Fibro symptoms? or not

Symptoms & Treatments
1

Hi all,

I am new here and have not been diagnosed with fibro. Every time I try to figure out my issues by searching online, it leads me to fibro. I see my doctor next week and will be asking about fibro for sure.

Here is what I experience-these change daily and some days are worse than others:

Every joint in my body is tender and painful during the night or any time I just sit still for any length of time.

I seem to have several of the "tender pressure points" they talk about.

My hands hurt most of the time but I have osteoarthritis in my thumbs for sure. I'm assuming the arthritis is all over in my hands now. I have had cortisone shots several times in each thumb.

My eyes are very dry and scratchy. I have ocular migraines and trouble focusing my eyes.

If I wake up at night, my arms and legs feel like they are burning from the inside and then get tingly. Then I have the worst case of night sweats. This happens several times a night.

Both hips and across from side to side cramp up in the night. I have bursitis in my hips so maybe that is what that is. I have had cortisone shots there also.

Both shoulders/arms/elbows/wrists hurt like tendinitis in the same place on both sides. I can't lift my arms over my head and putting on clothes is very painful.

My neck is always sore and I have Eagles Syndrome symptoms too.

I have other symptoms as well. Does anyone have these symptoms? How can all of these places hurt if not fibro? It's almost impossible to ask about all this at the doctor. They only like to treat one or two issues at a time.

Thanks to all my new friends here for sharing their knowledge.

Marie

2

Marie, this information on Diagnosing Fibro from our Fibro 101 guide may be helpful to you:

http://forum.livingwithfibro.org/forum/topics/diagnosing-fibromyalgia-syndrome-fms

3

hi marie, there are so many illness that mimic alot of the same symptoms,, i hope you have a good doctor who listens to you

and will take the appropriate tests to find out what it is or isnt. all the best

HUGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGS

suzie

4

Thanks Suzie, I've had several tests for many of the autoimmune diseases already. All come back negative. Autoimmune diseases run in my family.

5

I hope you start feeling better soon.

6

Hello Marie,

It sounds like you have a lot going on. It does sound like you may have Fibro. If you write a list for the doc that may speed things up, when you see him.

Fibro is usually diagnosed by a process of elimination, and in UK by a rheumatologist. Hope you get the answers you are looking for.

Take care, Anne

7

Hello Marie,

I actually sent a list of all my symptoms to my doctor thru our patient portal and asked if I could review all of them with my doctor. I received a call from her assistant within hours.

Then I sent a list to my Rheumatologist (they are in the same network).

It really helped having the list for both of them to review all my symptoms with me. My Rheumatologist confirmed that most of my symptoms were due to Fibromyalgia and my primary handled the one that was not due to Fibromyalgia.

I wish you the best of luck getting to the bottom of all your issues. If you are not keeping a diary of pain, you might want to start so you can include new things on the list to your doctor.

If you need anything, let us know, we are all here to help.

8

Thank you all for your support and good ideas. I just started using an app on my phone to track pain.

9

You do indeed sound like Fibromyalgia but many other autoimmune illnesses may be like that, too. You mentioned dry eyes which made me think about Sjogrens Disease. You could even have both since they commonly go together. The best place for you to get a diagnosis is from a Rheumatologist. They are the one's who specialize in all of these diseases.