Let me first start by saying I am thankful that my diagnoses are not anything worse than what they are. People are dying everyday from conditions far worse than anything I have. The frustration comes in trying to find the magic feel good med. ya know that one that fixes the issue and you get on with your life. It seems that for me the meds are causing more problems or exacerbating the existing symptoms... so I then try to not take the meds... only as necessary.. instead of daily. My stomach is not tolerating the meds it seems my nervous system does not like them either... I will be talking to my MS Dr. about all of this and I do hope he can look at ALL the meds I am having to take and cut out most of them by adding something simpler.
I believe it is time to find a new GP... one that knows about both Fibro and MS who can help me while I am in between visits with my MS Dr. I need to have things documented such as new symptoms this having to wait 3 months to see the MS DR. again is frustrating... I see my Rhuemy every month if not twice a month. So he documents the joint pain and body pain...
When my diagnoses was just Fibro... it was easy to manage my Drs ... Now I am so confused... to be diagnosed with MS and Fibro... They have a lot of the same symptoms so how am I supposed to know which Dr. to call up... LOL... I have no idea what causes which pain... which meds I really should be taking ... and then the GP trying to insist I keep taking a statin drug when my problem never was mini strokes it was MS... she had me come in this morning to do a fasting blood test... finally she is checking my cholesterol... something she should have done before ever prescribing a statin...
Oh well... I am just in a mood today... the past few days have been rough...I will figure all this stuff out... I always do. Just takes time. I am the most impatient person I know when it comes to getting answers to what ills me. I will first address my Rheumy with my concerns and then my MS Dr. when I see him in Oct. and back and forth until I achieve a desirable answer to my issues...I need these 2 to be working together.
I think I may know right where you're at as I had to find myself a new PCP for similar reasons. I did some research and found a Primary who specializes in "Complicated and Chronic Illness" and Internal medicine. I had my first new patient evaluation this past week and, I must say, I was thoroughly impressed. He had a detective-like mind and investigative approach which I thought was beyond my prior Primary's reach. My previous Primary is a good doctor, it's just my illness is just that- complicated and chronic- and I needed something more robust for my particular health care management. I am hopeful this new Primary is just the one to help me manage my overall health and symptoms along with the specialists. Perhaps you can look for someone similar considering you also seem to have a complicated medical history?
YES... I will hit the NET to see what I can find.. That is just what I need... I got the blood test results today about my Cholesterol... my total is 214...Triglycerides 355!!!! HDL 29 and LDL 114. I did some research on those numbers and I came up with my Betaseron injections (could) cause my triglycerides to be high... I am also thinking about trying some coconut oil... and now wondering if I am having mini strokes...LOL... although MS Dr. says I was not...and now wondering about my liver....I talked somewhere about taking Tylenol and killing my liver ... geesh It just keeps getting better and better...LOL... if it isn't one thing it is another... as for my diet... my stomach prevents me from eating a lot of junk food...greasy food ect. I do eat some but it is few and far between...something has to give...I do need to quit smoking but my cigs are like a pacifier...keeping me calm. LOL Just the thought of quitting makes me stress out...LOL... BUT it must be done. People in my house better tip-toe around me. Things are fixing to get UGLY!!!
Huggs, Belinda
BaltimoreBaby said:
Hi, Belinda.
I think I may know right where you're at as I had to find myself a new PCP for similar reasons. I did some research and found a Primary who specializes in "Complicated and Chronic Illness". I had my first new patient evaluation this past week and, I must say, I was thoroughly impressed. He had a detective-like mind and investigative approach which I thought was beyond my prior Primary's reach. My previous Primary is a good doctor, it's just my illness is just that- complicated and chronic- and I needed something more robust for my particular health care management. I am hopeful this new Primary is just the one to help me manage my overall health and symptoms along with the specialists. Perhaps you can look for someone similar considering you also seem to have a complicated medical history?
I quit smoking by buying myself the E-Cig. It is as bad as Second hand smoke. Like Cel phones, Ecigs are evolving every yr. I went from spending (per month) $125 for factory made smokes to $65 make my own smokes to $36 Ecig.