Medication level is getting low now that I stopped going to the last doctor that i was just an atm to. I have called multiple doctors to try to get an appt and start trying to find a new doctor and the soonest i can get mid-end of jan. I understand that all the doctors are going somewhere for the holidays but it's hard to think that I may have to wait that long. I have about given up till i can see my pcp and ask her to find me a good one because i can't keep stressing. Why does the search have to be so hard to find a doctor that respects that you have fibro and that it's not all in your head?
Not losing the war just losing the battle for awhile.
Hi, JNM and welcome. Sadly, I think that most of us here can relate to your frustration with doctors. Many of them have some very outdated notions on fibro and aren't updating their medical knowledge.
I'm sorry that you're in a situation where you may have to do without your meds. Could you ask your PCP to renew the prescription?
Meanwhile, you could ask to be called if there is a cancellation with any of the other doctors. That might get you in to see one of them earlier.
In regards to finding a good new doctor, I would definitely question his/her practice before going: ask the person on the phone if the doctor has experience in treating fibro. Try to get some info on what kind of experience he may have. Or his philosophy on treatment.
One possible way of finding a doctor (I found mine this way) is to google the type of doc you're looking for, then add the word "fibro" then add your area:
Example:
rheumatologist fibro san francisco, ca
(example)
Then when you find a name, google them by name, then add the word "review" or "ratings:"
Dr. Fibrobuster ratings or
Dr. Fibrowacker reviews
Or finally, if you don't mind disclosing your own location, ask others on here if they know a good doctor-of-whatever in your area.
I hope that some of this is helpful. Also, I am sure that others will answer with helpful info.
Good luck on your quest to find a caring and good doctor.
Hello. Like Petunia said,most of us went through the same thing trying to find a good doctor that believes in fibro & is knowledgeable. It took me almost 20 years to find mine. Petunia gave you some good advice on searching for a doc. I’ll share what worked for me too. After years of frustration I happened to be at the right place at the right time & someone gave me some insider info & a website. I won’t go into all the details but here’s the website. http://www.holisticmedicine.org/ Just use the search function on the first page & you should be all set Good luck
I don't go to see my PCP till the end of the month but hopefully she can refill them. Usually she does anything she can to help me and never thinks im crazy with my complaints on how i feel.
I tried googling a few docs today and i called a few but they weren't covered by blue cross blue shield. One didn't take any insurance at all and their first 2 appts with the doc were about 800 each then after that it all depended on how often the doc wanted to see you. I only make 150 a week so thats out of my range.
i've been doing some more research on what i should be asking a doctor it's just hard to ask when i'm calling and only talking to the receptionest. (they always say the doctor is busy)
Hope all is well with y'all. Thanks for the wise words and wisdom.
Good luck 