Hi,
I’m sorry but this is another vent. So I will not be offended if anyone is sick of hearing me go on and exits out of this thread.
I am about In a puddle of tears right now, which is highly unusual for me. I think as fibro fighters we tend to have higher pain tolerances, etc.
But today has been one of the most painful fibro days I can remember. With hardly any sleep, a few pulled ribs, hips out of alignment, shoulders jacked up and muscles tight as I think they possibly can be I have had it to the high red line. Lying down is even uncomfortable because of my ribs and shooting pains in my legs and pretty much everywhere else.
Have had a horrible migraine from the muscles in my neck being pulled so so right and am feeling nauseous and dizzy from all the pain.
Sometimes I feel like it is so unfair, I am only 21 and do not feel like a normal 21 year old. I do not have my health and I admittedly get bitter to see people my age waste theirs. I wish I had a caution sign for everyone. But I know that fibromyalgia is extremely difficult no matter what age you are. I’m sorry everyone I just had to vent right now and I know everyone here will understand incredibly painful days like this. Love to all and praying you are all having a pain free day.
Go ahead and get it out, Ahava! We're not tired of hearing you, not at all! You know, I have other ailments far worse than fibromyalgia, so I'm sure that others wonder what I am doing spending all of my time here. The answer is you, you and those your age, those even younger than you. Young women and men who are trying to go to school, start careers, be in loving relationships, be parents. My heart goes out to everyone who suffers, but ESPECIALLY for the young!
This is a very unpredictable, complex condition that is difficult enough for the Doctors to understand to agree upon a definition, so it's even harder for those around us to understand, especially when it happens to the very young!
Make sure that you are being treated by someone familiar with fibro, who believes you when you tell them how it makes you feel and the problems that you have with it! Make sure that a Rheumatologist looks at you at least once, to make sure there is not an underlying autoimmune condition, endocrine imbalance, or neurological disorder.
If your hips will not stay aligned, the best person to help with this is a good Chiropractor, no one else can deal with misaligned bodies like them, they can also recommend an exercise that you can do that can help you keep your hips in place. I was dealing with a tilted pelvis, the pain involved with this was off the charts, he can help with this every single time!
Do all you can to learn your family history, there are so many things passed to us as heredity, the more we know, the more our Doctors will know. Keep a running list of ailments/symptoms that way when you get to the Doctor, you aren't forgetting anything.
As for the rib pain, ask them about this, I'm not attempting to diagnose you, just letting you know that it's not uncommon for people with fibro to suffer this. http://en.wikipedia.org/wiki/Costochondritis
I hope that you can get some answers, some relief. Do all you possibly can for yourself, come to us anytime, we are always here for you!
Wishing you well,
SK
Thank you so much for your support and help, SK.
It is so hard to find a good rheumatologist, the one I have now is very knowledgable, however he also treats me as if I am overreacting about my pain. In a past appointment he sighed and told me that he was “running out of options”. I found that to be very insensitive and infuriating considering he isn’t the one who has to live with the fibro.
I am so grateful for my fibro family. I know I keep saying it but it really does help to have people to talk to who really understand what this disease is like.
Hi Ahava, Vent away ! We do understand totally !!! Nothing is more frustrating than seing our peers go on with their life, and just wonder how wonderful it would be to have a day to not think about how crappy we feel. Your right it’s not fair !! And we all do have those days when the tears won’t stop & we just want a normal life… We have to allow ourself that time to grieve our loss of the life as we knew it or want, then we have to shake it off and re-focus on stress reduction and what we have to be thankful for.
We have to focus on the better days, mins or hrs… They do come… Sometimes not enough & then things pile up, which is why stress reduction is so important for us !
Sending big hugs
Blessings
dee
Thank you so much Dee. You are absolutely right, and I think I need to finally let myself mourn over the life I would be leading right now if only I was healthy. I am grateful that things are not worse, and I need to somehow learn how to function my own life and try not to envy the lives of friends and family around me.
This is a very difficult challenge but I can’t find words to express how grateful I truly am for this support group.
You all help me get through a lot of dark and seemingly hopeless days like today, that means the world to me. And I hope I can help others as much as you all have helped me. God bless!