A few months ago, doctors started testing me for Fibromyalgia and said that I was right on the dot for it. They gave me two medicines that did not help and wanted me to take a third one which is too risky for me to try in my opinion. I have not heard from my rhuemetologist since his third med suggestion. I am going to be seeing my Neurologist again soon for some tests about my memory loss, and I am on Cymbalta for depression. Sometimes, I truly wonder if they are wrong on the diagnosis, or if I am just crazy. I don't want to be crazy. I just want to be pain free.
I do not remember the medicine name, it was like rebapentine or something like that, I think. My rhumetologist and family doctor have not given me any pain relief meds because nothing helps. I even had morphine at one point at an ER visit and it did not help. I am starting to have issues with work at KFC and unsure of what to do. My neurologist has so,e ideas how to help with the memory loss that I've had for years, but is now getting worse. But his method of more magnesium isn't well for me since I believe I'm allergic to it.
Thank you, that means a lot.
You are not crazy. Some times it takes awhile to find the right combination of meds and things that work for us. My primary doctor prescribes my pain meds and stays in contact with my rhuemy. You are not alone.
hi. i think the drug may be gabapentine from how you spelled it. That is the generic name for Neurontin which is an anti epileptic also being used to treat pain. many folks use that and it does help some. things have to be tailored pretty much to the individual , the symptoms , the dosages etc. i wish you all the best and send you
huggggggggggs
That is the medication. I had tried Lyrica and another medicatioin that did not work. Each gave me worse symptoms. The pain was becoming unbearable. I'm scared that if I try this third and final med, it will cause the same effects. I haven't heard from any of my doctors in weeks either.
My doctors aren't really that supporting with this.. I feel I am just a test dummy or something.
I'm so sorry you are having to deal with this at such a young age. I've pretty much figured out that I've had it from birth. Genetically it seems to run in my family on both sides.
I read in several places they are realizing that a lot of people genetically have a greater risk of developing it. Through severe sickness, Trauma, living in very stressful situations...
Try to lower you stress levels as much as possible, that is one of the major things that makes it worse. You are going to have to find out through trial and error what works and what doesn't. Anxiety is one of my worst, along with pain and fatigue. Cymbalta worked real good for about 2 years, but no longer is working for me. so you are going to find that happens as well.
Just don't let the doctors stress you out. They are pretty much" practicing medicine", on all of us, then we have to go back and let them know how it worked or didn't.
I hope you can get some control on the pain, and be able to enjoy life, I will be praying for you
In His Care
Melody
Gentle Hugs, I know its hard but please know you are not crazy. If so we all are. For years I wondered if the pain was real and after 20 years of wondering I've finally decided the pain I have isn't normal. I started having issues when I was around your age and all they would give me was prescription strength ibuprofen. That helped but didn't take away all the pain. And I didn't want to take ibuprofen everyday since they say its bad for your liver. Now my doctor has me on Tramadol because its not addictive. You might need to change jobs to something where your not on your feet all day and expected to move quickly. That may be a bit demanding on your body. I hope you have a pain free day today,
Stacey
My heart goes out to you. I was just diagnosed this year and I am 45 and not handling it well so I can only imagine how it must be for you. What I have learned in the few short months of turmoil is that it is up to you to keep track of your symptoms and your pain. Track everything and bring it with you to every visit to every doctor and show them how you feel after taking each drug that they have prescribed. There are even “Pain App’s” on iTunes that can help you with this and keep notes for printing out for the doctors visits, which is what I do. Fibromyalgia is no joke and can be unbearable some days. Just know that you have this website as a sounding board. We will ALWAYS be here for you!
I have been in GA for about two weeks, with no stress or overwork. I have still had pains. I went to Disney, where my knee gave out, then shakey. By the end of the night, my hip killed me. Now people think I could have MS or something else and think my doctors are stupid.
Tramadol makes me sick. I had that once. I have been doing well, thank you. I've been having a few bad days. I have no clue what to call my illness due to everything happening lately.
My pain is all the time, though my memory is going down the drain. My doctors are not very helpful.
I was diagnosed as a teenager, along with many other health problems that I started treatment for. As I get older I’m learning that it’s all linked back to the FM. Hang in there and keep remembering you know you better than anyone else! Be persistent and stay positive! It’s a hard road but eventually somone will listen and you will find the right med combo and it will be worth it!!
Its really rough to be given a diagnosis like fibro at such young age.
I started feeling my first symptoms at 18, so I can relate with you there.
You may be crazy, but your right about your pain ;)
Fibro is hard to treat, everyone needs something different. Nothing works for everyone, and sometimes it feels like throwing darts at a list of meds with your eyes closed. But eventually you will hit one that works.
Just keep your chin up, your smile bright and you'll find something soon!