I am so sorry teri. I haven’t had any issues this bad, but my esophagus was stretched.
I am sorry, it is hard to see our parents suffer, and die from illnesses, and now wonder if our illness could progress that far, too.
I discussed this with my doctor getting that flap fixed. But the doctor informed that it dose not work. So here I am suffering.
Shirley
Hello whisper, I have eating issues also. I bite the inside of my checks so much, they have scarred flaps now that get caught in my biting all the time. I bite my lips often and silverware, not fun. Swallowing gets tricky sometimes. My biggest eating issue is that after a couple of bites, I don’t want any more. I start to feel gaggy and will have to spit out my food. I can’t get enough food in to feel satisfied. I have a hiatus hernia and don’t know if that’s the issue. I have a lot of nausea so meal replacement drinks and rice pudding are my only options sometimes. Anyone have any thoughts?
Dee
Wow this has been a great thread! Dee, I also have trouble with eating and like you at time simply can’t eat anymore after a couple of mouth fulls. I’ve resorted to soups which I can drink most of the time. I don’t seem to have the same issue with some foods, things like apple slice, bananas providing they are over ripe, jelly (jello I think with people from America), sometimes some milk puddings but at other times not. Meat makes me gag most of the time in fact so much I no longer buy it. I’ve found it best nit to plan in advance and usually pick up something to eat on the way home from work. If I’m over tired it’s worse and I put this down to being too tired to chew. There are so many variables with this illness that simply don’t show up in the symptoms list but mention it here and a lot of others agree they also have similar issues.
Yes I have had swallowing issues for years , I have a spastic esophagus and acid reflux. Sometimes it feels like a air bubble blocking , sometimes my food wants to come back up the throat, or feels stuck along the way down. Now granted I also have a hiatus hernia where my food gets stuck in it and I can't eat anymore and buckle over in pain ,plus I have lower esophagus issue a spinster I think you call it , strangle Esophagus just above the stomach. Also I has Gastric Bypass in 2008 was 309 now 130 lbs. So many issues for me.I have TMJ as well. Hope you learn some coping skills if you do let me know please :O)
(((warm gentle hugs))))
Laurie
Susan,
I have been doing some research, and thinking about the similarities between my grandmother, mother, brother and myself. Many of these things seemed minor or insignificant, but could mean something now. Here are some: small veins that collapse making it hard to draw blood and do iv's, acid reflux & belching etc., slow movement through intestines, constipation and pain, high blood pressure, headaches/migraines, brain fog, swallowing/choking issues some lose and popping joints, pain, spasms, easy bruising, low body temperature, difficulities with hot and cold environments, poor balance. There are many more, but I won't list them all, except my mother and I have lesions on the brain and my mother was diagnosed with MS and we, including my primary thought I had MS (but I found out when I saw neurology that I don't have MS, and my mother didn't either) and my brother just told me he has had 3 strokes and a heart attack, too. We don't have the stretchy skin, ours is more tight and swollen. Oh, and the symptom my mom had, and that is the most difficult coping with is muscle fatigue.
I just don't know how to approach the physicians again, I don't know if I should start with my primary, or neurology or rheumatology. In my charts it says hypochondriac, and my primary says cognitive behavioral therapy would help to not focus on my symptoms so much. Although,my primary says it takes a long time to get an MS diagnosis, and she has been very supportive.
Keep biting my cheeks very painful