HI my name is Tina. I was diagnosed in 2012. Just finding out I have some other things going on . I having problems with my thyroid and autoimmune disease. I just been struggling with headaches everyday. I have migraines. We have not been able to stop them. I went through over year of Botox feft the results I got was not worth the cost I had to pay. I was headache and migraine free for three years. From 2006 to 2009. They started out slowly got worse as time went on. What seemed to get all this started was a very bad back injury in 2009. But when I look back at my old medical records I been having a lot these issues for very long time. I was also diagnosed with PTSD. two years ago. Not sure what got it to get this bad. Could have been because it went undiagnosed for so long.
I had hysterectomy at age 24 because I suffered from endometrosis. I have had a lot of issues. guess now I just looking for some support without having cry all the time to my husband. We just got married last October. I have two grandbabies. I try very hard not to let the pain control my life but when have to go somewhere for a visit can't help but to think about how are things going to go. If you have a place to lay down when you lose your energy. I haven't went to many places. My husband is very supportive does things around the house that I cant no longer do. He will come to my appointments with me doesn't really care if the house isn't spotless or if dinner is made.
We have three dogs. Two little ones. They like to snuggle and funny how they know I am having a bad day because they will sleep all day if I am.
That is all I can think of to say. I sure I left out a lot. Hugs to you all. Hope to get know some of you
Hi Tina,
I also had recurring non-stop headaches/migraines that had me in and out of the hospital before it was diagnosed as Pseudotumor Cerebri just a few months before I was diagnosed with Fibro. I completely understand the pain that you have described and the need for support! I too am in need and I hope that by sharing our stories, we can not only get support but give it too. I finally had the courage to look up a support group because as much as my hubby loves me, sometimes he doesn’t get it. I have constant pain, can’t enjoy our date nights the same (we just got married in August), we are both in our 20’s still so we never saw this coming. It’s been a lot on top of having PCOS & GERD, I lost my job and had to quit my docotorate program in my 5th year. I felt like a failure and blamed myself for a lot of the troubles that I had, but am now rethinking that and trying to just survive and thrive one day (and spoon) at a time!
So sorry to hear of your problems, but you are in the right place! The things you have experienced certainly resonate with me, every journey, trip, action, everything seems to be a big problem. It is very hard to stay positive, I know. I have had this tricky condition for about the same length of time as you, but I have been on this site for a few years and it really has helped. You can vent on here, as you say, saves your hubby bearing the brunt. You can get lots of useful advice and information, also.
Thank you for welcome. I just hope I chat with some people and give my husband a break sometimes with the venting. I don't work so I am home all day most of the time. I hoping be able to talk to people sometimes during the day.