or four or five rounds of them, and still, nada. Radio ablation is one of those things that comes up once you've tried other methods like PT (aka Physical Torture), chiropractor and cortisone shots. You could ask your doc about it and see if it would be a possibility for you.
I so feel for you! Fibro seems to hit most of us very hard in the hip/lower back area. And it hits HARD!
Hugs, your pal,
Petunia
Hi Michael - for the past 2 years I have been falling down - legs giving out sometimes and bumping into things and being unbalanced. My girlfriend has MS and she had the symptoms that I was having. Well, got thoroughly checked-out and it turned out to be a part of my Neuropathy problem.
I just saw a new Rhuemy - and I DO have other things going on that she wants to check out. But none of them have to do with MS. Michael - what symptoms are you having? Maybe I can help you on this! Laurie
Ahava
Could you be double jointed? You could be suffering from hypermobility or even Ehlers Danlos Syndrome. Most docs aren't very up to snuff on this but you can find out more from here:
http://hypermobility.org/what-is-hypermobility-syndrome/#more-503
It sounds like your hips are subluxating when they pop in and out of joint. My knecaps slid around, so I know how painful it is for you.
I remember that, Laurie. And it's a scary thing to contemplate. I too thought I might have it, due to the spastic legs and left foot dragging. I'm almost 100 percent sure that it's the fibro now. It surely does mimic some symptoms of other illnesses pretty well, though!
I'm glad you don't have MS, and you, too, bubbles!
Cramps in feet. All leg muscles in pain and muscle twitching in calves and feet. Muscles seem strong. Fatigue though in legs. Also much pain from shoulders to hands. And cramps in hands. But a recent MRI revealed 4 herniated discs with 1 sitting on a nerve. Likely causing the arm pain.
Also, what do you mean by “neuropathy problem”? How do you describe that?
I also have a lot of back pain due to numerous herniated discs, and the pain from the lower back extends to legs and feet with cramping twitching and pain in all leg muscles.
That has been the newest pain for me. My hip bones and my tail bone hurt alot. Sometimes its when I stand, sometimes its because I sit. I never knew bones could hurt like this.
I feel for you. I have actually have had pelvic pain for years. My obgyn advise me it must be the way my body was shaped. What a joke. The hip pain is getting worse and now have shooting pain going down my butt into my legs. I do go for lanicane/ cortisone shots. It gives a temp pain relief. Good luck and feel better. Xoxo
Hi Michael - I have what is called 'Peripheral Neuropathy' - caused by my Fibromyalgia. The way my doctor explained it to me is that the nerves connecting to my spinal cord, brain and other parts of my body are damaged.
I have tingling and numbness in legs and arms, involuntary cramping in feet, calves, thighs and hands and twitching as well. Peripheral Neuropathy also affects my sense of touch. Example: when my feet are affected, they feel very hot - like a burning sensation, but when touched, they are actually cool. The bottoms of my feet when walking, will feel like I walking on stiff crumpled up paper. Weird sensation! I also will get muscle weakness throughout my body and become unbalanced at times - sometimes falling.
I am so sorry to hear about your herniated discs! I have tremendous shoulder pain sometimes - especially in the shoulder blades. Not an easy thing to live with all we go through - is it?? Laurie
Hi Laurie-
Your symptoms are very similar to mine. My Primary Care Dr says I have Fibro, for about 12 years now. No mention of Peripheral Neuropathy before, although I have read about it, and it seems to go hand in hand with Fibro. I went to a Neurologist at that time, and he did not come up with anything after many tests. He sent me back to the Primary Care Dr.
But this newest 5 month bout, after about 1 year of very few symptoms (longest ever), has been difficult. Although sounds like you have the same symptoms. Except I do not lose my balance. 1 other symptom that I do have is burning or tingling in my tongue and lips. No one seems to have a clue on that one. I guess just another weird symptom of Fibro for now.
Michael
Hi Michael - Wow! The burning and tingling on the tongue and lips is something I have never heard of with someone who has Fibro. But, you may be right that it's just another symptom of what we have.
I have had Fibro for 30 years now. To hear from doctors that its NOT progressive is a bunch of crock!! LOL It started in my hips and then progressed from there. I don't think there is anywhere on my body that Fibro hasn't attacked.
I sometimes miss all that I used to be able to do. I was a half-marathon runner for years, did some modeling occasionally (can you imagine me tripping and falling all over the place down the runway now??) - loved jet skiing - a whole lot of stuff is totally off-limits for me now. Going from being athletic to where I am now was a REAL adjustment for me.
But, it is what it is and I know my limits now and need to be careful. I have great support from my son and extended family. My daughter, not so much. But it's okay. Hugs! Laurie